The Books Showed Up

Generally I like mystery stories of some sort. I am a big fan of and have read all of John Sanford’s (Cloud’s) Lucas Davenport and Virgil (that fucking) Flowers series. They are entertaining but not mysteries. The last couple with Letty are mechanical in structure. John may be losing me as a fan. As I look at the library website and read other things, I make note of, or if I have my communication device (phone) with me and can look for whatever book was mentioned, I put the volume on hold at the library if they own it or are buying it.

That last sentence looks cumbersome and may need restructuring. Sometimes the book takes weeks to appear at my local library branch. occasionally several will arrive simultaneously. This simultaneous arrival of several books happened on Friday, I responded on Saturday and another appeared. Alas, I have six books to read or at least peruse before I return them. These six are in addition to the several e-books that I have borrowed and downloaded to my Kindle. I do not read everything that I borrow or download. I give the author a chance, perhaps, ten or twenty pages, before I decide too bad a bummer.

I have a lot of nothing to do lately. It consumes my whole day, however, it is interesting and amusing to me that I can spend all of this time with nothing to do doing nothing and not lose interest. How I tripped over Anne Lamott is a true mystery and I love mysteries. Did I say that? Already? Was Cheryl talking to me? Her book, “Small Victories [Spotting improbable moments of grace]” is not one I would have selected while shopping at the library, nevertheless, it showed up on the holds shelf for me. I did not steal someone else’s hold (I checked) but I wonder what was going through my head when I put it on hold. I put the hold on the LARGE PRINT addition which is often available when all other versions are out which means I felt an urgency to finding a copy. This is truly mysterious.

Her book is a collection of essays about life, faith and graciousness in adversity. We all have adversity fall on us at some time on life’s journey. Cheryl’s death hit me pretty hard even though she died mentally a couple of years prior to her actual death. Anne’s book was on top when I set these six down near where I often sit in the evening to read or find some old movie (or new one) on Prime, Peacock or one of the other streaming services for which I have subscriptions. (Movies get a mere five minutes to gain my interest. I forgot how good JAWS is and the bad science of compressed air bottles.)

Anne entitled this story, simply, “Ashes” and since Cheryl was cremated the story title attracted my interest as the one to read first. I started her anthology in the middle.


