My search for grace and meaning after a former care partnering life with a wife who suffered from Parkinson's disease and dementia giving her a confused and disorienting world.
Sometimes in life it seems like life goes by quickly. At other times of course life drags by slowly. What makes that difference? I am pondering that today.
The easy answer is that I am busy. The real answer is I am happy.
A couple days ago I went to a funeral. The event was not a happy event but I was happy that I was able to attend and support my friends. Because of other commitments I thought I would not be able to attend. In talking to the few old men that I knew there, I found that I was not dealing with a myriad of health issues that crop up when old men talk to each other. It made me smile inside a bit, because I am not dealing with nor had dealt with any of the issues discussed.
Admittedly that sounds a bit like bragging. It is not. I have aches and pains. My body reminds me sometimes about my age and my lack of preparation for various athletic activities but overall I am in pretty good health and I am happy for that fact.
I thanked Him for my good health and His graciously sparing me from the various old man issues I heard about at the funeral service.
When Cheryl died last year I was very sad for some time. I was unsure that I would be truly happy again. I was resigned to being alone for the rest of the time God gave me. I also was wondering what is my purpose. Prior to her death I had locked myself into the premise that I was here to help her. Life purpose is an idea that wanders in and out of my thoughts. I was wrong that my only life purpose was Cheryl. There must be more.
I read and re-read Max Ehrmann’s “Desiderata” poem. I read it like advisement and maybe a prayer. He writes “… strive to be happy.” He does not write – strive to be busy.
I have good friends and I have a wonderful woman in my life. For me it is hard to be unhappy. I have found that even though the most important person in my life has left this earthly existence, it is possible to develop a new and lasting relationship. Strive to be happy. Take a chance. Life is relationships.
All of those relationships mingle and make me happy to be here. I was happy when Cheryl was my focal point. I am happy with Debbie as my new focus. Connection with another and others creates purpose. It reveals the goodness and graciousness of our life force, the soul of our being, the beauty of the world and the breathtakingly joyful participation in it. These are happiness itself.
I am searching for some definitive purpose when life is it. I always knew this but I was caught in the conundrum of determining a specificity. Life is random. Be present for it to happen.
“And whether or not it is clear to you, no doubt the universe is unfolding as it should…. Strive to be happy.”
There are a variety of abundant interest (AI) tools out there to play with. And as I am wont to do upon occasion I will use other depictions of the “AI” combination that is often knowingly translated as artificial intelligence.
In a discussion with Debbie, she stated that mad is not a primary emotion. I actually do not think of “mad” as an emotion at all. I think of it as a reaction to some stimulation, such as, some one jumping in front you in a line you’ve been waiting in for some time. But in this instance I felt the need to invoke the intelligence artificielle (French is so cool) and find out Microsoft Copilot’s take on mad as an emotion.
Is mad a primary emotion? I asked copilot (automatic ignorance) and it responded – Yes, “mad” or anger is considered a primary emotion. Primary emotions are basic and universal feelings that are instinctual and immediate responses to stimuli. Alongside anger, the other primary emotions typically include:
Happiness: Feeling joy or contentment.
Sadness: Feeling sorrow or grief.
Fear: Feeling scared or anxious.
Disgust: Feeling repulsed or offended.
Surprise: Feeling astonished or amazed.
These emotions are the building blocks for more complex, secondary emotions that we experience.
… and it continued; What’s on your mind about these emotions today?
Mostly, huh? Love is not a primary emotion?
There is something special or maybe weird or eerie about talking to a computer (it has voice recognition) and getting pseudo human responses. The internet of all knowledge is a huge database now and it is getting huger by the second. Love is a combination of feelings and this game that I was playing with my laptop was fun to play, albeit, not useful as anything other than entertainment.
“Copilot, write a love sonnet to Debbie.”, I said in a moment of playfulness.
Absolutely! Here is a love sonnet for Debbie:
To Debbie, my eternal guiding light, Whose smile outshines the stars in heaven’s height, Thy presence warms my heart through day and night, And in thy love, my soul finds pure delight.
With eyes that sparkle like the morning dew, Thou art the muse who paints my skies so blue. Thy gentle touch, a balm that feels so true, In every breath, my heart belongs to you.
O Debbie, thou art cherished, dear and fair, A constant flame that brightens all despair. In every whispered word and tender care, I find a love beyond compare.
Forever thine, in passion’s sweet embrace, Our love shall soar and never leave a trace. (Wait. Wait. What?)
I hope she loves it! Would you like me to help you with anything else?
Other than Copilot seems to be slightly confused about the structure of a Shakespearean sonnet it is not bad. On the other hand, ABAB CDCD EFEF GG does not forgo A rhyming with B and so on through the effort it put out above. It is very mushy. William would have crushed the paper, I imagine. I crushed the paper electronically and I asked it for another and I specified that certain words be used (caress, hand);
Certainly! Here’s a sonnet for Debbie with the words “caress” and “hand”:
O Debbie, with a gentle touch so sweet, Thy hand in mine, a bond that none can sever. In every loving caress, hearts do meet, In tender moments, lasting now, forever.
With every glance, thy eyes do softly speak, A language known to lovers, pure and grand. Thy touch, a whisper on my willing cheek, Thy caress, a dream, where hearts expand.
