Different Interpretations

This cartoon is a double entendre. Double entendre is open for misinterpretation. Usually one interpretation is risque or at least rude in some fashion. One interpretation may be metaphorically a dog whistle. Clear communication uses none of these but as the cartoon below describes how jokes employ all of these techniques. And from Shakespeare, “Jesters do oft prove prophets,” in King Lear.

Language is nuanced. Idioms and usage depend upon the speaker’s and listener’s background and environment. As Parkinson’s disease develops it often robs the brain of the ability to detect the nuance and subtly of language and more succinctly the difference between truth and tease.

When people do not say what they mean, the listener is left with an unwanted task of interpretation and analysis without complete information. In conversation the listener may respond with, “To be clear… (the uncertainty)?” in order to understand the speaker. This is a fair question. It is not a challenge. It is a clarification. Questions left unsaid answered only by the listener may not be the intended thought of the speaker.

Direct speech can be interpreted as rude. Many speakers talk around a thought in hopes the the listener will hear that which was left unsaid and be less offended. Direct speech can be interpreted as confrontational but direct speech cuts through the Parkinson’s fog. Parkinson’s is not subtle.

Parkinson’s sucks.

Love Stories Make Me Cry

I don’t know why that is. They just do. They are not sad but some are. Life long love is precious. Some say that it is rare. Perhaps what makes me tear up is the fact that many people do not find love that lasts for a lifetime. Perhaps an inner joy in me appears when I discover a story like ours. Perhaps my tears are tears of joy for, I cry at weddings and births too.

In the Fall/Winter Miamian (The magazine of Miami University) is a wonderful love story. Many Miami University grads met their life partners there while in school Oxford, Ohio. I imagine this is true of many university campuses but at Miami it is legendary. The story is about two people who met at a basketball game but did not know each other. They were set up by friends and began to date. During this time she noted that they could get a one hour PE credit for taking a social dance class. He did not want to do that but she insisted with, “If you’re going to date me, we will do this.” Later as they found out that they were in different sections of the class, she wanted to drop the class because it was not what she wanted it to be. He responded with, “If you’re going to date me, you are going to take this class.” The woman teaching the class allowed them to take their final exam together. It was a waltz. It was a metaphor for the rest of their lives.

Today she is suffering with Alzheimer’s disease. And he is her caregiver. As time progressed she needed more care than he was capable. As he was moving her into a facility to care for her better the pandemic struck the U.S. The facility was about to lock the doors to curtail the spread of the virus to their residents. Could he move in with her? Yes. He has moved in with her to the assisted living facility to be with her throughout this Covid-19 pandemic. They locked the doors to the facility to stop the spread. True love.

I wonder about our future with Parkinson’s disease. As time progresses I notice that my life partner struggles with many of the simple organizational tasks associated with day to day living. I have taken over many of these, most of which fall into the category of chores – laundry, cleaning, cooking and the like. I wonder if it might have been better for me to not assume some of these tasks. It is not that I mind doing them but I have taken many of the daily routine tasks away from Cheryl and she has little of the daily routine chores to help her organize time during the day.

As it is, I am able to keep up with daily living chores. But I cannot resist looking towards the future and wondering about what is next.

In addition to being a movement disorder, Parkinson’s seems to destroy in some people the ability to perform parallel tasks. Cheryl has filled her days that I have removed the chores from with a task that her mother used to perform for the family. Elaine used to keep track of and send an appropriate card to children and couples on the recognition of their birthdays and anniversaries. Intermingled with this was additional well wishes for illness, deaths and other life events. It is somewhat unique in her extended family as I have noticed no one else doing this. Facebook has the unintended consequence of reducing within a family notes, cards, phone calls and other intimate connections. (Perhaps a good new year resolution is to get off Facebook and onto the phone or email or snail mail to reconnect.)

I have digressed. The simple act of keeping an address list up-to-date and maintaining a calendar with birthdays, anniversaries, deaths or other dates is confusing to one who is loosing her ability to remember which pocket of her purse holds the chap stick she put in there moments before. I help her and have helped her a bit around the fringes but I am resistant to take over this task in its entirety. It is something she wants to do. It seems to be something she likes to do. It is something that frustrates her greatly upon occasion. It is something that derails her objective when she discovers an incorrect address or thinks she has discovered an incorrect address because she has remembered an address from “auld lang syne”. When this happens one must stop and wait for the correct address to appear from the email inbox – or text message stream which is a variety of the same thing.

This is merely an example of a deteriorating brain and I wonder if I will be able to keep up with her needs into the future. The husband of the couple interviewed in the Miamian recognized that he was unable to tend to her needs completely and decided assisted living was the answer. His wife has Alzheimer’s which is by my perception much more debilitating than the slow progression of Parkinson’s disease dementia but will I recognize when I am unable to take care of her on my own?

Our love is here to stay. Their love is also. I will always cry when I find a love story of two people devoted to each other for life.

Parkinson’s disease sucks. I hope I can recognize where it is sucking us toward.

Do … Resolutions for 2021

Do all you can while you can. Life is a one time deal.

Carpe Diem — longing for the old days is wasteful. While it is fun to reminisce about previous experiences today is here. Stay tuned into your surroundings.

This Post card from Bishop John H. Vincent

I wish to resolve to do this care giving thing better:

Goal:

my attitude to be positive, my hands to be gentle when administering help and my heart to be full of compassion. [What she sees, hears, feels and tastes is real to her no matter what time of day.]

Plan:

Understanding and education of symptoms and what can cause those symptoms. Keep educating myself and make no assumptions about cause and effect. [This can help me to understand that I do not know all the answers, that only she knows how and what she is feeling.]

