Our son was a Marine. Their motto Semper Fidelis, Always Faithful, is a sentiment I apply to our union. We made a similar vow to each other fifty years ago. Each day is a new day to renew our pledge.
Some new thing comes up all the time. I have to say this up front so you can understand the rest. Cheryl has Parkinson’s Disease (PD) and generally it sucks. Lately, it seems, I may have discovered a silver lining to this malady. Because after a dozen years or so down the road, we are more sedentary. It is unintentional this sedentariness but it is good preparation for the Covid-19 stillness that is imposed upon us. In the early days of the pandemonium the story seemed to mirror much of the apocalypse fiction written by Steven King – The Stand; Micheal Crichton – The Andromeda Strain; and others.
Apocalyptic fiction, of which I have read much, centers on two themes. Either there is some sort of catastrophic war/explosive event or there is a viral/bug/bacterial disease. Both somehow wipe out 96.4% of the global population. 0.6% wind up in a terrible struggle for dominion with the other 3%. I recommend reading none of this fiction while hanging out and waiting for the Covid-19 pandemic crisis (or non-crisis) to complete God’s plan. I did not follow my own advice and finished Justin Cronin’s trilogy: The Passage, The Twelve, The City of Mirrors. But I have digressed.
This pandemic has taught Cheryl and me much about ourselves. We are able to learn new skills such as ordering food online and picking it up a week later. This of course is a memory test to discover if us older folks are with it. This experience is not as satisfactory as ordering from Amazon or Walmart online and having the items delivered directly to your door. The memory test is still present, however, and it is tricky to not order the same item from three different suppliers because you have lost track of who is sending you what when. Some days are like Christmas, your birthday and St. Nicholas Day. Other days are like meatless Fridays.
For better or worse we have learned how to do video doctor visits, video fitness center visits, video physical therapy exercise visits, video Easter gatherings, video faculty meetings, video classes, video masses, video funerals and video do-overs because the WiFi is overwhelmed. Sadly network television, much of it anyway, is one big video conference. The talkers speaking from their bedroom/office/basement/dining room suddenly had to design background. Looks like the intro to the Brady Bunch. Sorry, I have digressed again.
All this video was put in place to give newly created manufacturers the ability to keep up with demand for buffet sneeze shields that are no longer needed by restaurant salad bars and have been newly located at checkout stations in groceries, pharmacies and doctor office locations. This pandemic could be the death of Golden Corral. I do apologize for another digression.
Parkinson’s causes us to stay in a lot but the pandemic has taken away what little go out time we had left. It was easier when I could see that Cheryl was doing well and suggest we go somewhere for lunch at some arbitrary time during the day. Sometimes lunch was late enough that we had to skip dinner and go directly to Aglamesis Bros. for desert. (Sorry again, I grew up in Oakley.) We would do this because predictability of well-being is difficult with a parkie, so you seize the moment. When the day is good we tend to pack it with goodness. Our life is constant adaptation to new developments. Living day by day is a reality into which one is pushed by the persistent ups and downs of the symptoms of PD.
Improvise, adapt and overcome is another tenet of the Marines. I like to use that attitude when new symptoms and difficulties appear as PD progresses. Over the course of the disease, a complicated and long list of symptoms and medicinal side effects are dealt with by the doctor, patient and caregiver one by one. Medical sources describe them all but not all parkies get all the problems. Those patients dealing with PD (parkies) are susceptible to the regular, run-of-the-mill old age crap that comes along; bad feet, sore muscles, sciatica, back ache, cardiac problems, UTI’s, yada yada, yada. Old age is a bitch and then you get Parkinson’s. Sorry, again I have digressed. (smiley face)
So, why exactly is it necessary for us to curtail our “go out” time in the midst of a pandemic? Are we any more susceptible than others to colds and viral issues. No, we are not. But in general going to a hospital for treatment is bad for parkies. The critical regimen of drugs, food, rest and exercise is foreign to the routine of a hospital. Both non-pandemic visits to hospital, two different healthcare providers, have been unsatisfactory. Hospitals simply appear to be unequipped to care for parkies with the same regimen used to by the caregiver. As caregiver and advocate for Cheryl, it is unimaginable how much worse that experience would be if I was not there to speak for her. It is too scary to think about. The idea is to stay away from hospital.
Adapt to change, always faithful, adapt and overcome, slogans to use for one’s own advantage against the annoying inconvenience of Parkinson’s Disease. Perhaps one day there will be a final solution that is not death.
(You though I would end on an up note, sorry.)