family

A 2026 Calendar

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Time and Dates and Events

The activity of marking and acknowledging life events was Cheryl’s job. All through 2025 I realized how much I missed her and her organizational ability when my date dyslexia would dissipate for a moment and would remember that I forgot some important event like a birthday or anniversary. These, of course, were an important acknowledgment of some life altering event. Something to be commemorated. Something to be celebrated. Or something to be commiserated.

To her life was a continuum but it was marked by various events both good and bad.

When she moved to a memory care facility and I disassembled her office back into a guest bedroom, I developed a simple sorting method for her clutter. Clutter is an unkind word because in her own mind as it disintegrated she was doing real work and “getting things done.” It breaks my heart when I think about it. Scattered in various storage spaces in my condominium now I have collected the clutter into three general categories: pictures, letters, notes.

The pictures are easy. They are of our family and friends and sometimes Christmas postcards that show the growth of often far flung friends and family. In earlier times she sorted and organized these. During the last few years of her life she sorted and organized but the associations were meaningless to others, as well as, her after she had done so.

The letters did not need separation or organization. These were separated into their own file folder. Cheryl and I wrote many many letters back and forth while in high school. I have these collected with my own response in my office.

Her notes I sorted into their own tubs and a couple boxes. I hope to write a memoir as I review her notes to herself.

Today I went through the big black book that we (I) purchased for her to help her remember birthdays and anniversaries when her cognitive function was fading. The BBB is its own category. It has all the dates of family and friends births and anniversaries and in some cases, their deaths. It has also collected many other notes and pictures paper-clipped and stapled here and there at random. This coming year I hope to remember my family’s birthdays and although I am not a card sender, I can acknowledge the date.

It is hard for me to go through this book to recover birth data because it contains cognitive data and the lack there of as well. This note, stuck in the book on April 15th, reminds me how upon occasion her cognitive ability returned for short periods

– DO NOT worry about greeting cards for the W/girls for now) (too much stress –

I do not know which W/girls she referred to but her mind was telling her to relax a bit. The note is printed in all caps. Mileena’s birthday is noted on the page above this note and the parenthesis are askew, nevertheless, she recognized her internal stress about getting it right and wrote herself a note to let it go. She consistently wrote notes to herself about this or that and attached the notes to that or this. The attachment did not always go with the note.

I did achieve my goal. I constructed a calendar of my own and slid it into a plastic sheet protector. I laid it on the kitchen table so that I can ignore it in a brighter light filled room. (When she was alive it resided in the hallway to our bedroom.)

Better in Retirement

I am ready for 2026.

Carpe Diem.

Funerals

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These events are for the living. The usefulness to the living is a final farewell. The tradition helps the living cope with the fact that they too will eventually succumb. (Ashes to ashes, dust to dust, we are here and then we are not.) Nice music and often monotonic recitation of traditional prayer provides solace.

This particular funeral service was held for my sister-in-law. Three of us brothers-in-law are widowers now. Is this a trend? I hope not. I chose to sit near the back of the church to avoid sitting with the grieving immediate family and to be alone with my own thoughts. Cheryl is still fresh in my mind.

As the homilist was speaking I heard the first allusion to purgatory in a Roman Catholic sermon that I have heard without using the word for a very long time. (It could be that I did not listen to funeral sermons carefully before this one.) I was interested by the implication that the person might not be in heaven. But me being me I was not alarmed, I went off to the Wait wait What? to read current doctrine of the Roman Catholic church. Every thought, idea, law and religious doctrine exists on the WWW somewhere and it exists for any religious philosophy.

There is a YouTube video for the reading challenged at www.catholic.com that tells all. Reserve an hour or so if you are interested. I have got to admit that the current view of purgatory is much different than what I got from reading the catechism and listening to the Sisters of Mercy seventy years ago.

I have misunderstood the difference of “praying for” and “praying to” for many years. Today I read this: “… prayers for the dead: “In doing this (offering a sacrifice) he (Judas Maccabee) acted in a very excellent and noble way, inasmuch as he had the resurrection of the dead in view; for if he were not expecting the dead to rise again, it would have been useless and foolish to pray for them in death. But if he did this with a view to the splendid reward that awaits those who had gone to rest in godliness, it was a holy and pious thought. Thus he made atonement for the dead that they might be freed from this sin” (2 Macc. 12:43–45). Prayers are not needed by those in heaven, and no one can help those in hell…”

There is an in-between state (Limbo of the Fathers, Purgatory, Sanctification) and those souls we pray for. Souls in heaven do not need prayer. They are there. They are sanctified. They are prayed to. Souls in hell (damnation) are lost and cannot be helped. That is sad. The distinction was lost on me when I was six years old and I was not interested enough to ask. Catholic philosophy is laden with guilt and I did not seek out more of it by asking the nun to compare and contrast for and to.

