life

This Christmas

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Christmas is Harder than I thought it would Be

It just is harder. Several times over the past few days I have been blindsided by my own emotions. A hymn in church, a song on the radio, a picture on the Frameo, a note in a Christmas card, any of these and all of these bring to mind memories of glad tidings gone by. If I am completely honest with myself, I started it.

A good friend asked what my favorite song/hymn was and I responded “Hallelujah” and could not immediately remember Leonard Cohen wrote it so many years ago. It was often used in the closing scenes of the show “Criminal Minds.” It is a haunting tune, at least it is to me. I think the rendition that is used on the show is the one by John Bon Jovi. I am unsure of that fact but it haunts me and reminds me of Cheryl and our younger times together.

When that happens I just let it roll over me. It is disappointing that Cheryl is no longer with me but we had a great life together. More than fifty years of love, children, busy, travel, learning, excitement, anguish, grace, parties, dinners, Christmases, Easters, egg hunts, summers and summer vacations, it was a wonderful time. We argued too but we never took that to bed with us. She supported me and I supported her.

Today as I put my last stamps on my Christmas messages I set Spotify to play “Hallelujah” by Leonard Cohen. After that it wandered off to play a not so random collection of songs from various albums. Yusaf (Cat Stevens) started playing and suddenly I was 25 again. It is interesting to me how that happens. Cheryl has long hair and the kids are little. Yusaf is gray these days, as am I.

And though you want to last forever; You know you never will; (You know you never will); And the goodbye makes the journey harder still – Cat Stevens “Oh Very Young”

It is good to remember those times we had.

Time only moves forward. The Christmas greetings are in the mail.

Tomorrow is Christmas eve.

Carpe Diem!

Some Men have not Eaten Quiche

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Real Men don’t Eat Quiche

Yesterday my nephew, Jeff, and his family came to visit. It was a spontaneous phone message in the dark of the movie theater. “I’m in town for a few days on business. Can we get together for breakfast or lunch?” He lives in California and I have not talked to him face to face since his wedding three years ago. I invited him to my little condo and spread the word to my kids. It was a wonderful spontaneous family gathering.

When I mentioned it to my neighbor Jane later she remarked, “Serendipitous!” Yes, it was.

I made a quiche out of some random components that I had in the refrigerator. Quiche and frittata are in the same category of use what you have, I think. And of the two I think quiche is better. It could be the pastry crust that is required for an excellent quiche. One can make a crustless quiche but that is just lazy and in that other country it is called frittata, so, go over the mountain and call your crustless quiche by the correct name.

Jeff told me that no one had ever made him a quiche before. (It made me feel good inside. I was proud of myself.) The title for this essay jumped into my head after they were all gone yesterday. It is from a satirical little book that I recently found was written in the 80s. (Wow, I am getting old. I thought it was written just a couple years ago.) I had almost said it to him when he said, this is pretty good.

This quiche was bacon, Italian sausage, broccoli and onions with sharp cheddar and mozzarella, eggs scrambled with a little sugar and buttermilk over a pie dough made with flour and butter and a little salt. It was good.

Sometimes us real men eat quiche and pronounce it to be good. The accompanying picture is AI’s version of real men eating quiche. You can tell they are real people because they are washing down their quiche and other green substances with lager. (Never mind the fact that they all have the same mother and they were all born within 15 seconds of each other.)

Beer and quiche, Could be the breakfast of champions.

Carpe the serendipitous Diem.

‘tis the beginning of The Season

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The bear got his hat out yesterday. Maybe his friend the elf will show up and help celebrate soon.

On this day, however, this day before Thanksgiving Day I am thinking about our life, Cheryl’s and mine, and what a gift it was to us. Tomorrow is the day to count blessings and be thankful for what we have. For me I am also thankful for what we had.

I do not have Cheryl with me any longer but what I have instead is the knowledge that she is not suffering with Parkinson and dementia. I am thankful for that knowledge.

I do have three well educated and successful children who have built successful careers. All of the grandchildren in all of the families are healthy and happy. Some have moved into careers themselves. Some are still figuring it out for themselves but they are all self reliant. Their parents are excellent teachers. I am thankful for the family Cheryl and I made.

