Kindness

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I originally wrote most of this in December of 2021. The lessons I learned and techniques I developed for communicating with my wife who was dealing with Parkinson disease and associated dementia are applicable today. The lessons of life are illusory and fade if not maintained.

I am learning things about myself from Debbie that I was only beginning to learn from Cheryl and taking care of her at the end of her life. Dementia is a misunderstanding between the brain and it surroundings and the sensors it uses to detect the environment. An oversimplification to say the least but a miscommunication certainly. Missed communication is at the heart of any conflict or dispute.

Lessons from making cookies

December, 2021: Cheryl’s Cookies (Not the Commercial Venture)…

Living with a parkie (person suffering from Parkinson’s disease) makes me alert to new information when it comes up. That being said I do not always recognize my new task nor do I always recognize the information as new. This is about becoming a master cookie maker on the fly. I was not completely inept. I make bread often.

Executive function and loss of it…

Dementia occurs in about 50% of Parkinson’s sufferers who have had it for some time. Mild cognitive impairment often shows up first, followed by hallucinations, delusions, misunderstanding, memory loss and inability to follow simple directions. It is disheartening. Some behaviors are side effects of medications. Some come with build up of unpronounceable proteins in the brain. No matter the source, the behavior can be disheartening and annoying from a care partner perspective because the person you once knew is physically there and mentally not completely there. From a care partner’s perspective it seems that the medical community does not forewarn anyone about this aspect of the disease.

I am a retired engineer and have an innate curiosity about everything around me. Cooking, baking, bread making and all things requiring an oven have a particular fascination. There is practical chemistry in cooking both with the ingredients and the people cooking them. To the question, why do it that way? Near the end, my wife’s reaction often was anger to some perceived slight or merely to the wording of it. (She is the parkie in this story but that may have little to do with it. I caulked most of these reactions to her PD and her mental state at the time.)

It is an engineer’s question. It starts with me. Words and question structure are important factors. Engineers always want to ask why something is done some way or simply is some way. Why often sounds like a challenge, even to other engineers, if it is not asked properly. Tenor is detected in tone of voice both in the sound we make with vocal chords and inside our own head. Cognitive impairment interferes with interpretation of subtleties of tenor and tone of voice.

How to do…

December, 2021: Our latest challenge to our marital bliss is Christmas cookies. Baking is a hobby and a passion to me. I like to think I have perfected my meager talent at making breads of various types and shapes. I am proud of that but lately I have pushing into cakes and pies. The pandemic pandemonium gets to us all in various ways.

My perception of making cookies is one of a trivial exercise in baking. That is an incorrect perspective but one that I have internalized. December is cookie making time. Cheryl is helping me or I am helping her that is unclear in this reminisce but her Parkinson is affecting her more and more. Two cooks in the kitchen is a recipe for a challenge to peaceful coexistence. Two bakers near an oven enables battle lines to be established and defended with vigor. Starting a question with why is akin to removing one’s glove and casting it upon the dueling ground. [Emoji (:-)] Cheryl has made perhaps a giga-dozen (I just made up that word) of cookies. I have made none. What can I say to redeem myself? Engineers ask why a lot and in this exercise I learn to find a more agreeable way to get her to tell me what she knows.

The lead-in; I do not understand, why do… seems to temper the why. Small children ask why a lot until finally the because-I-say-so comes out.

Where to start…

To a skilled cookie baker the recipe is merely a guide, a refresher, a list that says these get lemon zest. Interestingly, that is much like how I view a new bread recipe. I am on familiar territory. (He thought to himself with arrogance.)

Not so fast apprentice! Nearby there is a master cookie baker. Do not question the master’s skill at her craft with disdainful utterances such as, why and how come? All will be revealed. But also keep an eye on the recipe and make answers such as, yes, we have put that in the mix and suggestions, such as, shall I add the butter?

Sometimes with creeping dementia ingredients are forgotten. Sometimes without that factor ingredients are forgotten. Try to be kind and remember that no one got up in the morning thinking, how can I mess with his mind today? Most importantly, do not raise your voice two octaves, that is a dead giveaway to your ignorance.

How does one check for doneness? (It is common sense!) Look at them. (the “fool” is left unsaid.) They will look right. What is right? (and on and on and on…) Cooking is a process. It is learned by doing. Life is random. It is learned by experience.

