Like a Bunch of Random Boulders

What Rose Forgot is a novel by Nevada Barr. Rose, the main character, is struggling with mental illness and memory loss brought on by some unseemly characters in her family. Her granddaughter helps her through the dilemma that she finds herself in. But one line early in the novel stuck out – memories fell into her head like random boulders from a bucket high up all jumbled with no relationship to each other.

Cheryl’s conversation, especially in the evening, is much like that. Kathy came to visit her today and I noticed that her conversation and memories are like that during the day also. Kathy ignored any incongruities if she knew they where there. Had I been sitting near Cheryl I would have had to correct her memory of people and events. It is really, really difficult for me to not jump in to the conversation to fix things.

But I am getting better at it.

I am not certain that I got the quote right but the image is there. Random chunks of memory come into Cheryl’s head. It makes me sad. Sometimes she realizes that this is happening.

Tonight when we came back from getting ice cream at our favorite ice cream store, she went off looking for her Mom in our condo. I did not stop her or correct her impression. And, to her, perhaps, Elaine was there.

I am in pursuit of her calmness of mind. And I admit it makes me anxious.

Carpe Diem

Monday, Bloody Monday

I hate Mondays. Mom told me this late in her life. I asked her why? I pointed out that she had not worked for decades. I don’t like Monday was her response.

Parkies can be grumpy on Monday too.  Cheryl is not typically. I guess I am a bit because I did not sleep as well as I wanted.  My bladder got me up at 4am and itchy legs kept me up for awhile.

I finished the wordle and went back to bed about 5am. The sun was up when I awoke again at 8. Cheryl was awake also so I made coffee and went retrieve the garbage can and the newspapers.

Except for the fact that I am retired and Cheryl has Parkinson’s disease and does not move well. A regular day. Ho Hum

Carpe Monday Diem

A New Idea – Restaurant(ing)

A week and a half ago we stopped at an old Dixie Highway landmark called the Greyhound Tavern. We had passed it several times going to and fro when visiting her cousin Gerry in hospice. On our way home from our last visit with Gerry we stopped there at about prime gray hair eating time.

The reason was made up but we had a good time. Sherri had asked in conversation whether I thought the fried chicken at Greyhound Tavern was as good or better than the Purple Poulet where we had eaten a few weeks before. Well, everyone has their own personal likes and dislikes about comfort food. Cheryl’s mother made fried chicken and we ate it cold on a picnic in June in 1969. It was delightful. My aunt Johanna made fried chicken along with a lot of other stuff for Sunday dinner at her farm in Indiana. It was delightful. Long ago we had the KFC’s original recipe at the first place that Colonel Harland David Sanders opened in Corbin Kentucky. It has a little museum attached. It was delightful. (I have always liked original recipe.) But while I thought that the fried chicken at Greyhound was good, the chicken at the Purple Poulet was excellent.

While we were awaiting the arrival of our meal, we split the chicken since neither of us can eat half a chicken anymore, Cheryl said that we could visit various restaurants in Cincinnati and the surrounding area and eat lunch there. This is an excellent idea I replied. Let’s do it.

Today we did. Today’s choice was the Sweet Heart Cafe in Colerain township. We have been there before but it has been a year or so. There are actually about three stores operating out of this store front – a bakery, a cafe/diner, a clothing shop. It has a very unique ambiance and they make their own jams and preserves.

We brought home pie for dessert tonight or maybe the whole dinner.

A good list to start with.

Carpe – the diner – Diem.

Hospice

A Hospice center is a quiet, peaceful and sad place.

The old meaning of a place of rest for travelers is an appropriate one. It is a place of rest between here and the after.

Cheryl and I have been visiting Fr. Gerry Witzemann.  He is dying. Gerry married us years ago or as Cheryl likes to say, officiated at our wedding. Her comment is more correct of course. Cheryl’s cousin started out as a Franciscan priest. When his mother became ill and elderly her wanted to do more for her. His order wanted him to go to the southwest to minister. He left the Franciscans to remain in the area and help his mother as best he could.

This is our fourth visit. Gerry is not ready. On our first visit he indicated that he was ready. Are any of us ready for afterward? Sitting with someone that you know will not recover turns one to introspection.