I do have my own health. My knees do not hurt constantly like other friends that I have. My hips do not hurt when I walk like others that I know. I was still able to hike four miles up and down the face of a wooded cliff-side in Kentucky. (My legs complained a bit afterward but the bourbon worked. I bought real hiking boots when I returned home.) In the summertime I spent many days riding 15 – 20 miles on my bike. (I am not fast but I can keep up 12 – 15 mph for long stretches. I am not in a hurry. I like to look around me while I ride.) I would like to lose a little weight but my physic will probably never be like what I was at twenty-five now that I am seventy-five. I am thankful for my health.

My sister and I have become much closer. Only she and I are left from our original family. She and I are both widowed and that is sad but it seems like we lean on each other a bit and that is helpful to both of us. I am very thankful for our relationship.

I am thankful for all the help we received from friends and family this past year as Cheryl’s health rapidly declined. I am thankful to all the kind folks at Bridgeway Pointe and Queen City Hospice that took care of Cheryl as she faded. Thank you all.

I am thankful for new friends and old friends who have helped me through the past year.

I am thankful for kindness in the world.

I am thankful that mom taught me a few basic cooking techniques when I was younger and I did not realize she was doing it.

I am thankful that I like to cook and that I like my own cooking. (See the physic comment above.)

I am thankful that things always seem to work out.

I am thankful that I am getting better at staying in the present and not experiencing anxiety for the future. This quote from Matthew pops into my head sometimes (it is true!) when I think about what comes next. [“Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Can any one of you by worrying add a single hour to your life? And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin.”] I thank Cheryl for teaching me this concept of staying present and Mom for pointing out self-reliance goes hand in hand with that.

Mom left me with a gift that I will always be thankful for. I wrote this paragraph sometime ago:
At the very end of her life my mother awakened for a few minutes as I was sitting with her in her room at Bridgeway Pointe which is an assisted living community where she lived out the last fifteen months of her life. When I walked into her room Mom was quietly dozing in her bed. I sat in the usual chair I sat in and waited to see if she would awaken. It was after her dinner time and she often took a nap after dinner. After a few minutes, maybe half an hour, she woke up and looked over at me. She did not have her glasses on but she said, “Paul, is that you?” I replied, “Yes it’s me.” And then she said something that I was not expecting. She said, “Thank you for all your help.” After that she dozed off again. It was the last conversation I had with my mother. She passed away a couple days later. It still makes me cry.

I am thankful that I was helpful to Mom. She acknowledged that to me. All I could say to her was, “you’re welcome.” And I sat in her darkened room as she dozed off again.

We should always be thankful for what we have and what we have had and what we may be given. When someone is helpful to you, acknowledge it and say thanks to them. (Do not whine about it if they are unhelpful – reread the Matthew quote.)

Carpe Diem.

Not Perfect but Better

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“Not perfect but better than it was” is my new answer to the question, “How are you doing?”

A good friend told me recently (In my thoughts, I used the verb accused.), “You are good at thinking about what you are thinking about and communicating that…” I thought to myself, huh? I do not understand what that means. My second thought was, is that a good thing?

Maybe that is why I am here talking to the computer (me really) and maybe putting these thoughts on my little blog. Maybe I do think about things more deeply than others. Maybe I do not. Caring for someone every hour of everyday with a chronic disease which gets steadily worse has turned my attention to finding grace and meaning in the little things and simple things around me. I suppose that fits with Carpe Diem.

Carpe Diem is how I sign these blog posts. And these are more and more about me, which fits because Cheryl is no longer here. And down the rabbit hole of meditation and thoughts about life and where it is going and where it was before, I have fallen. Alas. I can consume much of the day thinking about it. I hope I am not mired in grief. I do not think so. I do think that I have a predisposition to helping others if I can. I suppose I learned that from my father. (Ahh! another stream of conscience.)

If you are not used to doing this thought process on your own (finding your space and place), seek out a support group, either face to face or on Facebook. It is helpful with whatever difficultly you are encountering. The anonymity of Facebook works for many. Talking person to person about a mutually experienced disease or issue works for others.

