Today My Brother Died

May 14, 2020

Earlier this morning my sister, Joyce, called to report that our brother Bill – William Robert Weisgerber – died this morning.

He was six years older than me. Seven years older than Joyce.

Aloof and mysterious to me as a younger brother all my life.

We were never close. The age difference was too great when we were younger. That simple fact became embedded in our relationship though our lives. It was too great to overcome.

We connected through Mom and sometimes, Dad but mostly through Mom. When Mom passed away a couple years ago the connection was completely broken. And yet, I found the need to connect. It was a unilateral need. A guilt really, maybe. It is hard to explain. Maybe no explanation is required.

When I was very young, we lived on Bach Ave. Some pronounced it “batch”. Mom pronounced it bock, like in Johann Sebastian Bach. It was a three story house. My brother’s room was the whole third floor. Neat!

Once, Johnny Deering and I were learning chemistry in the front yard with some matches. We were secret about it. We had selected the front hill behind the privet hedges to experiment with our new found knowledge. Bill noticed what we were doing which was mostly striking matches and watching them burn up. Sometimes we let one light another. We found out dirt won’t burn easily and ants dislike fire.

From an early age Bill understood the chain of command. He reported to Mom. Mom appeared at the front door. All experiments were terminated that day.

In another flashback memory, my brother is standing in front of the downstairs bathroom mirror with blood running down his chin. Mom is there cleaning a wound just below his lip made by some obstruction as he was sled riding down a hill with his buddies. He had several of these wounds on his face. I guess he never looked away from danger or a challenge.

Dad and Bill were ham radio buffs. So was I but I was six years behind. I still tried to participate in the mystery discussions about the nuances of using this amplifier tube versus that one in some circuit they were working on. What’s a tube? An old way of doing things. In retrospect, I probably spent more timing hanging with Dad in the basement. But by that time Bill was out of the house mostly and Mom had moved us from the Bach Ave house to Eastwood Circle.

He went to school in Cambridge, Massachusetts at MIT. That one single fact makes my brother a very smart guy in my mind. But then I have always thought that. It may be a pedestal that he did not deserve but as the younger brother I looked up at him physically for about seventeen years and that continued even though I surpassed him in height.

To explain our relationship, I often told the story that He never really spoke to me much before I was eighteen and he was getting married to Judy. I thought but never knew for sure that Mom told him to ask me to be in his wedding. I still don’t know but our relationship changed after this event. We became distant friends.

Life and family is complicated and tenuous. Certain things are constants. We become comfortable with those constants. And then we find out that they are variables after all with a long time constant. Like mountains however, they move and wear and change. It just takes a long time for the change to be noticeable. If something changes suddenly, like a landslide, everything is wobbly for awhile. Its hard to get a grip on the world again.

When a sibling family member dies the others are left with the reality of death. Death is as natural as life. But still there is a kind of aloneness, not loneliness, something is missing. You can not quite put your finger on it. There is a gap, a hole, a missing part.

Some stories.

Bill called me in 1994 after I had been terminated from my job with a small adhesive application equipment company. I had been the controls engineering manager there after I left Cincinnati Milacron and embarked on the rest of my life. I do not remember him calling me much. It was the other way around in my memory. So, his call was a surprise.

He called me, he said to offer some advice. He said, ” You have to decide what you are going to charge.” ‘Charge for what?’ I replied. They are going to trip over some problem that they will need you to fix, because they did not know they had it. Something you would have just handled. They will try to get you to do it for nothing but its a temp job. Figure out how much you are going to charge to fix their problem.

Every worker should be fired at some point in their life. It is not very much fun while it is happening but it is an excellent learning experience. You get down on yourself. What did I do wrong? How will I go on? If you are part of the engineering staff of a company, you often operate under the illusion that you are part of the management cadre. Nothing could be further from the truth. You are a worker bee like everyone else. Your work however is to think, design, plan and create the product.