As for me, I prefer to sit near the back of any church. It is a fine old Catholic tradition that if you get in early you can sit in the back. Cheryl liked to sit midway up and to the left side. After her death I sit near the rear and to the right. I can look at the other side of her. I see her often in church, any church, when I am there.

Family is mostly what I thought about during her funeral after I made a mental note to educate myself about the concept of purgatory. Two of my children sat with me. We did not stay for the reception in the church hall afterward. Cheryl’s death is too fresh for all of us.

Cheryl… when she died I was sad and happy… She was better at religion than I was and am now. I think women are better at religion. It is odd, I think, that men are in charge of them, all of them. I was sad that she was gone from my life and I felt that here in church at Teri’s funeral.

Cheryl came to me in an early morning dream a few months ago. It is incredibly vivid in my memory, as though I had lived though it. In the dream there was a special service in our church – Nativity. For some unclear reason we had to bring our own chairs to the service – a mass as I remember it. At the end of the service she hoped up and announced to me that she had to go. I can hear her, “I have to go!” I thought she meant to the lady’s room. She was in the midst of her Parkinson’s and with that her memory and spacial issues. She could not always find her way around. In this instance she was moving with ease towards the lavatory door which was around the corner and out of my sight as she moved through the crowd of folks leaving the service. I waited anxiously near our chairs gathering our stuff up to leave. I looked in her direction often to be sure she would make her way back. She often was unsure of where she was, so, I was worried. She was gone a long time and as I began to move towards the lady’s room a young man came up to me and asked if he could help with the chairs. He explained that Cheryl was gone.(He said, “She’s not coming back. She’ll be okay.) It is a very vivid memory/dream and I cry whenever I recall it. She is in heaven. This is what I take her last visit to me in this dream to mean.

I am happy for her because she was no longer suffering from Parkinson’s scourge that took her from this life and my life. I am happy that I can pray to her.

Carpe Diem

Fire

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https://wlwt.com/article/4-people-displaced-after-fire-engulfs-home-in-pleasant-ridge/69582581

A house fire is a terribly scary thing.

This picture of my son’s house on fire makes me glad and sad at the same time. The whole family went to a nearby church to buy a Christmas tree. Gone for perhaps 20 – 30 minutes they returned to this conflagration at their house.

Glad – they were not home.

Sad – their home was messed up and will need extensive repairs.

So now starts the extensive task of cleaning and repair.

What caused it? A small remote control outlet that allowed them to turn on a floor lamp without climbing over the couch to do that task. (Ah, It shorted out you said to yourself.) Not a “short” as electrical folks think of it. A short circuit would have popped the breaker. This did not. It cooked and got hotter until the nearby couch caught fire.

Many of us have similar devices. I have one I talk to, “Alexa! Light on!” Same thing, different remote style. I have touched all of those little chargers, bricks, power supplies, thingies plugged in anywhere in my house. Look at the picture again. Scary stuff. I will do it more often, maybe even, a nightly routine.

“I bet they did not have smoke detectors.” Social media is rife with experts and lookie-loos. One of them took this picture. “I saw them take someone out on a stretcher.” Nope.

The smoke detectors were screaming when the fire department showed up. I am glad no one was home to hear them. One of the pet cats, “Snowball”, did not make it.

Glad – they are all safe. Glad my family is safe.

Sad – one of the cats died in the fire.

Glad – they have good insurance. Things can be replaced.

Sad – for all the clean-up that will occur going forward. Enough laundry is done to get on with life and the recovery process.

Both sad and glad. Several days beyond the initial trauma, the world has stabilized a bit and the clean up begins. My son got a ticket from the zoning commission for having an unlivable domicile. We laughed at that. My grandson who stored all of his toys and cars in the living room where the fire occurred incurred a loss of all of those. When my son mentioned that to his teacher at school the first day afterward, she replied, we can fix that. My grandson came home with cars and truck carrier and some new clothes.

He has a great teacher and a wonderful school.

Carpe Diem.

Baking and Memories

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This is the time of the year when I pay more attention to baking and making breads and pasties and pie. It is a winter time past time and it makes my little condo smell divine for a day or two. Lately I have been focused on a pecan pie recipe that I received from my daughter-in-law who is an excellent pie maker and shares my love of sweets.