This will sound like a tangent but stay with me. I have a notepad I keep on the kitchen table that I use to take notes about various vegetables and other items that I cook for a meal. I roast many things in the oven because I find it a convenient way cook. And while the oven is cooking there is often a convenient fifteen minutes or so for a glass of wine. Alas, I have digressed. On this pad I note which combinations of ingredients seem to work for me, so that I can repeat them in the future if I desire. (Cooking for one can be a chore.)

My first note is; brussel sprouts / tomato / carrots / salt, pepper, toss with olive oil / roast all 375F ~ 20 mins. This is pretty cryptic but this is a combination of vegetables that I like roasted together. There are others. Trying to eat healthy is a personal goal. I quartered the tomato and roasted it along with the rest.

My second note is; What’s in that soup? And a list of ingredients that I put in the soup. Several days ago it was a list of ingredients for beef, vegetable, barley soup. Today’s soup is a butternut squash recipe modified from the Mind Diet cookbook. I used orange lentils (1C.) instead of tofu and not so much ginger. My scribble tells me what marsala curry powder is made from.

My point is this: I have given myself the opportunity and place to note to myself about what is working. I do not feel the need to keep notes on what does not work in cooking a meal or in life. (Laments are not my style. I just throw away any leftovers… did he mean food or life? Yes.) It must be my personal reason for journaling and exposing my emotions to the blog-o-sphere.

I am not attempting to convince anyone of this method. I just know it works for me. I keep notes about what works for me when I am cooking. I keep notes about what works for me in life – my journal and this blog.

I rarely notice my own habits and attributes and other things that I do to help myself during the day. I used to have Cheryl to do that for me and it is, no doubt, another reason that I miss her so each day. (I know you are reading this , Cheryl, so there you have it.) It seems that I have others who do that for me also and I did not know they were there.

Others have told me that my words help them. If you are one of those, you are welcome. I only know that my writing helps me.

Look for grace where you can find it. (Cheryl often told me, there is grace in accepting help from others.) There is grace in simply being present for others.

Carpe Diem

Hurry, Haste

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What is your hurry?

I ask myself that question several times per day. What is your hurry?

My encouragement to myself is “what is your hurry?” At this stage of my life the answer is I do not know. (IDK)

I do know that when I close my eyes in the sunny shade of these woods and empty my mind as best I can, and then I open my eyes again the evergreens are a brilliant color with a deeper blue. Why is that? IDK. I have hurried through life without looking.

Why did I pick this trail for today’s activity? A day ago I wrote that I am not a child anymore and I am not youthful but I still see a world of wonder with youthful eyes. I remember long ago when Cheryl and I came here we hiked this trail more quickly than I do today. I am not in a hurry. Maybe that memory brought me up the cliff face. IDK. Today I stopped often to rest but also to look, think, remember and read and listen while I read.

I selected several books to bring with me on this retreat and personal retrospective. I selected first “So long and Thanks for the Fish” by Douglas Adams. I have read a couple of the others from the Hitchhiker’s Guide to the Galaxy trilogy. There are five books altogether and the theme is cynicism and simultaneous mediocrity as we splash through life. Wonko the Sane explained why he became a hermit – “The sign read: hold stick near the center of its length. Moisten pointed end in mouth. Insert in tooth space blunt end next to gum. Use gentle in-out motion. It seemed to me,  he said, that any society that had so far lost its head to put such a detailed set of instructions on a package of toothpicks, was no longer a civilization that I could live in and stay sane.” We have a lot of things like that going on. “Caution HOT!” is printed on the side of the McDonald’s coffee cup.  I always think, “I hope so.” Why are warning signs like this posted? I passed several today on railings erected along the trail. The other side of the rail was a sheer drop. “DANGER No Entrance ” is printed on the sign.  IDK. I did not hurry through the small volume. Several times walking today I found myself reading on a convenient log or outcrop of rock.