Action:

Be supportive when necessary, explain if asked, and lead if called upon. [It will be tempting to know the right answer but to find the patience and empathy to determine what is called for at any particular time is wisdom to be sought after.]


Some Specifics:

When walking with Cheryl, stroll. She moves slower than she once did.

Do not tune out the surrounding world and merely wait for the next event. Seize down time for exercise, education and entertainment but do not regard the environment as an intrusion of self.

Be more upbeat! (That is not specific. (smiley face here)) Look for the gold in every day. Leave the tarnish for yesterday.

Parkinson’s still sucks. Let’s make the best of it in 2021.

Some More Conversation

This morning she says to me, “Are we ever going home?” … in an angry tone.

It is kind of an odd conversation but more common conversation to have in the morning. Because she seems to be in a different place in her head, even though she can see all of her possessions and her earrings and her clothes et cetera nearby.

It’s just really, really interesting and disturbing. I am unsure of how to react sometimes and what to do about it. This morning I did pretty much nothing and told her that we were in fact home. This is where we slept last night.

Then I asked her if she needed my help find a shirt or anything like that to put on and that seemed to deflect her mind. AHA – so maybe in the future. What I will do is look for those opportunities to answer her question and then move on to a new topic because she doesn’t seem to get lost when I change direction. She doesn’t insist on talking about where we live and why we are there and etc. Poof! She looks for a shirt.

In the past few weeks we have had conversations about dreams, Jan and furniture. She has a different reality – which is probably the wrong way to say it – sometimes in the evening, sometimes in the morning. It is difficult for me to ignore the fact that she perceives something different than I do. My natural tendency is to correct her perception. (What can I say – I am male. It is built into my jeans. Yep – purposeful use of the homonym.)

I guess we are creeping toward the non-benign form of Parkinson’s disease. Sadly.

I have told her many times that I will stay close by to help guide. She seems to understand for now.

Some days it is hard to find any humor. We use to tease each other. Now she does not understand and thinks I am being mean.

The Importance of Being Confrontational

We had dinner with friends last night. There was much alcohol. There is little to be said about that except that alcohol lowers inhibitions. Does it enable conversation? Maybe not but it does seem to promote confrontation.

Her candidate did not win. That became apparent early, right after the second bourbon. And as a retired junior college educator she was irritated with the state of education in a Covid-19 world. Life sucks but then there is bourbon so its not all bad.

But eventually after the acceptable amount of self-medication, it came out that she is worried about socialism for her grandchildren. I thought about asking what the term socialism meant to her but I quickly decided that would be needlessly confrontational or might seem so to her. With that in mind, I kept my mouth shut.

Socialism is scary thing for a capitalist. Because, from the dictionary – socialism is a political philosophy and economic system based on the collective ownership and control of the means of production; as well as the political and economic theories, ideologies and movements that aim to establish a socialist system. It seems a hard system to make work with out a lot of true egalitarian democratic decision making. My wife and I often do not agree on which restaurant to go to in a spur-of -the-moment decision to eat out. I find it hard to believe that the 10,000 people or so that it takes to run an oil production company for example could put their heads together to decide how much one should pay for a gallon of 87 octane gasoline that came out of their production line. It seems not impossible but certainly impractical. It also seems unlikely to me that we could ever get socialism ala China or Russia to work in this country of ours. Too many gun-toting NIMBY folks out there to allow that to happen.

There appear to be many a broad brush with which to paint the political landscape and in a brain storming session (committee meetings and hearings) various factions shout at one another without conclusion. The color of Socialism does not seem to stick to us.

What is the purpose of government? Any government’s job is to provide for the common good. If the populous is good and kind and empathetic to one another there is little need of a government.

A home owners association (HOA) is a microcosm of government. It is a truly democratic organization for managing the money and facilities for the common good of all. Hard stands appear when groups of people talk about money. HOA expense items are the same each year. Those service items increase in cost. The basic items are: utilities, waste removal, alarm system, administration, insurance, landscape and building maintenance. Unknowns are saving for a rainy day and disaster relief. It is prudent to budget for all of these. Home owners associations are socialist in most respects. Everyone pools their resources for the common good. Everyone in the HOA has access to all common elements, such as, parking areas, lawns and if such items exist, pools and recreational facilities. Nevertheless, few participants readily volunteer to pay more from year to year for the same. A small HOA can meet in person to transact business but even then not all want to participate.

Village and city governments quickly be come too large to transact business in a democratic fashion. We are used to selecting representatives by vote to exercise and express our interests for us. We accept their decisions as our own. If the populous gets dissatisfied they can vote them out.

Some confrontation is good for discussion. It breaks folks out of their own biases and ideas to understand the side of the discussion they did not before. There are at least two sides to every issue. Many times there are three or more.

Twelve sides

Looking at all sides of an issue or least as many sides as practical before making a decision takes patience and understanding. Passionate debate is useful.

So what does any of that have to with socialism? Nothing. But it points out a flaw in execution. Is there such a thing as representative socialism? There is representative democracy. The U.S. is one. Is there such a thing as representative capitalism?

Perhaps there is a middle ground. What is the purpose of government? In all of our dissension, is it possible to find a common ground? Something that allows capitalism to flourish but protects the rights of the little guy? Something that allows the business community to flourish but provides a safety net for those who cannot compete in an unfettered market?

Unintended consequences compete for partisan attention. The swamp is real. It is populated by asses and elephants. There is not room for socialist asses or elephants.

Everyone stay calm. Read about Sisyphus.