Bill’s little advice made me realize my value. Anything I did had a price. And that price was value for my time, experience, problem solving ability, cleverness and elegance of design. More importantly that price included time away from things, family, people and situations that might be more important to me than doing some job that the only tangible benefit was a pay check. He had put it in perspective. Life is too short.

Next time you are in a cemetery read the stones. Find one that says, Great Designer!, Great Mechanic! Best Marketing Director, or Superb at Middle Management. Good luck. Go back and look for Father, Grandfather, Mother, Nana, Mom, Dad or Wife. Which was easier to find? Life has priorities. Do not loose track of their precedence.

Another story; Joyce calls me one day. “What do you think about Mom?”

me: I don’t know. What are you talking about?

Joyce: I think Mom is depressed. She seems off.

Me: Oh you mean that. Here’s what I think, Joyce. If Mom stays in her house, she will be with us for another year. maybe two. If we get Mom to move to some assisted living situation or at least somewhere there is some social engagement she will be with us for four maybe five years. What did you have in mind?

Joyce: That’s what I think too. Let’s see if we can get Mom to move to Seasons. I’m coming to Cincinnati.

Me: What about Bill? Last time we did this we almost had Mom there in Amberlawn and then Bill told it didn’t seem like a good place.

Joyce: You call Bill tell him to tell Mom he loves the place and it would be a good move.

And so it came to pass that I was responsible for telling my big brother that he did not know what was best for Mom. Joyce and I did. His only job was to cooperate and rave about the new digs we wanted to get Mom into.

In a fairly long phone conversation I became aware of the fact that he had no idea of the power of his opinion. Two thousand attaboys from Joyce and I were wiped out by one simple aweshit. It need not be a full aweshit, it could merely be a I dunno Mom.

I carefully explained to him he was the firstborn son. The only progeny with substance of thought and consideration. No other children’s opinions were of import. And he was in Florida. I was in Ohio. Or bring Mom to Florida to live. I could go visit. Joyce lived in Oregon. She could visit either place.

I could have kissed him for the rave reviews he gave Seasons community. He actually said, “Seems pretty nice, Mom. I could live here.” So we got Mom to move and she lived about five more years. Not all at Seasons but it was a beginning. It worked out.

For that I will always be thankful to Bill and amazed that he had no idea of his influence.

Can you tell me?

Can you tell who is picking me up today?

A question in the early morning hour of 3:45AM puzzled her. She awakened with the thought that she had to get ready. Someone was coming to pick her up and take her somewhere. Panic stricken she woke up and couldn’t remember who or to where.

It is still with me many hours later. I wonder whether it is okay to just go with it or to cause controversy in the wee hours and deny it. I chose to console her with, next week. You are going next week. Oh, good she said and got up to visit the toilet.

Sometime between the bed and the bathroom, it changed back into I have to get ready. They are coming soon. After the toilet flushed the closet door opened. I knew my ploy did not stick. I got up to try again.

Remember I said. You are not going until next week. Oh, okay she responded as I took her bathrobe and hung it onto the hook again. Come back to bed, I said.

We did. Eventually she was gently snoring. I laid awake listening to her sleep. Wishing with all my being that she would remain there, I fell back to sleep an hour later. Love messes with your head. Be angry if you want but anger accomplishes nothing.

In the morning she does not remember. It is a ghost memory.

Parkinson’s disease, ya gotta love it.

NOBODY ELSE WAS HERE

Nobody else was here when I got up. Where did they all go? Did you sleep okay?

This is our morning conversation more often these days. Not everyday but most days. She awakens in a dreamy daze that mingles with reality and it takes time for the dream to dissipate and the reality to focus. Occasionally it does not completely dissipate but she shushes it into the background and tamps it out of sight for awhile.

It is hard for a brain to understand that the chemistry surrounding it is off.

It seems like any thinking/decision-making activity is difficult. The reality versus surreality is merely a symptom of the slow degradation of the brain’s high order functions.

Man, Parkinson’s disease really sucks. That is reality.

Published in the WSJ on Friday 4/24/2020

This op-ed piece was published a few days ago. It has captured my heart. It speaks to things that I am mindful of daily.