Why did I select this book to read first? IDK but it has been many years since I read the Hitchhiker’s Guide to the Galaxy and the absurdity of the story line is compelling. Maybe it is time to review my life and start anew. Maybe I long for the next great thing. IDK. There is no hurry.

There will be time to take time for wonder. There is no hurry.

Carpe Diem.

Dear Cheryl

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Dear Cheryl,

It has been six months today. How are you in your new existence? I have to admit to myself that I still miss you greatly. You were so much of my life how can I not?

I wrote on my blog (I am sure that you read it.) about my own personal “If Only”. If Only is the title of the next section of the Grief Share series. I have not watched the video yet but I will later today in preparation for helping Sr. Janet tomorrow.

In case you forgot, here is what I wrote the other day:

If Only

There is no percentage in “if only”. None. Although many of us spend considerable time with if-only style thoughts. If only I had completed (insert item here) I would be (insert perceived superlative or horror here). If only I had asked (him, her, them) about the consequences of (this, that , those) we would be (better, worse, still wondering). One can go anywhere with a good if only.

There is no percentage in it. Nothing is gained by speculative thought and other attempts to predict present out comes from “if only I had”. Additionally there is no real risk except perhaps diminishing self worth. God (or whatever one’s concept of God is) as the eternal knows the future and needs no predictors. Past, present and future is the same to the eternal.

Fuzzy philosophy there but what-iffing your past actions does not help today’s actions.

Grief Share talks about this in long winded generality. The “if only” that I deal with often when it jumps into my head is why could I not see that she was moments from leaving this existence when I kissed her good night the evening before she died.

This is my “if only”. What would be different today if I had sat up with her as she took her last breath? I will never know.

If Only.

At the time I was experimenting with prose poetry in a way. You know what a corny poet I am. I still have those old letters we wrote each other in high school. I have yours and mine because you never threw anything away. Neither did I. Those notes are special to me. Not long after you died, I read some of them and thought that I should put them together and match the dates. I did not. Much like looking through old pictures (I found the packets from our trip out west with the kids.) I look through your letters and then find my reply. Good heavens, I was smitten with you back then.

I am smitten with you now as I think about those days and the life we had together.

A fellow blogger wrote this comment to me: “I was with my dad in his final hours, lingering long. My older brother wondered aloud if he was hesitant to leave while I was there, as if to protect my sensitive soul. When I went home to sleep, he went on to eternity.

I hope this might bring you some comfort. “

(Karen 🙂 — comment posted to my blog)

I wrote back: “ … And that is what I tell myself. My father (I think) waited until Cheryl and I left to eat a little lunch. When we came back – Dad was gone. I simply did not want her to feel abandoned. I think that is the source of my sadness when it pops into my head. — and this thought and how it affects me is what I will think about today as I walk and try to enjoy this beautiful Autumn day in Ohio. Those thoughts make it all about me and I do not want to feel that way. At other times I think Cheryl hung on as long as she did because she wanted to be sure that I would be okay. That was her personality. (that thought also makes it about me.) Today is Monday. Cheryl died on Monday April 22. Six months ago today. I think I am missing her a little more today.
Thank you for reading and your comment. It is a comfort.”

Do you remember that? We went to be with Dad that day at Hospice and we went to get some soup in the little lunch room they had there. That is a vivid memory of mine.

I can still see Dad’s gray face. I can still see your gray face. I can still see Mom’s gray face. I can still hear the silence when Laura stopped breathing.

Even when it is expected, death is unexpected. If you had wanted me there to be with you that morning and could not wait any longer, I apologize for not getting there to be with you. Please do not think that I abandoned you. If you knew when I was coming that morning and did not want to upset me with your silence, thank you but I was upset anyway. (pretty sneaky, girl)

I miss you today. I am going to take a walk in the sunshine and think about it all.

If you are allowed to, save me a seat next to you. We will talk more when I get there.