Soon and very soon…

Today his niece Sherri is here. Cheryl can talk to her cousin about things that she knows little about.  That part of her family lived close by when she was a child.  But as people grow older they spread out. Sherri’s mother Verna, Gerry’s sister passed away a couple weeks ago. Sherri took care of her mother for the last three years of her life, at home, with dementia. What a grace filled presence. She once got up to talk to her uncle, “It’s okay Uncle Gerry. Mom is waiting for you. So is grandma and grandpa.”

Sheri was in the army. She was a nurse and a nursing supervisor. She is a very pleasant conversationalist. Her husband passed away in 1993. They have no children. As a reservist she was called up and spent a year in Iraq in charge of the nursing staff in the hospital set up by the army. Gerry was the Witzemann family archivist. It was his hobby for years. He has lots of notes about the family history. Sherri now has his information.

We exchanged phone numbers.

Gerry won’t be with us much longer and that is sad. Many folks who come to visit him and he has many, are uncomfortable. That is understandable – and sad. Somehow it was neither sad nor uncomfortable with Sherri there. We were just there with Gerry.

Soon Gerry will be gone from us.That is why he is with hospice.

(Fr. Gerry Witzemann passed out of this existence at 5:30 am February 5, 2023. A Sunday the Lord’s day. How appropriate. May he rest in peace forever.)

Carpe Diem

Children are a Joy

Even at somber occasions like funerals kids are a joy to the heart.

Verna’s funeral was today. (Cheryl’s cousin) Visitation was in church before the mass. Children playing hide and seek before mass in amongst the pews seems irreverent to many adults but not to me. The joy in their hearts shouldn’t be squashed or demeaned in any way. Some were wearing kitty ears. Some were wearing pigtails. All were dressed in their Sunday best because they were going to great Grandma’s funeral.

Funerals can be sad but not with kids around. One little guy spotted his Nana. He went to visit and scored a bag of fruit snacks. Nana is good for a treat. The same little guy needed the restroom in the middle of mass and upon the return decided to get back as fast as he could to Daddy. His father smiled and laughed with him when he returned. (Mom was more somber.)

Roman Catholic funeral mass liturgy is full of hope. There is a format but less ritual. The opening hymn was “Morning has Broken“. It is a good one full of hope and cheeriness. I always will hear Cat Stevens’ (Yusaf Islam) beautiful rendition of it in my head and because I like his music, the music of my youth, I know all the words.

Verna’s son, in his eulogy remarks, commented that someone had told him that he was now an orphan. I suppose one could say that since both of his parents had passed from this life but looking around the church full of family, children, grandchildren and friends, it seemed a poor term to describe this part of his journey through life.

Cheryl found and met with a couple cousins she had not seen for years.

She is making the snicker-doodles we started last night.

Carpe Diem.

A Great Time

We went out with friends to a new restaurant. We had to be seated on the second floor. There was a ladies room on the second floor.

What a relief it was to us both.

Not the most appropriate opening to a story about going out to dinner with friends but parkinson makes the very small things in life into major obstacles. Those need not be obstacles but they can win out in the “Is it hard? v. Is it easy?” tug-of-war that enters the discussion whenever any social activity happens.

I have written about women’s restrooms and some of those experiences. This is not a blog post about that. This is a story about how truly graceful are friends that Cheryl and I have in our life and have had for half a century. It starts with an email from Jan in early December proposing that we gather for dinner somewhere for our annual holiday gathering. Cheryl used to refer to this group as the defunct bridge group because although we used to play bridge at our gatherings, over time we simply gathered for a meal and socialization.

Jan suggested a few dates in January and suggested collecting at her house or a restaurant somewhere. I immediately voted for a restaurant somewhere for two reasons; it puts the eventual clean-up in someone else’s bailiwick, it gets Cheryl into a social situation were she does not believe she is a burden to anyone. (Grace on Cheryl’s part, she does not want to be a burden.) And besides, Gary and Jan go to restaurants that we might never pick just because of unfamiliarity. She picked the Purple Poulet in Newport Kentucky.

In a later email after Jan had confirmed the reservation, she wrote that we would be seated upstairs and asked if that would be a problem to anyone (grace – Jan did not single us out). I did not respond to her email because upstairs by itself is unimportant. It does tell me what equipment I might need. It also tells me that I need to call the restaurant to understand restroom facilities which I did not do. (no grace for me) Somehow with our narrow life activities, I never got around to calling the Purple Poulet and asking about ladies restrooms. I am not shy about that idea merely incompetent in this instance.