Dying Gives Us a Chance to Confront Truth

HOUSES OF WORSHIP

By C. Kavin Rowe

Years ago I preached a sermon on death to a relatively young congregation. As I greeted congregants after the service, many smiled the Southern smile that means, “We know our manners but don’t like what you said.” Yet one elderly couple stopped to talk, “We’ve never heard a sermon on death here,” I recall the wife saying. “We needed one. ‘We’re old and we know what’s coming.”

The Covid-19 pandemic has swept away the illusions that led the congregation—and much of the world—to ignore death. The virus will kill only a small minority of the world, Yet its prevalence has reminded people everywhere that if Covid-19 doesn’t kill them, something else will. This realization recalls a truth central to the Christian tradition: No one will get out of life alive.

Over time Christians developed a set of practices to help us tell this truth and to prepare for death. In the Middle Ages this was called the ars moriendi, the art of dying. Today, a quick death often is seen as ideal. Yet the ars moriendi holds the opposite view: It’s a good thing to see death. coming and to have time-to-prepare. Time and habit provide the chance to live fully and—even at the last hour—become a mature human being, one who tells the truth.

I know this firsthand because my dying wife tells the truth. When she was referred to hospice some time ago, after a long and painful decline, she simply noted, “I don’t want to die, I want to finish raising our son.”

Through attentive care, hospice has extended her life—and with it the chance to talk about our successes, failures, hopes, sorrows, beliefs, and doubts. The demand to face death created a new chance to grow closer together and deeper in our faith. We don’t have time to argue about what a “messy kitchen” means when we’re focused on sharing the truths we need to hear: I love you. I wish we could grow old together. I wanted to know our son’s wife and our grandchildren. I will be with you until the end.

We have long read the Bible. But facing death has brought it near, and its words now speak directly to us. We find comfort in the Psalms: “He lifted me out of the desolate pit, out of the mire and clay”; “Taste and see that the Lord is good.” And in the words of Jesus: “Let not your heart be troubled; and do not be afraid; “I am the resurrection and the life.” And, when my wife has breath enough, we also sing the Kyrie eleison. Lord, have mercy.

And he has had mercy: Jesus teaches that the way to a full life is through facing death. That teaching holds up. My wife has not been healed and will never get better. But somehow we are on the path of life. Telling the truth and training for death is agonizing, but it also has provided consolation. Death no longer seems far away; training for it and experiencing its closeness has brought certain gifts. These gifts of clarity of purpose and love are what human beings spend much of their lives longing for and failing to find.

Covid-19 it not a blessing. It is one more obvious, terrible instance of a broken world. But amid all the reasonable concern, we shouldn’t lose sight of the deeper cause of our anxiety—our mortal fear—and the unprecedented chance within this life to become fuller, richer and more joyful human beings.

When we accept the truth about our mortality, we can also experience remarkable freedom: to take the time to say “I love you”; to stop nursing resentments, thinking that forgiveness can always wait for another day; to cease pretending that little annoying things matter so much; to pick up our heads and look at the beauty of the world; to examine our beliefs about what really, really counts in life; to mend relationships; and, for those who’ve never tried it before, even to pray.

No sane person would ever give thanks for a pandemic. But if we take the chance it gives us to become truth-tellers, lovers and reconcilers, we may well wind up giving thanks for what we have become.

– Mr. Rowe is a professor at Duke University Divinity School

Mr. Rowe makes some excellent points.

“Telling the truth and training for death is agonizing, but it also has provided consolation.” As I watch the excruciatingly slow decline in my Parkinson’s patient wife I am mindful of hers and my morbidity. As Mr. Rowe reports, no one escapes death. Age alone will get us all in the end. Is it arrogant to pray that she dies first so that I can take care of her to the end? This is a question I wrestle with often. Arrogant in the sense of; what makes me think I can outlive her? My intentions are pure I think. Are they arrogant in the sense of, I am the only one who can look after her properly?

The prayer is wishful and nuanced with maleness and man-splaining. And laughable. Man plans. God laughs.