The 3C method – Cut out the Crap in the Conversation…

To a person standing nearby this conversation sounds rude. It sounds like one person is giving another orders and it can be that way. If done with kindness in the communicator’s heart and with understanding that a Parkinson’s patient also may be dealing with confusion issues, it is neither rude nor demeaning in any way. Often a person experiencing Parkinson’s cannot or does not get the implication or inference. Be clear. Have kindness in your voice when speaking. No teasing.

When tasting the cookies later after they have cooled, do not say, “YOU FORGOT THE SALT!” Instead say “These seem off somehow. Did we forget an ingredient?” Gentle discussion allows for thoughtful assessment rather than confrontational reaction.

The onus is on the care partner not the parkie to be patient, kind and clear. Be aware, care partner, that this is hard to do because you remember how your partner/spouse/parent/friend was before. (Good natured teasing may be misinterpreted. Be certain that your partner is not confused.) You too can be unaware of how they are now. The Parkinson’s patient may become sad or angry. Be persistent if you as care partner are very concerned about safety. Add some love to the conversation if you think you are not getting through the confusion. Strive to not become frustrated and raise your voice (two octaves).

We did wind up with our first battle batch of cookies. Although they were a motley crew, they tasted fine.

This episode came to me as I was thinking about other experiences that have cropped up in my new relationship with Debbie and I am getting to know her family and friends. Patience, kindness and clearness are useful aspects of communication with anyone, especially someone you care for deeply. Debbie has told me several times that she does not always know when I am teasing her. Perhaps I should not do that at all. The ability to tease someone comes with trust and love and familiarity. Perhaps I should remember that I do not know what I do not know and err on the side of kindness and ease, not tease.

Everyday is a winding road. I get a little bit closer. – Sheryl Crow (Good poem/song – read the lyrics)

Carpe Diem.

Gnats

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A gnat is any of several species of small flying insects that magically appear in the late spring and stick around until late autumn. Here and there they show up without seemingly any help from anyone. It is truly magical. Tiny life, once not here and then here.

I thought of this while waiting for the Nespresso to complete this morning. I was watching one of God’s creatures hop across the kitchen counter nearby as my cup was filling. To be honest, I was focused on whether it was a gnat or one of the floaters that occasionally appear in my vision. Gnat it was.

Imagine the world we live in from the view of the gnat. Big does not begin to describe it.

Imagine your universe … big does not…

This is the kind of thought experiment that I have when I allow myself to do it. We are all here doing the same thing. – Eat, survive, stay alive, reproduce. Why do we spend so much time getting in front of each other? If the hope was I would answer this question so that it could be rebutted with opulent dismissiveness, I cannot. I cannot answer why many are willing to advance unwanted or unasked for interference. I cannot answer why we cannot merely be present for each other.

Gnat is a term that means small fly. There are many species of tiny insects that are referred to as gnats in a general sense. Gnat is a generic term. Gnat is a stereotypical term. Stereotypes are assessments of a small group and extension of those assumptions to a larger group with a bias toward that larger group. The bias often comes from a sense of envy.

In the New Testament there is a story about an owner of an olive grove who hires day labor several times a day to pick his olives. At the end of the day the guys who worked all day became grumpy that they were not paid more than the guys that had only picked olives for a couple hours. They expected their deal to change simply because the olive grove owner was generous to the late comers. The early group was envious of the late comers good fortune.

Envy is a powerful force in life. Envy is all mental. The guys who worked all day could have celebrated the two hour workers’ good fortune instead of mourning their own perceived misfortune but they did not. They chose to be grumpy. The olive grove owner admonished them for their grumpiness.

Everywhere in the world people, animals, insects, plants, fungi are doing the same thing – eat, survive, stay alive, reproduce. Seemingly not recognizing that our fellow people, animals, insects, plants, fungi are doing the same. Recognizing that we are all doing the same thing in life brings peace to the soul. Some would call that woke, a slang term that intends to demean the idea of compassion for our fellow man. Peace only comes with the awareness of the needs of others.

We are all human on Earth with the same needs.

We are all gnats or smaller in the universe. Our needs do not change nor do others.

Carpe Diem.

Men Don’t Like Questions

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Men Do Not Like Questions and Women Need Reassurance

That is a tag line that provokes thought. Debbie said that to me in a conversation we were having about I do not know what. It struck me as so true to stereotype I stopped to write it down in my notes app on my phone.