Yesterday was January 20th, the day that had been previously selected for our dinner gathering. Sherry called to ask if we would like to come to her house late in the afternoon for a drink and we would leave from her house to go to the restaurant which was a thirty minute drive through the center of town. (Grace on Sherry’s part for offering extra time to socialize and catch up.) Sherry has a sister who also has parkinson as a part of her life. Her sister is living in an institutionalized setting but Sherry spends a good amount of her time there. Cheryl is comfortable in conversation with Sherry and Sherry understands Cheryl’s difficulty with mobility and mental agility.

After I accepted Sherry’s invitation, we discussed restaurant steps, parking arrangements and restrooms facilities and, oh bye the way, if steps and restrooms were a problem, why did I not speak up? (She left out – you fool!) Sherry is too polite for that last part. She did start dialing the phone. Pretty soon it was all settled. We would meet at her house and ride to the restaurant in Gary’s GMC Acadia. (Grace to Gary and Sherry.) Sherry suggested that if the Ladies was downstairs which was my fear, we would just deal with it at arrival. (More grace to Sherry – her words – I’ll just tell Cheryl I have to go and we’ll go together when we get there.)

I managed to get Cheryl to Sherry’s house before everyone so that I could put our car deep into her driveway and out of the way. I was successful and the evening was all set. Denny and Katy arrived a few minutes after us. Gary and Jan arrived shortly thereafter. Sherry had drinks and snacks. For an hour or so we were surrounded by just friends not Parkinson. What a relief it was to us both.

It is not often that we acknowledge the kindness and graciousness in our life. There is no excuse for that. Many explanations but no excuse. This group of friends surrounded us with love and kindness and helpfulness and grace. For a few hours we, Cheryl and I, could just be. (Thank you, all.)

About the Purple Poulet; I linked their website to the first mention of them above. For me at least and I think Cheryl would agree it was a great dining experience. The restroom on the second floor was marked Ladies on the door near our table but was in fact a well appointed handicapped restroom. I have been in many. I know.

The steps turned twice and had handrails on both sides. If there is no elevator the next best thing is handrails on both side of the steps and a gentle slope to the stairway. Up is never a problem for Cheryl. Down, however, is a perceptual problem as well as a physical one. A short gentle run of steps is much less intimidating than a long or steep straight run. (grace to the stairway designer.) I have not gone down a set of steps with Cheryl forward for many years. (Sherry managed the walker while I was helping Cheryl manage the steps down – grace to Sherry.)

We both had their chicken. On their website they claim “The Best Fried Chicken by Southern Living” – It was the best fried chicken I have had in quite awhile.

This morning Cheryl is still sleeping. I am not but I should have skipped that second glass of Robt. Mondavi that I allowed myself because I was not driving to and from the restaurant. (no grace to me – grace to Gary for driving)

Carpe – the best fried chicken – Diem.

And surrounded by grace is another reason to stay connected.

Grace to you, Denny, Katy, Jan, Sherry and Gary for letting us simply be us.

Pizza Tuesday

An old tradition of ours is pizza Tuesday. I know. I know it is supposed to be taco Tuesday but neither of us are super huge fans of tacos. Although if we wind up at a Mexican restaurant and there are some very good ones in the Cincinnati area, Cheryl will order tacos. Some of the Hello Fresh meals are Latin American in flavors. Neither of us grew up with that but the La Rosa family has been in business for sometime and some scenes from the Rain Man use Pompellio’s as back drop. Sorry I have digressed again.

We used to frequent a small pizza joint nearby (run by a family of German dissent or Latvian if the spelling is different) that we liked. We tried several nights during the week and ultimately landed on Tuesday as the least crowded. It stuck. Over time it became “Anything Goes Pizza Tuesday” because sometimes one would rather have a hoagie or a hero sandwich or a calzone or maybe just a salad. Cheryl did not care as long as there was pepperoni somewhere. The only exception being a steak hoagie sandwich reminiscent of Pasquale’s. Sadly, the Pasquale’s of our childhood is no longer.

Lately we have moved Anything-Goes-Pizza-Tuesday to a newer use of an old italian restaurant near where we live. They opened just before the pandemonium and we supported them with carry out orders during the shutdown.