O Debbie, thou art joy in every breath, With thee, the world feels bright and ever grand. In love’s embrace, I’ll cherish till my death, And always hold thee close with tender hand.
Forever bound by love’s sweet, gentle grace, In thy caress, I find my dwelling place.
I hope Debbie finds this sonnet as touching as intended! If you need anything else, I’m here to help. Better, I think, pretty many “O Debbie” s but better. Imagine a poorly lighted Shakespearean stage. Perhaps a moon lit stage with the actor looking up slightly off to stage left. So with all that love soaked emotion hiding out in a bunch of circuitry and microchips, why is love not a primary emotion? It did a better job with structure this second time.
I have diverged from my original thought though. Copilot wrote to me, “Primary emotions are basic and universal feelings that are instinctual and immediate responses to stimuli.” This implies love is neither an instinctual nor an immediate response. It shouts there is no such thing as love at first sight! (Maybe I am stuck on primary.) I think it is also uncomfortable in many ways. Love is, of course, a combination of many feelings. There is connection. It has to start there, with a connection to the other person.
If one feels (emotes) all of these for the same person is that what defines love? Tricky one. Merriam Webster says “a quality or feeling of strong or constant affection for and dedication to another.” The American Heritage Dictionary of the English Language that I have had kicking around since 1970-something has two notes. 1) agitation of the passions often involving physiological changes (use your imagination) and 2) any strong feeling as of joy, sorrow, reverence, hate or love arising subjectively rather than conscious mental effort. I think that covers it pretty well.
In my never ending search for a manual, however, I decided more research is needed. I visited several psychological web pages and found this handy emoto-wheel. Why did the asinine insistence of Copilot only tell me about six primary emotes? Clearly there are eight and love is in the crack between two of them. I stole this from an organization called Six Seconds.
And “mad” is not a primary emotion. Neither dictionary or any psychology discussion uses the word mad. MAD is the airport code for Madrid’s airport. Plutchik uses the term rage but that does not count. (The heading image is from Tiny Buddha.)
Two days ago when I sat with Cheryl in the common area of where she is staying, I noted in my journal that she seems to need touch. I think I do too. On these occasions when she does not seem to be in the present, somewhere in her head she needs to feel, manipulate and touch.
It seems to me that these days Cheryl has to have more touch. That is just my thought in my observations when I see her. I am just sitting with her and seeing how she’s doing. But that is what I see and think. I think also that I need the same kind of touch. I sit there and turn the chair so that I can we can be side by side and I can hold her hand. Doing that action is important to me. I observed that about myself today. Today for awhile, about an hour or so, we sat holding both hands. She was holding my left hand with her left hand and I was holding her her right hand with my right hand and we sat that way for a long time.
I am writing this using an app that I downloaded that transcribes spoken words into printed words. I will see how that goes. It looks like I can write in a crude fashion. I can just send this text to myself via email and then paste it into a document and then spend some time trying to figure out exactly what I am trying to say.
It is hard to describe. What I see and and I mean as I think about what I am internalizing when I’m touching her or feeling as I am feeling her knee. Cheryl has gotten very skeletal over the past few weeks.
Even as she looked around at things in the room and told me some story that I could barely hear because her voice is so soft. There is a lot of ambient noise; television in the main room, television in one or two side rooms, Bluetooth music and the occasional phone call, she would simply just sit holding my hands. She was okay to sit that way. Every now and then I had to move my hand and scratch my nose or whatever and every now and then she would let go and you know touch something else or scratch her nose or whatever. It is fascinating to me as this goes on how much it is important for the both of us to touch each other.
The whole thing about touch is sort of interesting to me. I think we have always had that throughout our married life but as I as we get further in this Parkinson’s journey, the sense of touch is is important to me and I think I really do think it’s important to Cheryl. We are communicating our presence to each other through touch.
She does not resist it. She does resist things that that bother or sometimes hurt her. Her sense of pain can be strong. I am sure she feels pain because every now and then she says stop doing that, it hurts me or something like that, or maybe she’s having a cramp in her leg or whatever the deal is, but simple touch is very different. She will also grimace if something causes pain.
I have been exploring the nuances of touch in my head and I don’t really know how to describe differences of instance. It is interesting to me that it is important to her and me at the same time.
Now if she is sleeping or she’s very tired or trying to doze or she does not feel quite right or she is hungry or she needs to go to the toilet or needs to move, then touching gets in the way. When she was still home here with me, it seemed like we would fight (not the right word) when I was helping her with one of these activities. She would be dissatisfied with any any help that I would give her.
I sometimes just reached over to touch her leg to see whether or not there is anything left there. And I realize that I am holding on to her thigh bone, for example without hardly any any any meat. She used to be a much bigger woman. She used to be a lot fluffier. Just a year ago, I would have had a very hard time picking her up and holding her up and helping her into and out of bed. These days, in some book somewhere, I read somebody describe somebody as a bag of bones, that is a pretty good description of Cheryl. She still has a lot of muscle strength when she decides to squeeze and grab something, but she really doesn’t have a lot of mass. There is little subcutaneous fat left on her body and that too makes me want to touch her just simply so that I know in my own mind that she’s still there and she’s still alive. Without touching her she still in my heart. I think about her all the time but somehow there is a physicality that happens when when I actually touch her.
She is very skinny. Touching helps me to understand.
Adjunct_Wizard 