Thinking about it, prayer has a different meeting. To “pray for something” is an odd thing to say. Whatever the something is won’t drop in from the sky even if God answers your prayer. And what does that mean, “answers your prayer.” What does it mean to pray to someone like a saint? What is prayer?

To me it is a mindfulness. A meditation used to calm active mental dissonance. Quiet thoughtfulness.

One does not have to sit in a dark room to achieve this and journaling helps with focus. Writing pushes me to think and decide on which words are the precise emotion or idea to convey. The beauty of language is its ability to convey nuance, color and illumination. Illumination of ideas is unavailable in darkness.

… “we can also experience remarkable freedom: to take the time to say “I love you”; to stop nursing resentments, thinking that forgiveness can always wait for another day; to cease pretending that little annoying things matter so much; to pick up our heads and look at the beauty of the world; to examine our beliefs about what really, really counts in life; to mend relationships; and, for those who’ve never tried it before, even to pray.” — I hope so.

Perhaps that is what Parkinson’s disease, Covid-19, Cancer in all forms, Flu virus, Tay-Saches disease, ALS and the all the rest of a plethora of miladies known and yet unknown are meant to teach us; the beauty of the world around us and what really counts.

Yesterday She Slept Late

She slept very late this morning. I awakened her at 10am and did not leave her. This seems to be, more and more, a common occurrence.

There are many symptoms of Parkinson’s disease and not all “parkies” get them. The disease and treatment is largely anecdotal. “Whatever works” is a good description.

Imagine a wide range of symptoms that mimic other maladies. The tightness in the chest of a heart attack or simply a gas bubble. The dizziness of a stroke or low blood pressure or low blood sugar or simply exhaustion. The stiffness or inability to move one’s limbs like paralysis or arthritis or simply old age. Sensory hallucinations, peripheral neuropathy, loss of sense of smell and orthostatic hypotension are other symptoms. And Parkies experience some or one or all of these.

Interrupted sleep patterns are common. Vivid dreams are common. Hallucinatory dreams that merge with reality upon awakening are common. Delusional thoughts intrude upon normal cognition. It is quite a ride mentally. Often the changes are so subtle the parkie does not notice and any caregiver, if not alert to the subtlety, will mistake the behavior change for a mistaken memory or ignorance or a misunderstanding or even hatred and anger.

So, after two, three or four days of sleeping poorly, she will sleep late. Its good for her. She is exhausted.

Today she hit me. In her dream… I wish I could see into her head to see what she was chasing. Sometimes she can remember. Most times not.

Whatever works.

A Late Day

She slept very late. Peacefully until about 8:30am when I began to tease her into wakefulness. She was very resistant. I did not succeed until 10:30am. At this point she off her medication schedule by 3 1/2 hours. That fact is important to a parkie. She is going to have a rough day.

She awakened in a delicate mental state. Dream like, probably, from her perspective. I heard her get up and use the toilet and waited for her to pop out of the bedroom door. She did not for some time but I thought she was putting on her morning clothes which is usually a pair of sweatpants and her favorite brown jacket. After waiting for a suitable time, I went to check on her. She was sitting on the bed waiting for someone to come get her.

In my usual fashion I asked how she was feeling. She responded with “Okay.” And then she asked, “Who else is here?” I had the television on listening to a Sunday newsy blather about nonsense in the rest of the world or, at least, New York City and Washington, DC. I told her no one but us was here. She did not want to come out if other people were here. I helped her to the kitchen table for medication and breakfast. Worried a little that I had let her go too long.

7am medication dose at 10:30am at this point. She eats some Life cereal to go with it. Crane-Apple juice and Dove chocolate round out the meal. Dove chocolate has become a passion. She eats one or two with every meal or simply to snack. I always buy some when I shop at the grocery or pick up a prescription at the pharmacy. (Walgreens and Walmart have the best selection but she only eats the dark chocolate(red) or milk chocolate ones.)