I started this morning by tweaking my stash of recipes with the Karo syrup pecan pie recipe that I copied off of the world wide wait (that’s an old term – these days it is the Wha Wait What?). When I saved it to the correct folder on this laptop I found the following piece I wrote a while ago. It is a good memory of mine.

As I re-read the yellow bag story, I could hear Cheryl. At first, after she died, I was anxious that I would lose the ability to hear her voice. He works in mysterious ways. Gladly He helps me to hear her voice. (Sometimes, of course, being male, I do not want to hear it.) … on to the cookie story.

She’s Done it to Me

A couple years ago, when Cheryl was struggling physically more with Parkinson and her struggle with the dementia aspects of it was taking away her ability to follow simple directions, she coerced (maybe too strong of a word) me into helping her make cookies. I did not want to at the time.

Once or twice these were Snickerdoodles. And a couple other times we made chocolate chip cookies, the recipe is on the two pound bag of Nestle’s morsels. “You have to get the yellow bag!” she said to me once when I when I returned from the store by myself in the midst of the COVID pandemonium and price-shopped for supplies. “Those won’t work.” I was disheartened. I had purchased the store brand of chocolate chips. I argued my case for twenty-two milliseconds before realizing that there was no point in contesting the issue further. I returned to the store for the correct chips (“Morsels! It will say morsels on the bag. The bag is yellow.” She spoke to my back as I left.)

I can hear her voice. Little stories like this help me to recall her voice.

Yesterday, because I could avoid it no longer, I went to the grocery to restore my larder to its previous vigor. At the beginning my list had only two things, dried cranberries and raisins. Both of these I add to overnight oats which has become a new favorite breakfast treat. I have a pint Ball jar that is just the right size to contain a half cup of rolled oats, a cup of milk and whatever else I put in with those usually raisins or craisins some honey and chia seeds to set in the fridge overnight. I have also added at times cocoa powder, cinnamon, cardamon, vanilla or tahinni and used brown sugar instead of honey. This mixture goes well with my assembly of the coffee in the evening as well as drinking the coffee in the morning.

While putting all away I discovered that the bag of dried cranberries that I purchased would not fit into my quart jar I use to save dried fruit. Alas, some remained in the Ziploc bag that only zips most of the time. I left them on the counter to become a healthy evening snack near the apples and bananas.

After preparing some lunch I hunted for some sweetness to satisfy my heritage and hit upon spreading the Nutella look-alike I purchased at Aldi sometime in the past on a saltine cracker and sprinkling cranberries on top. That tuned out pretty good. (If you are not a believer, try it.) I realized that I was inventing a variety of cookie – biscuit or digestive to the Brits out there – and heard Cheryl say, “You could try making a chocolate cookie with stuff in it.” I blame Cheryl when I hear these inventive thoughts about cooking. She was not very inventive with ingredients but very inventive with technique.

I launched myself into search for a basic chocolate cookie that I could modify with extra ingredients. Below is the final product:

  • 2 C. all purpose flour
  • 2/3 C. powdered cocoa
  • 1 tsp. baking soda
  • ¼ tsp. salt
  • 1 ½ C. white sugar
  • 1 C. unsalted butter
  • 2 large eggs
  • 2 tsp. vanilla extract
  • 1 C. chocolate morsels (in the yellow bag)
  • 1 C. dried cranberries
  • ½ C. smashed walnuts (crushed in the bag but I smash them further)

I creamed the butter, eggs, vanilla and sugar for a bit. Whisked the flour, salt, soda and cocoa together in a separate bowl dry and then dumped them into my mixer. (I bought a new mixer.) After a bit of mixing I tried out my folding paddle and dumped in the rest of the ingredients.

Bake in a 350F (177C) – medium oven 8 to 10 minutes. This lump of cookie dough makes about 4 dozen if you use a teaspoon from your table wear set to scoop and spoon some on to an UNgreased cookie sheet like I did.

After 8 minutes on the timer, I rotated the cookie sheets in the oven and added 4 minutes to the time. This worked for me because I dislike (maybe hate) chewy soft cookies. There is something special about just the right crunch that makes me smile.

Cheryl! You turned me into a cookie recipe experimenter. It is all your fault. (Dammit.) I love you and you are right. These are good. The tricky part will be spreading them out in my eating habits. I have eaten three while writing this story. They go well with coffee.