I observed the stereotype at work in an extra class I taught this spring at the community college. A logistics difficulty with the school caused me to take over a class that had been started by another instructor.

Young men in their all knowing way can plunge off into the abyss of I don’t need any help/I got this. In this case a little extra knowledge is helpful. They were building a control panel for the semester project. For one the magic smoke leaked out of a component. This is never good in electrical work. The young women, there were three, were unsure of their abilities and were more cautious. One told me one day, “I don’t feel like I know what I’m doing.”

I wrote to her at the end of the class my thoughts about her performance in the lab project portion of class. I do this for all of my students. I have done this since my student teaching days. I think of teaching and instructing as guiding the students. Lecture implies an all knowing authoritative relationship. I do not have that style. I think it helps me to get to know and understand their abilities and how I can guide and help them succeed. Along the way I make notes about them in the hope of aiding the journey.

To Simara: I recognize that my taking over the course midstream was disruptive to you. In my short time with you and the rest of the class I took the time to observe a few things about each of you. I am writing this to you to report those observations and offer some unsolicited advice. I detect that you are unsure about many things both in this class and around you in life. That observation may be an incorrect one as I have only known you for a short time. And yet you were not afraid to admit it as you said, “I don’t feel like I know what I’m doing.” That admission is a bold thought and shows an intelligence beyond your years. The important thing is that you asked for help. You may not understand how well that ability will serve you through life but it is a very useful ability to ask for help. Not everyone can do that. Often they are worried about looking stupid and unknowledgeable.

The whole idea of this class is to gain some practical hands on experience, so at the end of our time together I wrote to everyone to tell them what I thought of the class as a whole and to thank them for the smooth transition. They gave me the impression that the previous instructor did not like to answer questions. That simple fact would explain why they were so tentative about asking for information about the project they were working on. And for the project they were working on, they had incomplete information.

This experience was not unlike several business experiences in which I was tossed into a project that was going awry with the wish of, see if you can fix it. Sometimes that means starting over midstream rapidly and using as much of the existing disaster as possible. Sometimes it means finding a new piece of paper and resharpening the pencil. I failed one young man, Sam, who raced ahead not knowing he had incomplete information.

Not only do men not like questions but they do not like asking questions. Women on the other hand ask lots of questions. Follow up questions, many follow up questions help to define the edges of the path to be taken. The path becomes clearer as the follow ups serve to sweep the leaves off the pavement.

Debbie does this to me. My usual response is, “Hmmmm…” while I am stalling for time to answer whatever she asked. Sometimes our banter wanders off into the weeds while I am thinking about what I am thinking about. (It is another comment of hers, “you are always thinking about what you are thinking about.”) She is right. I am not a spontaneous answer-er. I have several stall techniques.

She asks hard questions sometimes, often actually. Her questions are often feeling questions. The answers to which are very often hard to put into words. I will see her today. I look forward to our long conversations about life. She helps me to see how bright and cheery the world is even though Cheryl is not in it. For that I will be forever grateful.

Carpe Diem.

What If?

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Once in a while, not very often, but once in a while when someone I care for says something that piques my interest, I think, what if? This time around it was Midwest Mary who in a chat about writing fiction she said, fiction is when you play what if with reality. That comment spiraled my mind into lalaland. It may never come back. I have been thinking about that on and off all day for the past several and to me “what if” falls into the category of second guessing one’s own decisions and actions in life.

But what if the reality of those decisions and actions cause a different reality to develop. Second guessing reality. Those three words seem to suggest all sorts of outcomes.

Recently the newsy folks, the Congress of the United States, some guy in New Jersey and a lot of people who do not look at the night sky leaped to the conclusion that Iranian drones were spying on people and activities in New Jersey and southern Florida and to avoid detection those drones had their running lights on. What if? Are we about to be invaded or attacked by Iran? This sounds a bit like a Stephen King story. (One of my favorite story tellers is Stephen. He makes me interested in going to Maine for something other than chowder.) A better question might be why? But asking why the Iranians might be standing off shore of New Jersey flying drones to spy on us and looking to see if President-elect Trump putts out or just picks up, takes away from a good fictional story.