I sat with her for a bit and tried to not hover over her while she was eating. She brightened slowly. Read the newspaper. Looked at the comic section. She came over to sit with me and I restarted the recording of CBS Sunday morning. It is a favorite show of hers that we watch together. Usually while enjoying some bakery treat and tea for her, coffee for me. Most times it is a restful Sunday relaxation. Today, though, she watched about 30 minutes and wanted to lay back down. I helped her back to the bed.

The day moves on. Twenty minutes or so later she is moving around thinking perhaps a little Coca Cola and some cheese crackers will help. So she has a bit of lunch. And some Dove candy, of course.

I am assured that we will get through the day. Live in the moment. Parkinson’s disease sucks.

Later in the day, as we were eating a simple dinner of soup and a sandwich, she explained more of what she was feeling and seeing this morning. She sees small children in our bedroom sometimes at night and sometimes early in the morning. We have a queen size cannonball bed. We bought it early in our marriage. It is comfortable. The foot board has pillars at either end with a ball shape at the top. These transform themselves into little black girls at night. We also have some needlepoint pictures that she did many years ago. They are hanging in an oval frame and often at night transform themselves into a couple of people peering over the back of the chair that they are hanging behind.

The Parkinson’s affected brain perceives things differently. A neurotypical brain constructs reality from the sensors it has to detect the surroundings. A parkie brain often no longer is able to construct the same reality from what it sees, hears, touches, tastes or smells (if smell is still available).

As was noted earlier Parkinson’s sucks.

Sunday – 17 days into IT

I started to write this several days ago as a way to describe daily routine. Like, anyone wants to know about our (my) daily routine. (smiley face) Nevertheless, routine takes on a whole new meaning when you have little social interaction with others during the day. In my case, I will make this all about me, lack of that other contact seems to cause me to focus on Cheryl and her struggles during the day.

I have been taking very specific notes about her illness, lack of illness, med schedule, eating schedule, things going on around us.

I have to note here that it is easy to “get on each others nerves”. Part of that is I can be a pain in the backside when it comes to health issues for Cheryl. Keeping her from getting any upper respiratory infection is paramount to her health. Sometimes she develops a dystonia in her chest or maybe an air bubble in her stomach that she can’t release from her stomach. Her complaint is – I feel like I can’t breathe. Not a good thing to say in a hospital ER.

On Friday we had the new windows installed. Nice. On to the search for window treatments satisfactory to us both. Not wanting to fight the lets go look somewhere argument which is winnable but not in a satisfactory and gentle way, I have ordered something for my office which might suit me if it fits. This is a way to try stuff out without wasting a lot of time in a Covid-19 ridden big box store with almost the right thing. Almost the right thing I can get from Amazon.

In the early couple days of the self-isolation I was concerned with the size of my larder and the stocks therein. I should not have had that concern. Even though our place is much smaller and I have taken over many of the cooking chores, we still tend to buy things with the idea of – let’s make that – and then we get close to eating time and decide to eat out. I imagine that is pretty common among older adults. As a result, the larder was not bare when the toilet paper rush started.

I was disappointed that the ice cream case had been devastated by the TP hoard at our local IGA. Apparently they do not fancy frozen yogurt.

I started my notes on the first full day of Spring but they are sketchy notes and as the day wears on I become interested in other diversions so my notes are more cryptic and open to refinement or just abandoned for other pursuits.

March 21st

  • up @ 7AM
  • cooked pancakes
  • felt dizzy, laid on floor about 8AM-8:15
  • shower about 9:30am
  • 10 meds
  • 10:45 am lay down complaint – chest tight
  • up 11:15Am
  • later I noted Birthday cards – okay

When I read this list and reflect on it, it is a typical sequence of activity for the first three hours of the day. This was a Saturday so pancakes are special on the weekend. This tradition goes back 50 years or so in our marriage. I remember that after about 35 years or so the electric skillet, which was a wedding present from someone, died and a crisis developed. A new electric skillet was obtained but has never been precisely satisfactory. (sad smiley)

The dizzy feeling used to occur without warning. Once she collapsed sideways and fell to the floor on top of the soft drink bottles that reside there and did a number on her rib cage with the bottle caps. The lightheadedness does not occur with consistency but it is not atypical either. We know what to do and do it. Recovery is fairly quick.