I wonder which wine pairs well. Pinot Noir? Chardonnay?

A conundrum.

Carpe Diem.

I will miss her always. I promise to only buy chocolate chips in the yellow bag that say morsels on the bag. Yes, Dear. I love you and miss you on holidays like this. Be safe and well in heaven. (Yep, I teared up when I wrote this.)

Carpe the baking Diem

Thankful

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This time of year I think of the things, people and situations in my life for whom and which I am thankful. The positives outweigh the negatives. Do this for yourself and assess were you are. (I am rarely thankful for negatives.)

People: (Be careful here. It is easy to miss someone.)

  • Anna & Eric & the kiddos
  • David & Melissa & the kiddos
  • Scott & Mavis & the kiddos
  • My sister Joyce
  • Debbie Joy
  • My cousin Bob (also Tom)
  • All the Nancys
  • Sr. Carren
  • Sr. Janet
  • The stock club guys
  • Grief Share support
  • Bea, Bev, Marg, Peggy, John and Peg and the back pew support crew

I stop after this list because the people who have saved me is too great for me to remember and the people who are so very special to me crowd my thoughts. It is remarkable that Cheryl is talking to me in my head; “you forgot… and what about…“ After three rounds of Grief Share group support I can hear her voice with almost perfect clarity. So, I tell her, “okay maybe I shouldn’t try to list everyone. You are right someone I missed will be sad I did not list them and they will think I forgot what they did for me.” She just said, “I am (right)!” I laughed out loud at her.

Things:

  • A place to live
  • Bike paths and a car big enough to put my bike into for travel.
  • No mortgage or loan payments
  • Enough cash to last until the end of me
  • Enough food and the ability to prepare it
  • Pie and coffee cake
  • Blueberry sorbet (I am listing the truly important things now.)
  • Also pecan pie. Mavis sent me her pecan bars recipe with the note that the filling makes THE BEST pecan pie. I have made it twice now and she is ABSOLUTELY CORRECT.

I am thankful that in our society I think I will get by with the means at hand. I am pretty sure I will get to the end of my life before I get to the end of my money. We (Cheryl and I) have always been fiscally frugal.) Tricky to do raising three kids but they all turned out perfect and these days their families are perfect. (I am thankful for them too.) I think the little pile of money Cheryl and I put together will last until the end of me.

Situations:

  • Good health
  • Bike paths and the ability to ride on them
  • Loving family
  • Wonderful friends
  • I have decided and have started the process of complete retirement. I hope to have enough time to pursue my own interests and hobbies without interruption of commitment not of my own decision.
  • Mental relief of making that decision and starting the process.
  • Wearing pajamas until noon

One of the reasons for retirement – maybe one of the best – is wearing pajamas until noon. On baking days and writing days I do this. No one is here except me. I do not concern myself with good looks when no one else is about. Lately there have been fewer writing days. My school schedule has picked up. All of that changes at the end of 2025 and I look forward to it.

Carpe Diem

Memories and Remembrance and Dad

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This writing prompt, “Write Scenes With Your Senses” popped into my email today and it made me think. To quote the email, “When a memory suddenly pops into our head it is often just a fragment: a smile, a gentle touch, the tone of a voice. What anchors those fragments and transforms them into a scene that lives on the page is the body. Our senses are the portal. Writing through sight, sound, smell, taste, and touch grounds a scene in the moment and makes it come alive. Sensory details allow the reader to know not just what happened, but to experience it with their own body. It is said that specificity is the soul of narrative.” I have these sorts of memories, mainly, from early childhood.

The discussion continued with also many “have had the experience of hearing a song from our teen years and having flashes of memory from our high school dance from decades before. Suddenly we see the disco ball shooting shards of light across our friends faces, we smell the perfume or cologne of our dance partner, we feel our feet shuffle on the floor to the rhythm of the music, we taste the flavor of our favorite gum.” Sadly I have not and I have no memory of taste of any thing but Kleespie’s Bakery rye bread. (Also a childhood memory.) This last is what propelled me into baking bread as a hobby in the 1980s.

Reading the first paragraph my brain responded with an early, very early, memory of Cub Scouts and knothole baseball. I did not play knothole baseball as a kid but I was a Cub Scout. I imagine this game was a cub scout activity. My Dad was not a huge sports fan or any kind of sports fan, although he did like bowling when I was small.