Maybe I am too clinical as I think about background, situations and possibilities. The Martian is a great book and was made into a great movie. A what if. The atmosphere on Mars is so light that a violent storm is pretty much like turning on the ceiling fan in my bedroom on low. Beyond that though, all the rest of the actions are believable as reality. Great story tellers are not concerned with this reality. They are making a new reality in the story. Mary has a strong argument. (Thank you, Mary for making me think about the ordinary and extraordinary.)

I do not live on Mars.

I have no desire to be there. I exist in this world and I am unable to imagine another so no doubt I will not be a fiction writer. I should embrace that in myself. There is a new person in my life and life moves on into the future. This is my reality.

We first met in a coffee shop and talked for two hours or so. We were total strangers then, not so now, but we connected that first time. We have met several times to have a meal. We have eaten brunch, lunch and dinner. I have cooked for her which at the time I think surprised her. We have seen a couple movies. During one of those I reached over to hold her hand. It was a comfort to me then and it is now. We went to a bookstore and shopped for books. She is a buyer of books, I am a library borrower of books but I bought a book anyway. We are both readers of books. We met in local winery to have a glass of wine and just chat. I cannot think of a better word than connection. Between us there is a connection.

Cheryl and I connected the first time we met more than fifty years ago. That is a long time between connections. I had forgotten how important connection and conversation is to me, is to us as humans.

In between all of those meetings we exchanged many many text messages and phone calls. I am interested in her family and her life and her thoughts about stuff.

She makes me feel like a teenager. I am happy around her. I am uncomfortable around her like a teenaged boy. I say stupid teenager like things because I am less guarded in my conversation. I enjoy her conversation and she is a good friend. It is not all about her when we talk. (I try to not make it all about me when we talk.) I do not know where this is going but I do know that within myself I miss relaxed conversation about anything and everything. With Debbie’s presence I can have that conversation and comfort. I hope this feeling does not escape from me. I hope it does not escape from us.

Ten weeks or so later and I feel as though I have known her longer. I can tell her my stories without fear of boring her. She tells me her stories and I listen with great interest. We have a lifetime of stories to tell each other.

We only just met. So what is up with that? When see sends me a text message I have to respond even though it may not require a response. When we are chatting I am comfortable with her silence until a new thought appears. We tease each other like young people do – not vicious teasing, it is light, warmhearted and fun loving teasing.

Where is this going? Where are we going? I should take my own advice and Carpe the damn Diem. I will and I am. I am grateful that Deborah is seizing it with me. I am grateful that we found each other.

Carpe Diem.

When Disaster Happens

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As I was watching the news about the continuing wild fires in and around Los Angeles this morning one man was helping his father-in-law who he revealed later in an interview with Gayle King had Parkinson’s disease to get away from the fire coming down the hill. It broke my heart so I turned off the news program and thought about him and them.

In my part of the world about 10 inches of snow is sitting on everything and a couple inches is expected. Melting water is truly annoying also but not life threatening. I have heard from a couple of the residents in our little condo community about dripping water. Ice and snow build up in and on the architectural features and drip. Sometimes the drips are annoying. Welcome to home ownership.

For me the furnace quit working early in the morning with 5 inches of snow on the ground and another 5 still on the way. Nothing to be done there except put on warmer clothing. And thank the architects and builders who insulated the building properly. They did not skimp on that part. My favorite repair guy came when he was able. My girlfriend called in the morning to make sure I had not turned into a Popsicle. I slept later than usual. Cool bedrooms do that to me. (Maybe an AHA moment?)

Shit happens. (Forrest Gump.)

How we react to those situations explains what is important to us. One gentleman is helping his father-in-law who is unable to walk very well with his PD. Eventually as he tells Gayle he sat him down on his walker and pushed out of harm’s way. All the while another person is making videos with his or her smartphone.

Disaster is grim. Some people respond with help and kindness. Some people become amateur videographers. Which one will you be? Which one are you?

The furnace is working after an injection of $1100. The temperature outside froze the ice for now. The roofers will figure it out after more dollars are given. In March there will be good stories on the patios. In Los Angeles many will be arguing with the insurance companies. In the rest of the country insurance premiums will increase. The universe is unfolding as it should.

Keep calm. Make a video if it is necessary for insurance purposes but do not ignore the situation you are recording. Be useful.

Carpe Diem.

‘tis the beginning of The Season

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The bear got his hat out yesterday. Maybe his friend the elf will show up and help celebrate soon.