Taking medication at 10AM and having a reaction to it thirty-five to forty-five minutes later is typical if it occurs. That reaction is not always present, but when it occurs, thirty minutes recovery is the usual course.

Cheryl has taken over the birthday card activity from her mother. When Elaine passed away two years ago, Cheryl decided to keep up her mother’s tradition of sending birthday cards to the nieces and nephews, grand children, great grand children and others. It is a big deal to her. every month we go to the Dollar store to get cards. Her mom liked the cards at the Dollar store so that’s where they must come from. (smiley face) The names and dates themselves are contained in an Access database which is the kind of work that Cheryl used to do. I should note here that this type of computer activity, albeit minor, is becoming more confusing to her. This confusion is exacerbated by the fact that as her movement is affected by various dyskensia motions and dystonia non-motions the computer mouse and software react to those and stuff moves around in the file structure and software links. (angry smiley)

March 22nd

  • She got dressed in the early morning (12 – 4AM)
  • 7AM – BR
  • 8AM – sleepin
  • 9:30AM still snoring – I woke & snoring 2 min later
  • up at 10AM (7am meds)
  • Frig rolls & OJ
  • 10AM meds at 12
  • listening to old albums
  • 12:20PM feeling OK
  • snack lunch
  • 1PM meds at 2PM (lay down 30-40m)
  • 4PM meds at 4PM
  • Played Scrabble CH/wins – she seems okay, movement & mind; no stomach
  • 2 Sin @ 2PM (not 2 1/2)
  • 10PM meds @ 11PM
  • working on thread organize
  • bed 10:30PM

I did not note what we had for dinner. Perhaps it was not of great note. But after getting up in the very early morning to take a shower – this has happened before – she was very tired and slept in. She probably took a shower in her sleep and eventually awakened and returned to bed. She told me this later in the morning, so I made notes. She does not remember where she was getting ready to go to. She sat in the kitchen for a bit and looked at the table cloth that she had modified to fit the table on Saturday. It comforted her that it was complete and on the table. She sat for a bit and returned to bed.

I awakened around 4AM and noticed she had changed her clothes and was awake. She told me she thought she was going somewhere. We held hands for awhile and fell asleep again (or I did.)

In the later morning when our alarm went off at 7AM, I arose and turned it off. She said, “Thank you” as she often does. I went to make coffee for myself. She stayed in bed. I thought she might since she had been up in the early morning. I checked on her several times but lately I err on the side of more sleep if I am sure that she has been up for a couple hours in the middle. She finally got up a little before 10AM.

Betty Crocker refrigerator cinnamon rolls or a coffee cake from me or a local bakery is another treat we often have on Sunday. We watch the recorded version of CBS Sunday Morning and enjoy our treat. I drink coffee. Cheryl drinks tea. Its a relaxing morning overall.

Cheryl has planned to give a bunch of her sewing supplies, scraps, thread, etc to Anna’s youngest, Virginia. Virginia has shown some interest in sewing and other crafts.

So, there you are, a couple typical days in the life. These are weekend days at the beginning of the whole Covid-19 pandemic sit-at-home-and-wait thing but it is pretty typical. An extra virus has not changed it much if at all.

Parkinson’s sucks, big time.

Feeling Groovy / not Groovy

How do I feel today? I write little scribbles here because it is a kind of therapy. If I find a little story in my head and I think I can tell the story. I do. I do not concern myself with who reads it. It is written for me.

Lately I have been listening to Simon and Garfunkel albums. Songs from old vinyl and from Alexa. This is the music of my high school years. For whatever reason, recently, it has become the background song track of my life.

It strikes me as interesting how many of these songs I know the lyrics to. It is also remarkable how that can lift my spirits. The 59th Street Bridge song just went by and I asked Alexa to repeat it. That is a super cool feature. It reminds me what a wonderful and amazing world we live in!