Ash Wednesday came early this year. It was supposed to be about preparation, about consecration, about moving toward Easter; toward resurrection and renewal. It offers us a chance to break through the distractions that keep us from living the basic Easter message of love, of living in wonder rather than doubt. For some people, it is about fasting, to symbolize both solidarity with the hungry and the hunger for God. (I, on the other hand, am not heavily into fasting: the thought of missing even a single meal sends me running in search of Ben & Jerry’s Mint Oreo.)
There are many ways to honor the day, but as far as I know, there is nothing in Scripture or tradition setting it aside as the day on which to attack one’s child and then to flagellate oneself while the child climbs a tree and shouts down that he can’t decide: whether to hang himself or jump, even after it is pointed out nicely that he is only five feet from the ground.
But I guess every family celebrates in its own way.
Let me start over. You see, I tried at breakfast to get Sam interested in Ash Wednesday. I made him cocoa and gave a rousing talk on what it all means. We daub our foreheads with ashes, I explained, because they remind us of how much we miss and celebrate those who have already died. The ashes remind us of the finality of death. As the theologian said, death is God’s no to all human presumption. We are sometimes like the characters in Waiting for Godot, where the only visible redemption is the eventual appearance in Act Two of four or five new leaves on the pitiful tree. On such a stage, how can we cooperate with grace?
How can we open ourselves up to it? How can we make room for anything new? How can we till the field? And so people also mark themselves with ashes to show that they trust in the alchemy God can work with those ashes — jogging us awake, moving us toward greater attention and openness and love.
Sam listened very politely to my little talk. Then, when he thought I wasn’t looking, he turned on the TV. I made him turn it off. I explained that in honor of Ash Wednesday we were not watching cartoons that morning. I told him he could draw if he wanted, or play with Legos. I got myself a cup of coffee and started looking at a book of photographs. One in particular caught my eye immediately. It was of a large Mennonite family, shot in black-and-white: a husband and wife and their fifteen children gathered around a highly polished oval table, their faces clearly, eerily reflected in the burnished wood. They looked surreal and serious; you saw in those long, grave faces echoes of the Last Supper. I wanted to show the photograph to Sam. But abruptly, hideously, Alvin and the Chipmunks were singing “Achy Breaky Heart” in their nasal demon-field way — on the TV that Sam had turned on again.
And I just lost my mind. I thought I might begin smashing things. Including Sam. I shouted at the top of my lungs, and I used the word “fucking,” as in “goddamn fucking TV that we’re getting rid of,” and I grabbed him by his pipe-cleaner arm and jerked him in the direction of his room, where he spent the next ten minutes crying bitter tears.
It’s so awful, attacking your child. It is the worst thing I know, to shout loudly at this fifty-pound being with his huge trusting brown eyes. It’s like bitch-slapping E.T.
I did what all good parents do: calmed down enough to go apologize and beg for his forgiveness, while simultaneously expressing a deep concern about his disappointing character. He said I was the meanest person on earth next to Darth Vader. We talked, and then he went back to his drawing. I chastised myself silently while washing breakfast dishes, but then it was time for school and I couldn’t find him anywhere. I looked everywhere in the house, in closets, under beds, and finally I heard him shouting from the branches of our tree.
I coaxed him down, dropped him off at school, and felt terrible all day. Everywhere I went I’d see businessmen and businesswomen marching purposefully by with holy ashes on their foreheads. I couldn’t go to church until that night to get my own little ash tilak, the reminder that I was forgiven. I thought about taking Sam out of school so that I could apologize some more. But I knew just enough to keep my mitts off him. Now, at seven years old, he is separating from me like mad and has made it clear that I need to give him a little bit more room. I’m not even allowed to tell him I love him these days. He is quite firm on this. “You tell me you love me all the time,” he explained ‘recently, “and I don’t want you to anymore.”
“At all?” I said.
“I just want you to tell me that you like me.”
I said I would really try. That night, when I was tucking him in, I said, “Good night, honey. I really like you a lot.”
There was silence in the dark. Then he said, “I like you, too, Mom.”
So I didn’t take him out of school. I went for several walks, and I thought about ashes. I was sad that I am an awful person, that am the world’s meanest mother. I got sadder. And I got to thinking about the ashes of the dead.
Twice I have held the ashes of people I adored — my dad’s, my friend Pammy’s, Nearly twenty years ago I poured my father’s into the water near Angel Island, late at night, but I was twenty-five years old and
very drunk at the time and so my grief was anesthetized. When I opened the box of his ashes, I thought they would be nice and soft and, well, ashy, like the ones with which we anoint our foreheads on Ash Wednesday. But human ashes are the grittiest of elements, like not very good landscaping pebbles. As if they’re made of bones or something.
I tossed:a handful of Pammy’s into the water way out past the Golden Gate Bridge during the day, with her husband and family, when I had been sober several years. And this time I was able to see, because it was daytime and I was sober, the deeply contradictory nature of ashes — that they are both so heavy and so light. They’re impossible to let go of entirely. They stick to things, to your fingers, your sweater. I