On this day, however, this day before Thanksgiving Day I am thinking about our life, Cheryl’s and mine, and what a gift it was to us. Tomorrow is the day to count blessings and be thankful for what we have. For me I am also thankful for what we had.

I do not have Cheryl with me any longer but what I have instead is the knowledge that she is not suffering with Parkinson and dementia. I am thankful for that knowledge.

I do have three well educated and successful children who have built successful careers. All of the grandchildren in all of the families are healthy and happy. Some have moved into careers themselves. Some are still figuring it out for themselves but they are all self reliant. Their parents are excellent teachers. I am thankful for the family Cheryl and I made.

I do have my own health. My knees do not hurt constantly like other friends that I have. My hips do not hurt when I walk like others that I know. I was still able to hike four miles up and down the face of a wooded cliff-side in Kentucky. (My legs complained a bit afterward but the bourbon worked. I bought real hiking boots when I returned home.) In the summertime I spent many days riding 15 – 20 miles on my bike. (I am not fast but I can keep up 12 – 15 mph for long stretches. I am not in a hurry. I like to look around me while I ride.) I would like to lose a little weight but my physic will probably never be like what I was at twenty-five now that I am seventy-five. I am thankful for my health.

My sister and I have become much closer. Only she and I are left from our original family. She and I are both widowed and that is sad but it seems like we lean on each other a bit and that is helpful to both of us. I am very thankful for our relationship.

I am thankful for all the help we received from friends and family this past year as Cheryl’s health rapidly declined. I am thankful to all the kind folks at Bridgeway Pointe and Queen City Hospice that took care of Cheryl as she faded. Thank you all.

I am thankful for new friends and old friends who have helped me through the past year.

I am thankful for kindness in the world.

I am thankful that mom taught me a few basic cooking techniques when I was younger and I did not realize she was doing it.

I am thankful that I like to cook and that I like my own cooking. (See the physic comment above.)

I am thankful that things always seem to work out.

I am thankful that I am getting better at staying in the present and not experiencing anxiety for the future. This quote from Matthew pops into my head sometimes (it is true!) when I think about what comes next. [“Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Can any one of you by worrying add a single hour to your life? And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin.”] I thank Cheryl for teaching me this concept of staying present and Mom for pointing out self-reliance goes hand in hand with that.

Mom left me with a gift that I will always be thankful for. I wrote this paragraph sometime ago:
At the very end of her life my mother awakened for a few minutes as I was sitting with her in her room at Bridgeway Pointe which is an assisted living community where she lived out the last fifteen months of her life. When I walked into her room Mom was quietly dozing in her bed. I sat in the usual chair I sat in and waited to see if she would awaken. It was after her dinner time and she often took a nap after dinner. After a few minutes, maybe half an hour, she woke up and looked over at me. She did not have her glasses on but she said, “Paul, is that you?” I replied, “Yes it’s me.” And then she said something that I was not expecting. She said, “Thank you for all your help.” After that she dozed off again. It was the last conversation I had with my mother. She passed away a couple days later. It still makes me cry.

I am thankful that I was helpful to Mom. She acknowledged that to me. All I could say to her was, “you’re welcome.” And I sat in her darkened room as she dozed off again.

We should always be thankful for what we have and what we have had and what we may be given. When someone is helpful to you, acknowledge it and say thanks to them. (Do not whine about it if they are unhelpful – reread the Matthew quote.)

Carpe Diem.

Empathy and Other Thoughts

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Empathy is at the core of activism. These words were spoken by Steve Hartman in his piece that is presented on CBS Mornings. If you have not watched any of these videos take some time to do so. Steve and his children do a good job of presenting kindnesses that folks do for one another. (https://www.cbsnews.com/feature/kindness-101-steve-hartman/)

Empathy is simply awareness of the plight of others. In current times the political realm uses the term woke and uses that word as a pejorative. There is nothing wrong with being an empath even though some would have you believe otherwise.

At the height of our political season, in among all the name-calling, empathy for others healthcare situations seems lacking. Pick a topic; reproductive rights, gender affirmation, restroom use, pharmaceutical costs, mental health, insulin prices, Affordable Care Act, weight loss or gun rights – all have become political. There is emphasis without empathy.