As always with love,

Paul

Autumn Haiku and Inner Thought

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friday comes with cool
sun peeks higher in the sky
autumn is awake

she speaks in my head
often with her quiet voice
our love continues

this day Cheryl is
this day memories of us
happy memories

Haiku form – 5 : 7 : 5 – is a favorite poetic form to me. Real poets, I do not consider myself a real poet, are able to paint a picture, elicit an emotion or start a meditation with seventeen syllables. Distilling feelings and ideas to their basic form. I have noticed in myself that many times words do not work. The search for a word with the perfect nuance of what I feel alludes me often. Perfection at reading what is not there is not my strongest ability.

And yet, funneling feelings into seventeen sounds is sometimes satisfying.

Meditation (I use that word instead of prayer) comes in many forms to me. Today it is distillation of thought into seventeen bits of non-prattle.

abracadabra
in mind appears some pictures
our happier times

grieve companion lost
happy memories abound
love is present, found

Thinking about Cheryl today as I write about our life with its past joys and wonderful trips and the sadness and struggles near the end has pushed me into haiku today. Waiting to see what the rest of the day brings and the realization that existence takes care of itself without my help is comforting.

Is that prayer?

Carpe Diem.

Astral Planes?

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I have been reading a lot about death lately. Looking for something else in my little office, I rediscovered a book by Robert Fulghum entitled From Beginning to End, the rituals of our lives. It seemed to fit with my overall end-of-life curiosity and reading I have pursued of late so I placed it on the table near where I often sit to read in the evening. I have not re-read it yet. I have many of his books. I may re-read all of them eventually.

I did not think much about death before these past few months. I am driven in this direction because Cheryl is gone. When she was alive either with me or comfortable in the memory care section of Bridgeway Pointe, I searched for information about her condition, how to help, how to react, how to, what if, generally I was hunting for the manual. I became very observant while she stayed at BP. The other day I looked back through my journal. I read this entry: “Thursday, April 18, 2024: (after several notes) – I think today I see that Cheryl is close to death. Her eyes are receding into their sockets. Often her right eye does not open. Her voice is almost gone. – (list of vital signs)” Reading this several months later brought me to the realization that I anticipated her death many days before it occurred. This notation was 3 days before.

Jodi Picoult in her novel The Book of Two Ways which is about an egyptologist turned end-of-life doula, the main character in her role as doula helps the dying to transition. She also helps the caregiver(s) after the death. Being an end-of-life doula is a real occupation. Had I known there existed people who did this sort of work I would have tracked one down to help me and Cheryl (but mostly me.) In the characters role as egyptologist she delves into ancient Egypt, their gods, belief structures and spells and rituals. In 1500 BCE these guys were concerned with the resurrection of the spiritual body and the immortality the soul. The rituals of helping the soul to transition into the after-world are captivating to me. I still hunt for the manual.

I want to know what is next. I write that thought with the realization that I cannot know what is next. Even so, right now, it is a strong desire. I found a book called “Life after Death”. My first thought was “Aha! There is a manual!”

Deepak Chopra in his book Life after Death writes, “Soul bonds occur on the astral plane just as they occur in the physical world. Relationships in the astral plane mean that you are vibrating in concert with someone else’s soul and therefore feel a heightened sense of love, unity and bliss. … When the disembodied soul tunes in to the frequency of a loved one back on the physical plane, that person may feel the presence of the departed…” I sure hope that is what is going on when I feel Cheryl near me.

I long to hear, strain to hear her voice. She knows what is after this physical life. It is very hard to hear what she is saying to me from that higher plane.

I have so many more questions. I could not ask Cheryl about what is next. I think she knew but was unable to tell me what she knew. It was not until after she left this plane of existence that I realized I still had questions. She gave me little hints. I did not recognize those for what they were. Many months before she left, she spoke to me about not being here for her next hair appointment. Her timing was off a little but I remember at the time thinking, you are wrong dear. Most smart men know that their wife is rarely wrong.

“… I went in seeking clarity

I went to the doctor, I went to the mountains
I looked to the children, I drank from the fountains
We go to the doctor, we go to the mountains
We look to the children, we drink from the fountain
Yeah, we go to the Bible, we go through the workout
We read up on revival, we stand up for the lookout

There’s more than one answer to these questions
Pointing me in a crooked line
And the less I seek my source for some definitive
(The less I seek my source)
Closer I am to fine …

Songwriters: Emily Ann Saliers / Amy Elizabeth Ray

Carpe Diem

I Remember

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Cheryl and I met at a picnic. It was a blue moon in August of 1966 specifically, but that’s not really the story. The story is what we have been together since.

