It is so easy to creep into denial mode when caring for a loved one with a chronic disease. The care activity takes so much of the the daily activity that one can feel guilty about merely sitting and reading a book.
I read books a lot. It is the major consumption of my time the other major part of the pie being a care partner to my wife.
It is rare that I will ask for any help. When others ask how am I? or How are we doing? I deny the fact that on some days we are swirling around the drain. Maybe because on other days life is swell. I merely reply, we are fine.
After all not everyone needs to know and who needs that comment, “You are so blessed.”
We are fine even if we are in denial.