At the same time regular people simply trying to get along in life in poor situations in other countries are disparaged for wanting to come to the United States. As Pres. Reagan called it, the shining city on the hill. We are fortunate. We are here. On the south there is a river, a desert, a fence, a wall to keep people out. There is also overwhelming empathy for those coming here by many who live nearby and border patrol officers. Walk-ins sit and wait to be picked up. And others attempting to become our leadership are denigratory in their depiction of the reasons for the migration and are actively contemptuous of those coming here.

There is little empathy displayed by some of those vying for great office. Leadership without empathy is elitist.

Altruism in leadership produces consequence. Without it another guy is merely getting financially rich by gaming the system (whatever that means). Altruism and empathy are not manifest by tearing down and name calling. Altruism and empathy are manifest by describing policy gaps and ways to correct them. (Holy Cow! I fell down the political rabbit hole.)

If I learned anything by being care partner to Cheryl, it was altruism and empathy. (in addition to love, sympathy, emotional comfort and a vast range of other emotions) Of course, she was my whole focus while she was here. Now that she is not I see other self serving ideas and effacing attitudes towards others that are pervasive in our culture. I had to put her comfort first. Comforting others without being intrusive is part of my new “more”.

“Me. Me. Me.”, he said. There is no grace in focusing on yourself above others.

If our culture emphasized empathy, altruism and an outward view towards the greater good, what heights could we achieve?

Carpe Diem.

Happy Birthday to Me

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This year marks seventy-five trips around our star for me. That single fact is, to me, remarkable. I want to say that I had not thought about my birthday and the number of years but that is not true.

The first birthday I truly cared about was my fiftieth. Several important things happened that year to remind me that all is not permanent. Cheryl was almost taken from me that year. She was in a serious car accident that year. When I first saw her car afterward I was very surprised and elated to see her alive siting on the curb at the side of the road. Her injuries were such that she felt the need to find some none impactful aerobic exercise to recover. She settled on deep water aerobics and during the fall and winter became an avid fan. The accident had occurred in the spring and as she built herself back up in the summer I found myself accompanying her to the local YMCA where I found a trainer (a kid really) to help me discover a program that was more manly than deep water aerobics for me. I had become fat and slovenly in my forty-ninth year. It was time for a change.

Cheryl on the other hand dearly loved birthdays and celebrated everyone’s birthday with a vengeance. I think her mother gave her that feeling or thought about the importance of birthdays. It was not only birthdays, any family anniversary or event was very important to Cheryl. When her family stood around and sang happy birthday to anyone the song was ended with, “… and many more!”

Cheryl bought me a card some time ago which I found some few weeks before she died. On the front: “Thank you for finding me, charming me, and loving me. Thank you for making me laugh, for being there for me in so many ways, and for always being the best friend I need.” Inside: Dear Paul, (in her hand) “Thank you for making me feel like the luckiest person alive.” Love, Cheryl (in her hand). I keep this card on my bulletin board.

I do not remember nor do I think it is a birthday card but the sentiment goes with many occasions. It merely says “Thanks”. When I found this card a few months ago, I cried a little. This card was from her favorite Dollar store and even though it was an inexpensive one, she had managed to find one with, to me, a very moving message.

So with that same sentiment, Cheryl, I am sorry in many ways that you are not here with us still to celebrate my birthday with me. I am saddened that you were not here to celebrate your birthday in May. Nevertheless I am glad to have known you in this life and I look forward to reuniting with you in the next one. I love you and I keep your heart in my heart. One day our hearts will be together again.

Happy Birthday to me! … and many more.

Carpe Diem.

Serenity and Serendipity

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THOUGHT FOR TODAY:What wisdom can you find that is greater than kindness? -Jean Jacques Rousseau, philosopher and author (28 Jun 1712-1778)

Serene, serenity and serendipity,  calm, calmness and a combination of events producing happiness might that be simply being kind to others around you in life? There is a quiet calm that comes with a kind act to another. A friendly smile, a cheery “Good Morning” or a happy wave to a neighbor, these are all simple kind acts that bring calm and lift one’s spirits.