licked my friend’s ashes off my hand, to taste them, to taste her, to taste what was left after all that was clean and alive had been consumed, burned away. They tasted metallic, and they blew every which way. We tried to strew them off the side of the boat romantically, with seals barking from the rocks onshore, under a true-blue sky, but they would not cooperate. They rarely will. It’s frustrating if you are hoping to have a happy ending, or at least a little closure, a movie moment when you toss them into the air and they flutter and disperse. They don’t. They cling, they haunt. They get in your hair, in your eyes, in your clothes.
By the time I reached into the box of Pammy’s ashes, I had had Sam, so I was able to tolerate a bit more mystery and lack of order. That’s one of the gifts kids give you, because after you have a child, things come out much less orderly and rational than they did before. It’s so utterly bizarre, to stare into the face of one of these perfect beings and understand that you (or someone a lot like you) grew them after a sweaty little bout of sex. And then, weighing in at the approximate poundage of a medium honeydew melon, they proceed to wedge open your heart. (Also, they help you see that you are as mad as a hatter, capable of violence just because Alvin and the Chipmunks are singing when you are trying to have a nice spiritual moment thinking about ashes.) By the time I held Pammy’s ashes in my hand, I almost liked that they grounded me in all the sadness and mysteriousness; I could find comfort in that. There’s a kind of sweetness and attention that you can finally pay to the tiniest grains of life after you’ve run your hands through the ashes of; someone you loved. Pammy’s ashes clung to us. And so I licked them off my fingers. She was ‘the most robust and luscious person I have ever known.
Sam went home after school with a friend, so I saw him for only a few minutes later, before he went off to dinner with his Big Brother Brian, as he does every Wednesday. I went to my church. The best part of the service was that we sang old hymns a cappella. There were only seven besides me, mostly women, some black, some white, mostly well over fifty, scarves in their hair, lipstick, faces like pansies and cats. One of the older women was in a bad mood. I
found this very scary, as if I were a flight attendant with one distressed passenger who wouldn’t let me help. I tried to noodge her into a better mood with flattery and a barrage of questions about her job, garden, and dog, but she was having none of it.
This was discouraging at first, until I remembered another woman at our church, very old, from the South, black, who dressed in ersatz Coco Chanel outfits, polyester sweater sets, Dacron pillbox hats. They must have come from Mervyn’s and Montgomery Ward, because she didn’t have any money. She was always cheerful — until she turned eighty and started going blind. She had a great deal of religious faith, and everyone assumed that she would adjust and find meaning in her loss — meaning and then acceptance and then joy — and we all wanted this because, let’s face it, it’s so inspiring and such a relief when people find a way to bear the unbearable, when you can organize things so that a small miracle appears to have taken place and that love has once again turned out to be bigger than fear and death and blindness. But this woman would have none of it. She went into a deep depression and eventually left the church. The elders took communion to her in the afternoon on the first Sunday of the month — homemade bread and grape juice for the sacrament, and some bread to toast later but she wouldn’t be part of our community anymore. It must have been too annoying to have everyone trying to manipulate her into being a better sport than she was capable of being. I always thought that was heroic of her: it speaks of such integrity to refuse to pretend that you’re doing well just to help other people deal with the fact that sometimes we face an impossible loss.
Still, on Ash Wednesday I sang, of faith and love, of repentance. We ripped cloth rags in half to symbolize our repentance, our willingness to tear up the old pattern and await the new; we dipped our own fingers in ash and daubed it on our foreheads. I. prayed for the stamina to bear mystery and stillness. I prayed for Sam to be able to trust me and for me to be able to trust me again, too.
When I got home, Sam was already asleep. Brian had put him to bed. I wanted to wake him up and tell him that it was okay that he wouldn’t be who I tried to get him to be, that it was okay that he didn’t cooperate with me all the time — that ashes don’t, old people don’t, so why should little boys? But I let him alone. He was in my bed when I woke up the next morning, over to the left, flat and still as a shaft of light. I watched him sleep. His mouth was open. Just the last few weeks, he had grown two huge front teeth, big and white as Chiclets. He was snoring loudly for such a small boy.
I thought again about that photo of the Mennonites. In the faces of those fifteen children, reflected on their dining room table, you could see the fragile ferocity of their bond: it looked like a big wind could come and blow away this field of people on the shiny polished table. And the light shining around them where they stood was so evanescent you felt that if the reflections were to go, the children would be gone, too.
More than anything else on earth, I do not want Sam ever to blow away, but you know what? He will. His ashes will stick to the fingers of someone who loves him. Maybe his ashes will blow that person into a place where things do not come out right, where things cannot be boxed up or spackled back together, but where somehow that person can see, with whatever joy can be mustered, the four or five new leaves on the formerly barren tree.
“Mom?” he called out suddenly in ‘his sleep.
“Yes,” I whispered, “here I am,” and he slung his arm toward the sound of my voice, out across my shoulders.