The memory that came to me like a video vision is an image that has me on a ball field near Oakley Park near where I lived then. The video is silent in my head. It was late in the afternoon and the pitcher was a 7 or 8 year old like I was. Standing there at the plate he threw 4 loopy-doop pitches in a row and I walked to first base. Three other batters behind me also walked to their bases and I walked home. Not knowing much about baseball, I thought so that is what a home run is. It was a home walk in this case.

I was excited about scoring but no one was there to see it. There are no cheers in the audience. I cannot see an audience. I only see the ball diamond. I do not see any coaches but there must have been some. The scene is starkly quiet.

Later when Dad picked me up I told him about my “home run” and scoring a run. He did not correct my misconception. He merely replied, “I wish I was there to see that.” I could hear his voice as he said that. As we rode home in the car he asked me about other things and he may have taken me to get ice cream but the memory fades and that image is not there. I can hear his voice, “I wish I was there to see that” with a little disappointment in his voice. Dad dearly loved ice cream so that image is obfuscated with other trips to various ice cream parlors near our house.

Today my scenes with my senses are focused on Dad and childhood. The only audio is – I wish I was there to see that.

Dad was in the Navy before I was born. I wish he was still here. Do we ever quit being children?

Carpe Diem.

Parkinson’s Help

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I had a long conversation with a member of our Parkinson’s support group today. She called mostly to talk about her husband who has Parkinson’s disease (PD). And the struggles she was having as a caregiver with Parkinson’s disease care management. We talked for a long, long time. Maybe half hour, 45 minutes she was on the phone. She was pretty forthcoming, with lots of things that she was dealing within her life, I was surprised by the call and I don’t know why but I am glad she reached out and I was able to give her an ear. Afterward it made me feel good. It made me feel sad for her.

It made me think…

Think a lot about Cheryl and how I dealt with helping her deal with her disease. She had a lot of the same issues Bev was talking about. Her stories were remarkably similar to my memories of that time in our life.
Bev is dealing with it (Parkinson’s in her husband) right now. With her husband her description is very, very similar to where Cheryl was maybe 2 years or so before the end of her life. The parallels are really striking. Bev was telling me that they moved into the condo that they are now living in about 5 years ago. (Same for us.) Mostly because it was getting harder and harder for her husband. He always, you know, mowed the lawn. And he did the maintenance kind of activities that you have with the house.

She went on and on to tell me lots of stories about things and I think I’ll have to think about them for a while. But the but the whole story line is so remarkably similar and so sad and well, maybe not sad, but but frustrating, you know, the disease just kind of consumes your whole relationship with with your spouse, they’ve been married a long time too.

They’ve been married about 35 years. They were together 3 or 4 years before that. Cheryl and I were married 53 years and we had been together for 4 years before that, it’s just incredible how similar the stories are.

Anyway, I needed to take time away from what I was doing here in my class management at the Mason campus of Sinclair College. I had to go have lunch somewhere where I could sit quietly and think about things and grade papers and take my mind off of that phone conversation and the memories it conjured. That was such a debilitating part of my life and Cheryl’s. It was so all-consuming. I think that’s what gets missed when people talk about care. Giving it is so all-consuming, slow moving, frustrating and then people will still say, “Well you’re blessed to have her or your blessed to have him. There’s no fucking blessed going on in that whole Parkinson’s/dementia thing.

Just.

Not.

Happening.

Bev did tell me one other useful thing. Her family doctor told her that she needs to go outside and take a walk everyday. No phones, no music, no nothing, you need to go out and listen to the birds, enjoy the sunshine. If there is no sunshine, enjoy the rain, if there is rain take an umbrella, but for 30 minutes a day, you got to just walk away from everything, get rid of the stress, let it go. That is absolutely the best advice I’ve ever heard anybody say to anybody else about this horrible disease of Parkinson’s. It truly is a horrible disease. I remarked to her that it was the best piece of advice I had ever heard. (I got away to ride my bike whenever I could.)

Not only does PD make it so that you can’t get around easily. It’s a brain disease, so lots of times the brain goes wacko. He or she becomes a whole different person. Bev was actually talking about that too.