Pizza Tuesday has developed into a social affair with friends and neighbors. Sometimes Cheryl’s family shows up. Sometimes anything goes.

On this particular night Cheryl’s cousin Donna showed up. We had been trying to get together and on a whim I called her and invited her to Strong’s Brick Oven Pizzeria. She came. My cousin’s widow, Linda showed up. We had a great conversation. We got home later than we usually did. Sadly, we had no leftovers and that is too bad.

It was a time to connect and make new connections. The pizza Tuesday reminder list is getting longer. Cheryl had a good time and told stories.

Carpe pizza Tuesday Diem.

New Year’s Day

We had a great visit from all the kids and many of the grandkids. On New Year’s Eve I spontaneously asked our children if they had anything special planned for New Year’s Day. I asked if not would they like to gather around our table for a meal in the afternoon. I suggested about 4-ish. They all said yes.

I stole this idea from Frank C. Church. Thank you, Frank for a spontaneously good time.

Who can tell? Maybe a new family tradition? Traditions have to start somewhere. They are kept up if everyone has a good time participating. Zachary certainly had a good time. He had not seen grandma’s marble race before so Mom and Gavin helped him put it together.

Most importantly Cheryl got to have everyone at her house. She smiled and laughed at the conversation and activity. It was simply wonderful to see her smile.

Her smile and laughter are less as we head on our journey of Parkinson. Yesterday was very special to her and to me.

Carpe Diem. And don’t forget to connect!

Merry Christmas

In this season of happy and family and celebration, after I have gotten through all the wrapping and cookie making and other organizational tasks, I slow to take stock of the year. Good things happened and not so good things happened but mostly this year was. It is in the past now.

Throughout this year Facebook is a personal source of joy, amusement, interest, empathy and puzzlement. When some political whiny rant appears, I am puzzled by the things total strangers will say to others that they would not say in person. I am filled with joy at the pictures of children both young and old. I am amused by the various MEME cards that folks post, sometimes without thinking. I am interested in other care giver’s thoughts as they travel down their road of Parkinson. And I am empathetic to their particular struggles. In this collage of pictures selected in no particular sequence are pictures of things, people and MEMEs that appeared on Facebook during the past year and I downloaded to my tablet as I watched the TV news and waited for Cheryl to wake up.

The good things

  • The joy in Zachary’s face. He always makes me smile.
  • Luke’s artistic muses in photography
  • Family
  • family gatherings
  • Max is off to Miami University — I am class of ’72
  • Laurencia is 21!
  • Cindy Smith
  • Linda Weisgerber
  • Kathy Mellen
  • Mary Jo Horton
  • Jane Pohlman
  • Parkinson Community Fitness
  • UC Health
  • Jeff and Stephanie’s ELFie – Elizabeth Laura Fisher
  • Zane and Charlotte
  • Lydia (think songs from the Music man)
  • Anniversaries
  • Anna’s 50th birthday (I love you)
  • trips and vacations
  • New people in our lives
  • Looking back and memories
  • Learning how to make cookies
  • Sr. Carren and Nancy Strapp
  • Visits from friends of Cheryl
  • Phone calls to Cheryl from her friends
  • Special friends
  • small faces and their happiness
  • Jana Ann
  • The class I took on being a good care partner (Linda stayed with Cheryl so I could go.)
  • A new found interest in cookies and muffins
  • Finding out that adjusting meds, schedules and eating has reduced Cheryl’s upset stomach to non-existent almost. (and the neurologist MDS says bravo.)
  • Lunch with Marilyn

The not so good things

  • Constant reminder of Parkinson
  • Anna’s Fiftieth birthday (wow, I am old.)
  • Cheryl’s lost memory
  • Learning how to make cookies (there have been disasters.)
  • Cheryl’s worsening confusion in the evening
  • dementia in all its forms – delusion, hallucination, Capgras, sundowner, showtime
  • frost on the window (I have never been a big fan of winter)
  • avocados
  • Cheryl wanting to talk (call) to her mother in the evening (which worries me – I think – unnecessarily.)
  • Late night punding in her office

These are both incomplete lists. However the good list is already way longer than the not so good list. (And a couple of those are tongue-in-cheek jokes.) I constantly try to turn away from letting Parkinson and dementia drive our life.

I will probably add to these lists during the holiday down time.

Carpe Merry Christmas Diem.