In this new life of mine without Cheryl, I seek the serenity and serendipity of this next journey. I do not know what it will bring but Cheryl helped me to understand that living in the moment is key to living. Over the weekend I began the task of acknowledging the mound of cards, letters, well-wishes and memorials for Cheryl left from her celebration of life eight weeks ago. These days I feel a complicated mishmash of emotions. I suppose that is what grief is; a mishmash. I read in a book once, “grief is just love with no place to go.” Whether grief is merely leftover love or not, I do not know nevertheless grief is only part of my emotional upheaval. There is an emptiness, a hole, a gap in the schedule, a longing, a want for something different. There is a “no one to check with first” feeling that leaves me on my own to decide what to do about anything. I truly do miss her. At the same time I am gladdened by the fact that she is no longer suffering with Parkinson and dementia.

There is nothing on this calendar square and there is no one to ask, “What shall we do today, Dear?” I don’t want to fill my day with necessary but meaningless tasks like laundry and cleaning. I read some; both novels and not. I have several books of poetry and i pick one of them to read and think with and about. I journal although not as much as when Cheryl was still alive and I ponder as I write here.

She does talk to me and lately I have been dreaming about her. These are calm dreams. She has no Parkinson in her. She does not need my help. And when I awaken she stays with me for awhile in the morning.

Yesterday while looking through various memorial cards she directed my attention to this poem in one of them. She knows I like poetry. This was written by Anne Lindgren Davison. (Thanks, Anne.)

 I Am Free
Don't grieve for me, for now I'm free.
I'm following the path God laid, you see.
I took His hand when I heard Him call.
I turned around and left it all.
I could not stay another day,
To laugh, to love, to work or play.
Tasks left undone must stay that way,
I've found the peace on a sunny day.
If my parting has left a void,
Then fill it with remembered joys.
A family shared, a laugh, a kiss,
Oh yes, these things, I too, will miss
Be not burdened with times of sorrow,
I wish you the sunshine of tomorrow.
My life's been full, I savored much,
Good friends, good times, a loved one’s touch.
Perhaps my time seemed all too brief.
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee.
God wanted me now; He set me free.


Poetry is for me a comfort. In this poem with its simplistic rhyme I hear Cheryl’s voice. This an example of her telling me to not be too sad because there is no Parkinson or dementia in heaven. For that I am grateful.

Carpe Diem.

Concerned about What is Unknown

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I just heard. Are YOU doing okay?

That question annoys me when coming from anyone other than close friends or family. My first thought is to say, of course I am not okay, you dumb shit. My wife, the love of my life, the person that makes me whole,  the place where I am home has gone to heaven and left me here to deal with the dumb shit questions about how I am doing. But, I do not respond that way. I merely respond with, I am okay most days.

That truth is how I think about it. Some times I am saddened when I think of Cheryl, however, most of the time I am happy for her. She was very ill. It would be better maybe great if she was still alive but not with the health situation she was in. She was sick. She was eating so little her body was consuming itself to stay alive. And although I feel guilty about admitting it, I am happy she died. She truly is in a better place. No bullshit about it. She knew she was dying for awhile. She told me about it a few months before her actual death.

We do not talk about death as a society. Christians believe in an afterwards. When this is done there is more and it is better. Other religions have similar beliefs. I personally am not so sure. (If it’s better afterwards why is it a sin to commit suicide?) Maybe Ronny Reagan is right. But what if he is not? Lots of philosophical ideas there. Plenty to think about.

Cheryl and I talked about it a couple of years ago. I think that it occurred to her that she needed to make her wishes known to me so that I could do it for her. After death discussions with Mom, it was not so upsetting to talk about it all with my wife. Cheryl was focused on the actual service. I was focused on the practicalities of burial and cremation. At the time she still had long periods of almost normal cognition and she recognized that it was lessening. Imagine how scary and upsetting that would have been to her. She never offloaded any of her personal grief about her disease on me. Looking back it was another kindness that she used to protect her family from sadness.

I wish I had spent more time with Cheryl talking about hymns and prayers. She cared greatly about the service. I wanted to ask her things when we had the meeting to discuss what and who. The kids were great. They knew Cheryl’s wishes. I suppose she was talking to them as well as me.

I started this thinking about how annoyed I am with the question about how I am doing. Cheryl just told me to be kind.  Most folks do not know what to say or how to respond to news about death. Mostly they are thinking, man, it must be hard. And it is but my perspective is different and I am doing okay mostly.

Michele Obama’s mother passed away recently. She was 86. No cause for her death was given. (said a stupid news reader.) Why is a cause important? Is there a solution to old age other than death?

Carpe this Diem and the rest that you are given.