Tomorrow I hope the weather will let me ride my bike for a little exercise, but if not, I can read the rest of Anne’s stories.

Carpe Diem!

Serenity and Serendipity

THOUGHT FOR TODAY:What wisdom can you find that is greater than kindness? -Jean Jacques Rousseau, philosopher and author (28 Jun 1712-1778)

Serene, serenity and serendipity,  calm, calmness and a combination of events producing happiness might that be simply being kind to others around you in life? There is a quiet calm that comes with a kind act to another. A friendly smile, a cheery “Good Morning” or a happy wave to a neighbor, these are all simple kind acts that bring calm and lift one’s spirits.

In this new life of mine without Cheryl, I seek the serenity and serendipity of this next journey. I do not know what it will bring but Cheryl helped me to understand that living in the moment is key to living. Over the weekend I began the task of acknowledging the mound of cards, letters, well-wishes and memorials for Cheryl left from her celebration of life eight weeks ago. These days I feel a complicated mishmash of emotions. I suppose that is what grief is; a mishmash. I read in a book once, “grief is just love with no place to go.” Whether grief is merely leftover love or not, I do not know nevertheless grief is only part of my emotional upheaval. There is an emptiness, a hole, a gap in the schedule, a longing, a want for something different. There is a “no one to check with first” feeling that leaves me on my own to decide what to do about anything. I truly do miss her. At the same time I am gladdened by the fact that she is no longer suffering with Parkinson and dementia.

There is nothing on this calendar square and there is no one to ask, “What shall we do today, Dear?” I don’t want to fill my day with necessary but meaningless tasks like laundry and cleaning. I read some; both novels and not. I have several books of poetry and i pick one of them to read and think with and about. I journal although not as much as when Cheryl was still alive and I ponder as I write here.

She does talk to me and lately I have been dreaming about her. These are calm dreams. She has no Parkinson in her. She does not need my help. And when I awaken she stays with me for awhile in the morning.

Yesterday while looking through various memorial cards she directed my attention to this poem in one of them. She knows I like poetry. This was written by Anne Lindgren Davison. (Thanks, Anne.)

 I Am Free
Don't grieve for me, for now I'm free.
I'm following the path God laid, you see.
I took His hand when I heard Him call.
I turned around and left it all.
I could not stay another day,
To laugh, to love, to work or play.
Tasks left undone must stay that way,
I've found the peace on a sunny day.
If my parting has left a void,
Then fill it with remembered joys.
A family shared, a laugh, a kiss,
Oh yes, these things, I too, will miss
Be not burdened with times of sorrow,
I wish you the sunshine of tomorrow.
My life's been full, I savored much,
Good friends, good times, a loved one’s touch.
Perhaps my time seemed all too brief.
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee.
God wanted me now; He set me free.


Poetry is for me a comfort. In this poem with its simplistic rhyme I hear Cheryl’s voice. This an example of her telling me to not be too sad because there is no Parkinson or dementia in heaven. For that I am grateful.

Carpe Diem.

Concerned about What is Unknown

I just heard. Are YOU doing okay?

That question annoys me when coming from anyone other than close friends or family. My first thought is to say, of course I am not okay, you dumb shit. My wife, the love of my life, the person that makes me whole,  the place where I am home has gone to heaven and left me here to deal with the dumb shit questions about how I am doing. But, I do not respond that way. I merely respond with, I am okay most days.

That truth is how I think about it. Some times I am saddened when I think of Cheryl, however, most of the time I am happy for her. She was very ill. It would be better maybe great if she was still alive but not with the health situation she was in. She was sick. She was eating so little her body was consuming itself to stay alive. And although I feel guilty about admitting it, I am happy she died. She truly is in a better place. No bullshit about it. She knew she was dying for awhile. She told me about it a few months before her actual death.

We do not talk about death as a society. Christians believe in an afterwards. When this is done there is more and it is better. Other religions have similar beliefs. I personally am not so sure. (If it’s better afterwards why is it a sin to commit suicide?) Maybe Ronny Reagan is right. But what if he is not? Lots of philosophical ideas there. Plenty to think about.

Cheryl and I talked about it a couple of years ago. I think that it occurred to her that she needed to make her wishes known to me so that I could do it for her. After death discussions with Mom, it was not so upsetting to talk about it all with my wife. Cheryl was focused on the actual service. I was focused on the practicalities of burial and cremation. At the time she still had long periods of almost normal cognition and she recognized that it was lessening. Imagine how scary and upsetting that would have been to her. She never offloaded any of her personal grief about her disease on me. Looking back it was another kindness that she used to protect her family from sadness.