She and I commiserated for a bit; they like us have been married a long time. All the early on things that they and we had. They had a really good life up until just a few years ago, when she thinks he really went downhill in a hurry. But that kind of story is just so common, and somehow doctors aren’t able to describe the signs to the care partner. It seems almost like you would need to have a psychiatric version of Parkinson’s doctor. PD is a movement disorder, so one seeks out a movement disorder specialist but probably one also needs a brain specialist or its psychiatric personality disorder specialist, in other words, a brain guy to to talk about some of these issues. The sad thing is the person with Parkinson’s disease doesn’t recognize what is actually going on. The person helping a person with a dementia issue, of course, is struggling to do the right thing to get the best care. Those around him or her (the family) without the lived experience, those that aren’t dealing with it on a day to day basis, they think that everything is generally okay, because the PD person the demented person is able to actually keep it together for an hour or 2 or whatever it takes to get through the party or the social activity, and so, those people, that part of the family who is not living there does not get to see the whole picture.

They think everything is fine or mostly fine.

Whoever it is, is obviously ill with PD and can’t move so good. Maybe they look old and got arthritis…

So many things are invisible. They cannot be seen. Or we choose to not see.

Carpe Diem

Late Summer Early Fall

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Dear Dad,

I was thinking about you today. I realized that I have not written to you in awhile.

How are you doing in heaven? Have you and Mom found each other? I suspect it is crowded there. I wonder in my own mind how you are able to find her but I imagine that love and connection is an eternal string. You just follow it to the end and there she is.

I am writing this time because I haven’t told you about what is going on in my life. A lot has been happening since you left this plane. That will be eighteen years in a couple months. (Wow.) You taught me well, Dad. I don’t feel like I need you every day but quite often there are things that happen and other thoughts that I want to ask you about, talk to you about, get your opinion.

Cheryl is gone too. You know that, of course. Look around for her too. You know about Bill and Laura. By now you have found them in the crowd there.

I met another girl, Dad. She is nice. She has five kids. Her first daughter is hers. All the rest because of who she is and maybe, because of, what she does are adopted. She is a wonderful woman, Dad. You would like her. I would like you to meet her but as we both know that is not possible right now. Just be on the look out for her. (I do not know which of us will get there first and Debbie does not want me to talk about it.) I love her, Dad. I did not think that possible with all the time I spent with Cheryl but I do. She makes me laugh. Much like when Cheryl was here, I feel an aloneness when I am not with her. Did you feel that when you were away from Mom?

I have been feeling this for some time. It is why I am writing to you.

Yesterday was a working day for her. She called me in the afternoon and told me that she was free for dinner after work if I wanted to meet her somewhere but she was not sure of when our Grief Share group was finished. We met at a restaurant near that LaRosa’s where we used to stop on the way to the playhouse on Sunday’s when we had tickets to the play. Remember? Anyway, this restaurant had the best beef stroganoff. I think Mom used to make that. Isn’t that right? But it was not the food at all, it was Debbie being there. I think it could have been a so-so dinner and I would have ignored all that. It was very good though and that made our conversation all the better. We talked about our day and how it all went. Not a lofty conversation but we caught up with each other about our hours apart.

I forgot to tell you about grief share. Remember the kerfuffle I had with the cemetery years ago when Cheryl and I set up our place there? A woman came to our group session who had lost her son in a flood on a rain swollen creek while camping. A very traumatic experience for her and her family. I remember you telling me about your friend who had drowned in the Ohio river when you were young. But anyway, the cemetery buried him in the wrong place. Can you imagine? (Do you imagine or can you just see it, Dad.) They waited several days for them to recover her son’s body and then the cemetery tried to lose it. Her anger with the cemetery folks is visceral. She is very sad right now. It has been just a few weeks since this happened. I felt sad for her. She was angry and sad and cynical and disappointed and on top of everything grieving the loss of her son. We let her talk for some time. She needed to get it out.

There is a lot of other stuff going on but mostly I wanted to tell you about Debbie. We did go out to Portland and visited with Joyce. Joyce is doing good. We had a great time touring around. We also spent a couple days at the coast. Joyce had found a place to take her dog teddy along. That dog is really attached to her. It took off down the path to the beach and then turned around. Then it ran around the little house we were staying in. then around Joyce and back inside. Teddy took in all the smells quickly and found its owner after the enthusiastic jaunt around the property. It was fun to watch.

There is a lot more for me to write to you about but I think I will save it for later. I hope all is going well with you.

I have one more thing. This deer often visits in the morning. I call him Fred. He has a buddy that I call Frank. Now that they both have their antlers back it is hard to tell them apart. They are majestic animals and I think they grew up in the woods out back. Whenever either of them saunters by they are snacking their way to the old golf course across the street. I think that is where the girls all hang out.

I love you, Dad.

Carpe Diem.

Astoria column

The Left Coast Trip

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The Pacific and Oregon

I have been to visit my sister in Portland several times. It is always a relaxed visit for me. It seems a relaxed visit with Debbie this time.