Feeling groovy about that!

Covid-19 virus, kungfu flu, Chinese virus, novel corona virus, whatever you choose to call it or slander it with, it has caused virtually everything to stop. In retrospect, Parkinson’s is good training for that. Much of our “running around” life went away with Parkinson’s disease. Lots more planning is involved.

The sound track plays “Bridge of Troubled Water” and makes me mindful of how much more intimate and involved our life has become as Cheryl deals with her symptoms and I help her to do so.

When you're weary, feeling small
When tears are in your eyes, I'll dry them all 
I'm on your side, oh, when times get rough
And friends just can't be found
Like a bridge over troubled water
....
Sail on silver girl
Sail on by
Your time has come to shine
All your dreams are on their way
See how they shine
Oh, if you need a friend
I'm sailing right behind
Like a bridge over troubled water
I will ease your mind
... Bridge over Troubled Water  - Simon & Garfunkel

These words, I did not copy them all, are a perfect description of the role of a caregiver. I actually teared up while Paul Simon (Alexa) was singing a moment ago. He makes me think about the importance of this job that was given to me above all my objections.

But not feeling groovy about that.

The first thing I remember
When you came into my life
I said I'm gonna get that girl
No matter what I do
Well I guess I'd been in love before
And once or twice I been on the floor
But I never loved no one
The way that I loved you
And it was late in the evening
And all the music seeping through
... Late in the evening - Paul Simon

I guess your journey through life can be happy without love for another. I am not wired that way. Each day with Cheryl is a new and valuable experience. More and more I recognize that to be an undeniable truth. It is, however, very hard to watch her deterioration.

But, all in all, Feeling Groovy. This is a great way to express my current state of mind.

Forever My Love

Words of love
Softly spoken
Like clouds above
Drift away
What shall I say?
To let you know the way I feel
Should I cry out loud that love is real?
Or simply reveal
Forever my love

Time alone will tell us
Lovers born in May
May grow bitter and jealous
Faded and gray
What shall I say?
It’s not another lovers game
It doesn’t seen to have a name
It changes and remains the same
Forever my love, my love

Yesterday’s projection will never really know
But tomorrow’s recollection will surely know
It was so
Between us
Ain’t no other way
Time has seen us
Day after day
What shall I say?
That isn’t in the way I act
That will carry through the years intact
I’m lookin’ forward to lookin’ back
From further in down the track
Together in fact
Forever my love, my love

She caught me by surprise today. Telling me about this song by songwriters Carly Simon & James Taylor. Lately occasionally in the midst of the corona virus catastrophe, she’s been playing old albums as she puts her office/sewing room in some sort of order. Various moods float through our house.

She also found this picture of us on our wedding day. (Goodness, we were thin then!) She made that dress. It was a wonderful day that I have little memory of. That is sad, is it not? I did not keep all the minutia of that day in my heart as she did. I remember it was HOT.

We were married in late August in Ohio. Long enough ago that A/C was advertised as an important feature of bars and other gathering places.

Today, almost 50 years later, I reflect on that fact and the wonderful times we have had. And look forward to the years we have left and I wonder if I am able to keep the minutia in my heart as her ability to do that fades. I pray that I can. To help her remember later and never correct her recollection, merely help her weakened mind.

Forever my love. That was our vow to each other. Forever. That is love. Her disability now is the reason we were brought together then. He knew she would need me. For that I am grateful. I did not think I would be when we first learned of the Parkinson’s but with each passing day I realize the gift He has given me.

A Kiss to Awaken

I kiss her awake in the morning. It seems kinder than other ways. A little smile appears. Is it working? I ask.

The smile becomes a smirk. No. She replies. I leave to return later and try again.

She sleeps some more. I know that because I hear gentle snoring from the other side of the bedroom door.

And then I hear water moving through the pipes. She is alert . Getting cleaned up a bit.

The door opens. She is up. My heart leaps. It’s a new day. A new beginning with less sun than desired perhaps but bright nevertheless.

I smile and plan breakfast.