I wish I had spent more time with Cheryl talking about hymns and prayers. She cared greatly about the service. I wanted to ask her things when we had the meeting to discuss what and who. The kids were great. They knew Cheryl’s wishes. I suppose she was talking to them as well as me.

I started this thinking about how annoyed I am with the question about how I am doing. Cheryl just told me to be kind.  Most folks do not know what to say or how to respond to news about death. Mostly they are thinking, man, it must be hard. And it is but my perspective is different and I am doing okay mostly.

Michele Obama’s mother passed away recently. She was 86. No cause for her death was given. (said a stupid news reader.) Why is a cause important? Is there a solution to old age other than death?

Carpe this Diem and the rest that you are given.

Friday is for Cheryl

Today’s daily mass has Cheryl as one of its intentions. So I came for her.

It is quiet. Peacefully quiet. I was okay when Fr. Pat read her name. Tears came though when she was not next to me at the “Our Father”. I could not hold her hand.

Today is Cheryl’s birthday. Happy Birthday Cheryl! Melissa just asked me if you are having Angel Food cake today. Are you? I made your favorite Betty Crocker pound cake mix. I think I got the icing right with Nancy’s help. I followed the Quick Icing recipe in the Dinner for Two Cookbook and added a little margarine. I had some for breakfast. It is pretty good.

I also planted your flowers yesterday. Remember? The fancy purple impatiens that you told me to get on Sunday? They look good by the door. It rained last night so they are not waiting for me to water them.

Cheryl, I find myself listening to Tracy Chapman”s “Fast Car” song a lot. I have no idea why except that it talks about two young people just trying to get through life and their excitement about their engagement with the world both past and looking into the future. For whatever reason it helps me to see your smile. Are you trying to tell me something? I will keep listening.

Happy Birthday to you!

Carpe Diem.

Breathe!

Is what I have written to myself here and there on my remarks (eulogy) that I intend to give at Cheryl’s funeral mass on Monday. I have read them over and over and out loud. I think I do not need the paper but I will take it with me. I have read it to Cheryl. Here and there she rolls her eyes at me. (“Do you really want to say that?) Here and there I simply dissolve into tears and my voice catches (stops actually).

Breathe! (in a larger font and bold) is printed or written in hand on the page where I choke up. There are many of these.

… I love you Cheryl

BREATHE!

You will always be with me. I carry your heart in my heart.

BREATHE!! BREATHE AGAIN!

I will remember your smile.

Carpe Diem (Eulogies are hard to read.)

I am Still Learning

It is possible to keep learning as one ages. I have found over the past few years that as I learned prayerful and careful concepts by taking care of Cheryl, I learned much about myself and my own motivations and along with that my own emotions. Today a new inner desire, perhaps need, has come to me.

Two days ago I received a copy of my collage of photos that I had printed on glass. I remember sitting up late two weeks ago searching for online special printing folks. Cheryl was still alive then. Why it became urgent to get that made at 12:30 AM is not important now. At the time it was an urgency for me. The following Monday morning she was gone.

In anxiety about not having it in time I found Northside Printing a local specialty printing business that specializes in specialty printing. I took my collage to them to have it printed on a big format to display at Cheryl’s service on Monday.

The more that I look at this collection of smile photos, photos of good times and family, I notice that the image of her in ill health and death fades from my memory. It is still there but what I think of first is her wonderful smile. It lights up my heart and helps me move past the Parkinson and dementia.

Often when someone dies, close friends and relatives create a memorial shrine. They do this to help them with the loss. I did not understand the importance of this action when I would see flowers and a cross along side the road but many years ago I found myself near the site of the Oklahoma City bombing and a fence filled with small stuffed animals left as a memorial to all the children killed in that tragedy. It saddened me at the time.

This morning I found myself hunting for the perfect place to assemble my thinking space to remember the good times and Cheryl’s smile.

I have started to do this on the left mirror of her dresser. That is the spot she would often stand to brush and comb her hair. She would pick up her hair spray and shake it a little. That would be my cue to get out of the room so that I did not smell like hair spray. The last step was to spray a little Chantilly into the air and walk through it. My grand daughter Virginia now has the leftover Chantilly. Cheryl likes that fact. She just told me while I was typing this story.

Carpe Diem. And carpe all of the special moments in your life. Later you will savor them as I am now.

Godspeed Cheryl.