Seeing and visiting with my sister in her own environment is always a treat. I learn new things about her and find out what a remarkable woman my sibling is.

The next door neighbor who is a single mom, and her daughter had traveled to Mexico to visit with the mom’s boyfriend’s family. For some unknown reason the daughter was flying home before mom and Joyce had volunteered to pick up the daughter at the airport and give her a ride to her home next door. There was a small delay and some excitement at the international part of the airport apparatus as mom had given the 14 year old daughter a bottle of tequila to transport home.

At the custom’s desk the question of – anything to declare? – was met with the young girl’s honest response of – yes I have a bottle of tequila. Not to be judgey but – Gee Whiz, Mom. What are you thinking about?

Info from the Customs and Border agents website — Generally, one liter of alcohol per person may be entered into United States duty-free by travelers who are 21 years or older. …. It is illegal for travelers under the age of 21 to import alcohol – even as a gift. They confiscated the tequila of course and when Joyce communicated this information, Mom was incensed.

Columbia River


This sort of information is not hard to find. I found the words italicized above by typing “amount of liquor one may bring into the us duty free?” into Google. I would imagine Duck Duck Go would work too. I did not need to spell U.S. correctly. An amazing service Google is. Gee whiz, Mom. Were you in an area with no bars for your carrier? Her daughter was burdened with a lot of follow-up questions. Who is picking you up? Where is your mother? Imagine in today’s climate a light brown-skinned child’s anxiety.


A child, a dog and three older folks

My sister swung into action and invited the young one on our own excursion into the Columbia river tour and peach purchasing trip. Ice cream treats were served at the end of the afternoon. What a joy to have this mature inquisitive vivacious young girl with us. I think I may have forgotten the joy and wonder that young people bring to life.

Debbie works with young children in her clinical practice so she is tuned into the younger generation and the culture. This young woman was on the cusp of starting a new high school experience. Much of the conversation was sparked by this fact and the excitement that she felt with starting into a new school in a few days. Mom works remotely at her job so as long as the internet was available she could do her job from Mexico. I could hear the dad in me wondering, shouldn’t mom be here commiserating and agonizing with her daughter about high school, teenage-hood, and all the new stuff? Gee whiz. Maybe go and buy a couple new shirts and some of those pre-ripped jeans that the kids wear?

The huckleberry shakes were pretty darn good although I thought the straw was kind of smallish for an ice cream shake. And what is a huckleberry anyway? The conversation was great. I had forgotten the enthusiasm of young people.

Later in the week we visited Rockaway Beach for two nights. We had the best food at Mama Mia’s in Nehalem. We stopped at Astoria to see the column. We bought a couple refrigerator magnets because tourists do that. We ate more food and came back to Portland.

All in all a good time was had by all.

Carpe Diem

On To…

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I originally wrote most of this in December of 2021. The lessons I learned and techniques I developed for communicating with my wife who was dealing with Parkinson disease and associated dementia are applicable today. The lessons of life are illusory and fade if not maintained.

I am learning things about myself from Debbie that I was only beginning to learn from Cheryl and taking care of her at the end of her life. Dementia is a misunderstanding between the brain and it surroundings and the sensors it uses to detect the environment. An oversimplification to say the least but a miscommunication certainly. Missed communication is at the heart of any conflict or dispute.

Lessons from making cookies

December, 2021: Cheryl’s Cookies (Not the Commercial Venture)…

Living with a parkie (person suffering from Parkinson’s disease) makes me alert to new information when it comes up. That being said I do not always recognize my new task nor do I always recognize the information as new. This is about becoming a master cookie maker on the fly. I was not completely inept. I make bread often.

Executive function and loss of it…

Dementia occurs in about 50% of Parkinson’s sufferers who have had it for some time. Mild cognitive impairment often shows up first, followed by hallucinations, delusions, misunderstanding, memory loss and inability to follow simple directions. It is disheartening. Some behaviors are side effects of medications. Some come with build up of unpronounceable proteins in the brain. No matter the source, the behavior can be disheartening and annoying from a care partner perspective because the person you once knew is physically there and mentally not completely there. From a care partner’s perspective it seems that the medical community does not forewarn anyone about this aspect of the disease.

I am a retired engineer and have an innate curiosity about everything around me. Cooking, baking, bread making and all things requiring an oven have a particular fascination. There is practical chemistry in cooking both with the ingredients and the people cooking them. To the question, why do it that way? Near the end, my wife’s reaction often was anger to some perceived slight or merely to the wording of it. (She is the parkie in this story but that may have little to do with it. I caulked most of these reactions to her PD and her mental state at the time.)