High school friends of mine put together a picnic with friends of hers. Cheryl went because they invited her. I went because my friends invited me.

I found myself sitting alongside of her at a picnic table in a dark picnic area in Winton Woods. Both of us were wondering how these guys were going to get the hot dogs and stuff off of the grill when they hadn’t brought any tools. So I kind of jumped into the breach to fix the problem and scooped the hot dogs up with a couple of paper plates. Cheryl later told me that she thought that action was really clever.

But that is not the important thing that I wanted to tell you about that night. Our meeting was a totally random event in both of our lives then and since that night (58 years ago) we have been together.

It’s sort of amazing when you think about it. I mean in high school, of course when she went back to ICA in Indiana, I dated a couple of other girls, but I didn’t really get serious or even interested in anybody else except for her. Four years almost to the day after we met on that picnic, we got married. I finished up school at Miami. We had kids. She supported me at Miami. I supported her at U. C. The kids grew up. We supported them and they moved out. We had a few years in there when we sort of enjoyed (you know) empty nesting, a few trips, just enjoying life and living. We had two fairly well paying careers and enjoyed a little bit of travel and some other things like that. It’s been a really good life. It’s been a really good life and she is gone mentally and I don’t know where to put that. I do not know where to put that in my heart. I don’t know where to put that in my head. I don’t know what to do about that period. I struggle with that pretty much every day.

She is physically still here but mentally not so much in the last few weeks. Probably not very far from now in a few weeks she will physically be gone, too.

I just don’t know how to think about all this. I ponder this all the time.

I do not know what is next but I do so wish there was a manual. She is still here, but she is not here.

At first it made me feel a little bit guilty, moving her to memory care but I’ve come to realize that if she was still home with me, I would really not have a good handle on being able to help her and keep her clean and and feed her and all those other things that go along with the situation that she’s in at Bridgeway Pointe.

I don’t have guilt feelings anymore. I tell myself this but maybe those feelings are still with me. At first I had sort of thought that it felt like I was giving up or giving in or throwing our life away or whatever you want to say. I but I don’t really quite know how to express that emotion, but we have lived together for so long. It did not and still does not feel right. Perhaps it never will.

And it’s so hard to see her go. I just don’t know what to do about it. I just don’t know what to do about my emotions. I can’t really put them in my pocket. I mean, I can for a while but then they just sort of spontaneously come out every now and then. I don’t worry about that. I just sort of stop for a minute when I get all choked up and I just simply can’t talk, but I’m getting better at it passing by that that deep sense of loss. I don’t know how else to say that. It is just a really deep deep sense of loss.

I love her and she will always be part of me. I have and we have lots and lots of good memories. I am not sure that she has any memory, sometimes it’s hard to tell.

It is very hard to tell where and what she remembers especially towards the end of this past year. She seemed to regress more and more into her childhood. And I don’t know how else to say that. In the middle of the night when I would get up and go to the bathroom, she would wake up a little bit and say, “Jan where are you going?” Sometimes she would say, “Dan?” (you know? )

These past few years have been a trial. I will not remember her this way.

I will remember the trips to the Cincinnatian Hotel.

I will remember Sunday matinees at the Playhouse in the Park.

I will remember the cruise trips.

I will remember the hiking trips in various parks and the looks on the boy scouts’ faces when we encountered each other five miles from the trail head in Green Bow State Park in Kentucky. And how great lunch tasted when we got back to the lodge after our hike.

I will remember pancakes with fresh maple syrup in the morning looking for the ladies room in Hocking Hills.

I will remember the joy on her face when she graduated college.

I will remember the tired joy on her face after the birth of each child.

I will remember the trips to Myrtle Beach and during those to Charleston.

I will remember a Christmas Eve a long time ago when she insisted that I open her gift to me and all I wanted to do was go to bed and sleep. She had made me a shirt. She was a wonderful seamstress and proud of it.

