This is written over a period of several days. A series of notes about odd behaviors that seem to occur late afternoon into the evening.
Exhibiting oddly meaningless compulsive behaviors, she arranges and rearranges various papers. Talks about another topic while waving around an email printout of a hair appointment.
Talking to the kids in the room shining a red light in her eyes. “Just leave me alone until I get this done.” — woke me from the depths of my novel to find out to whom she was talking.
Stacking and restacking paper.
That was last night. This evening she exhibited similar strange behavior.
Reading and re-reading various things she has printed from email.
Anna to the rescue. I sent a text message to my daughter and asked her to call her mother. Sometimes that bumps Cheryl out of her circular confusion. And then she magically came out of it.
We played Scrabble. This is a game that Cheryl dearly loves. Even with the Parkinson’s she is still good at it. I also turned on every light to make it brighter in our condo. She was in the midst of beating me when our daughter called. Reprieve!
In the morning we had a small conversation about when we were going home. We were home. I pointed that out and asked how she slept. She replied – not very well. This place does look like our condo though. Are any of the kids here? Me: No. Only us here today. Cheryl: That’s good. I’m tired I think I will lay down for a while. She went back to bed and slept for a couple hours.
I am starting to think that her meds may be screwing with her sleep patterns. Her devotion to her office and email in the evening she defends by saying – it is the only time I can get anything done.
I guess I am trying to work out how to explain these behaviors so that the doctor can make sense of it. He and the nurse practitioner do listen to me. I am grateful for that.
Every day is a winding road. – Sheryl Crowe … truer words were never sung.