It is an engineer’s question. It starts with me. Words and question structure are important factors. Engineers always want to ask why something is done some way or simply is some way. Why often sounds like a challenge, even to other engineers, if it is not asked properly. Tenor is detected in tone of voice both in the sound we make with vocal chords and inside our own head. Cognitive impairment interferes with interpretation of subtleties of tenor and tone of voice.

How to do…

December, 2021: Our latest challenge to our marital bliss is Christmas cookies. Baking is a hobby and a passion to me. I like to think I have perfected my meager talent at making breads of various types and shapes. I am proud of that but lately I have pushing into cakes and pies. The pandemic pandemonium gets to us all in various ways.

My perception of making cookies is one of a trivial exercise in baking. That is an incorrect perspective but one that I have internalized. December is cookie making time. Cheryl is helping me or I am helping her that is unclear in this reminisce but her Parkinson is affecting her more and more. Two cooks in the kitchen is a recipe for a challenge to peaceful coexistence. Two bakers near an oven enables battle lines to be established and defended with vigor. Starting a question with why is akin to removing one’s glove and casting it upon the dueling ground. [Emoji (:-)] Cheryl has made perhaps a giga-dozen (I just made up that word) of cookies. I have made none. What can I say to redeem myself? Engineers ask why a lot and in this exercise I learn to find a more agreeable way to get her to tell me what she knows.

The lead-in; I do not understand, why do… seems to temper the why. Small children ask why a lot until finally the because-I-say-so comes out.

Where to start…

To a skilled cookie baker the recipe is merely a guide, a refresher, a list that says these get lemon zest. Interestingly, that is much like how I view a new bread recipe. I am on familiar territory. (He thought to himself with arrogance.)

Not so fast apprentice! Nearby there is a master cookie baker. Do not question the master’s skill at her craft with disdainful utterances such as, why and how come? All will be revealed. But also keep an eye on the recipe and make answers such as, yes, we have put that in the mix and suggestions, such as, shall I add the butter?

Sometimes with creeping dementia ingredients are forgotten. Sometimes without that factor ingredients are forgotten. Try to be kind and remember that no one got up in the morning thinking, how can I mess with his mind today? Most importantly, do not raise your voice two octaves, that is a dead giveaway to your ignorance.

How does one check for doneness? (It is common sense!) Look at them. (the “fool” is left unsaid.) They will look right. What is right? (and on and on and on…) Cooking is a process. It is learned by doing. Life is random. It is learned by experience.

The 3C method – Cut out the Crap in the Conversation…

To a person standing nearby this conversation sounds rude. It sounds like one person is giving another orders and it can be that way. If done with kindness in the communicator’s heart and with understanding that a Parkinson’s patient also may be dealing with confusion issues, it is neither rude nor demeaning in any way. Often a person experiencing Parkinson’s cannot or does not get the implication or inference. Be clear. Have kindness in your voice when speaking. No teasing.

When tasting the cookies later after they have cooled, do not say, “YOU FORGOT THE SALT!” Instead say “These seem off somehow. Did we forget an ingredient?” Gentle discussion allows for thoughtful assessment rather than confrontational reaction.

The onus is on the care partner not the parkie to be patient, kind and clear. Be aware, care partner, that this is hard to do because you remember how your partner/spouse/parent/friend was before. (Good natured teasing may be misinterpreted. Be certain that your partner is not confused.) You too can be unaware of how they are now. The Parkinson’s patient may become sad or angry. Be persistent if you as care partner are very concerned about safety. Add some love to the conversation if you think you are not getting through the confusion. Strive to not become frustrated and raise your voice (two octaves).

We did wind up with our first battle batch of cookies. Although they were a motley crew, they tasted fine.

This episode came to me as I was thinking about other experiences that have cropped up in my new relationship with Debbie and I am getting to know her family and friends. Patience, kindness and clearness are useful aspects of communication with anyone, especially someone you care for deeply. Debbie has told me several times that she does not always know when I am teasing her. Perhaps I should not do that at all. The ability to tease someone comes with trust and love and familiarity. Perhaps I should remember that I do not know what I do not know and err on the side of kindness and ease, not tease.

Everyday is a winding road. I get a little bit closer. – Sheryl Crow (Good poem/song – read the lyrics)

Carpe Diem.