I will remember the trips with friends to Door County and the Grand Canyon.

I will remember walking to the neighborhood pub after work to enjoy dinner she did not cook and a glass of wine.

I will remember her herding the kids to church on Sunday morning.

I will remember cold weekend mornings alongside soccer fields.

I will remember her excitement when Anna announced that our first grandchild was coming.

I will remember how she cared for me and our family through life.

I will remember many things but I will not dwell on the last few weeks of her time here.

I love you Cheryl. You will always be with me. I carry your heart in my heart. I will remember your smile.

Parkinson’s disease sucks. (Today I do not feel much like carpe-ing the damn diem.) She is slipping from me and I feel sad.

Stream of Conscious – Touch

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Two days ago when I sat with Cheryl in the common area of where she is staying, I noted in my journal that she seems to need touch. I think I do too. On these occasions when she does not seem to be in the present, somewhere in her head she needs to feel, manipulate and touch.

It seems to me that these days Cheryl has to have more touch. That is just my thought in my observations when I see her. I am just sitting with her and seeing how she’s doing. But that is what I see and think. I think also that I need the same kind of touch. I sit there and turn the chair so that I can we can be side by side and I can hold her hand. Doing that action is important to me. I observed that about myself today. Today for awhile, about an hour or so, we sat holding both hands. She was holding my left hand with her left hand and I was holding her her right hand with my right hand and we sat that way for a long time.

I am writing this using an app that I downloaded that transcribes spoken words into printed words. I will see how that goes. It looks like I can write in a crude fashion. I can just send this text to myself via email and then paste it into a document and then spend some time trying to figure out exactly what I am trying to say.

It is hard to describe. What I see and and I mean as I think about what I am internalizing when I’m touching her or feeling as I am feeling her knee. Cheryl has gotten very skeletal over the past few weeks.

Even as she looked around at things in the room and told me some story that I could barely hear because her voice is so soft. There is a lot of ambient noise; television in the main room, television in one or two side rooms, Bluetooth music and the occasional phone call, she would simply just sit holding my hands. She was okay to sit that way. Every now and then I had to move my hand and scratch my nose or whatever and every now and then she would let go and you know touch something else or scratch her nose or whatever. It is fascinating to me as this goes on how much it is important for the both of us to touch each other.

The whole thing about touch is sort of interesting to me. I think we have always had that throughout our married life but as I as we get further in this Parkinson’s journey, the sense of touch is is important to me and I think I really do think it’s important to Cheryl. We are communicating our presence to each other through touch.

She does not resist it. She does resist things that that bother or sometimes hurt her. Her sense of pain can be strong. I am sure she feels pain because every now and then she says stop doing that, it hurts me or something like that, or maybe she’s having a cramp in her leg or whatever the deal is, but simple touch is very different. She will also grimace if something causes pain.

I have been exploring the nuances of touch in my head and I don’t really know how to describe differences of instance. It is interesting to me that it is important to her and me at the same time.

Now if she is sleeping or she’s very tired or trying to doze or she does not feel quite right or she is hungry or she needs to go to the toilet or needs to move, then touching gets in the way. When she was still home here with me, it seemed like we would fight (not the right word) when I was helping her with one of these activities. She would be dissatisfied with any any help that I would give her.

I sometimes just reached over to touch her leg to see whether or not there is anything left there. And I realize that I am holding on to her thigh bone, for example without hardly any any any meat. She used to be a much bigger woman. She used to be a lot fluffier. Just a year ago, I would have had a very hard time picking her up and holding her up and helping her into and out of bed. These days, in some book somewhere, I read somebody describe somebody as a bag of bones, that is a pretty good description of Cheryl. She still has a lot of muscle strength when she decides to squeeze and grab something, but she really doesn’t have a lot of mass. There is little subcutaneous fat left on her body and that too makes me want to touch her just simply so that I know in my own mind that she’s still there and she’s still alive. Without touching her she still in my heart. I think about her all the time but somehow there is a physicality that happens when when I actually touch her.

She is very skinny. Touching helps me to understand.

Carpe Diem.