A Week Later

It is a week later after Cheryl left the world. It still hurts. It is the next part of this life for me.

I cannot find any words but I know Cheryl is at peace now.

My anchor in life is severed from the chain.

It seems not so long ago that we first met.

Our time together was long and yet so very short. The emptiness is vast.

Carpe Vita – nam vita brevis

They are in a Better Place

I did not appreciate the truth in that comment until the last couple of days.

On Monday as I entered Cheryl’s room at Bridgeway Pointe, I was stricken immediately with a deep grief. Simultaneously with that emotion I was immediately relieved that she was released from her struggle with Parkinson’s and the dementia she experienced in her last years here.

I wanted her to be alive and with me. But not merely alive, I wanted her to be healthy.

I really miss her today. Today we plan her church memorial service. Today I will want to ask her opinion about various things, music, readings. I will close my eyes and ask and listen to her thoughts.

Stay with me today, Cheryl. We can get through it.

Carpe the love Diem.

Close  Friends


Cheryl has been a close friend since 1966.  Often being a close friend is not considered when talking about a spouse. Why does that not come up? I think love binds friends together.  Good friends have mutual love. Acquaintances have attraction but not love. Maybe they express empathy but not love. It is different somehow.

Close means something near. The opposite of close is far. True for physical distance and feeling. Close also means dear. Close Friends are Dear Friends.

We were friends first and then spouses. This what I think, marriage of friends will last. I do not mean that one will never wonder what if but the what if is not a passion. The what if is merely a speculation.

Every day I have a feeling begins about 9:00 a.m. I feel the necessity to get moving and go visit Cheryl. At the same time, I am certain that she is going to be sleeping and not know that I am there. I am not certain of this but it happens more and more. Fear is, perhaps, a better word. When she is sleeping, it is personally a disappointment. However, I think the closeness that I feel for her is unsatisfied until I see her and touch her. Even if she is sleeping, I can feel my heart and mind calm – she is okay. I have not thought about this before our current situation with her disease.

Maybe this is what I felt when I was working and traveling for work. I especially felt a longing in my heart on the weekend should my travel last that long. It would be very important to get home. Is this homesickness? She was where I was home. During the week while away I could distract myself with work and maybe in the evening a little alcohol. But on the weekends I needed her. Fortunately most of my travel rarely was over the weekend. When I retired it was a comfort to have her nearby most of the time. I needed the closeness and doing things together.

I am thinking about all of this as I struggle with the idea that she is leaving me. And as I have written in an earlier post, I do not know where to put that. So, I am thinking about our trips. I am thinking about our children when they were small. I am thinking about our life. I am remembering the great times we had.

Carpe Memoriam

Stream of Conscious – Touch

Two days ago when I sat with Cheryl in the common area of where she is staying, I noted in my journal that she seems to need touch. I think I do too. On these occasions when she does not seem to be in the present, somewhere in her head she needs to feel, manipulate and touch.

It seems to me that these days Cheryl has to have more touch. That is just my thought in my observations when I see her. I am just sitting with her and seeing how she’s doing. But that is what I see and think. I think also that I need the same kind of touch. I sit there and turn the chair so that I can we can be side by side and I can hold her hand. Doing that action is important to me. I observed that about myself today. Today for awhile, about an hour or so, we sat holding both hands. She was holding my left hand with her left hand and I was holding her her right hand with my right hand and we sat that way for a long time.

I am writing this using an app that I downloaded that transcribes spoken words into printed words. I will see how that goes. It looks like I can write in a crude fashion. I can just send this text to myself via email and then paste it into a document and then spend some time trying to figure out exactly what I am trying to say.

It is hard to describe. What I see and and I mean as I think about what I am internalizing when I’m touching her or feeling as I am feeling her knee. Cheryl has gotten very skeletal over the past few weeks.

Even as she looked around at things in the room and told me some story that I could barely hear because her voice is so soft. There is a lot of ambient noise; television in the main room, television in one or two side rooms, Bluetooth music and the occasional phone call, she would simply just sit holding my hands. She was okay to sit that way. Every now and then I had to move my hand and scratch my nose or whatever and every now and then she would let go and you know touch something else or scratch her nose or whatever. It is fascinating to me as this goes on how much it is important for the both of us to touch each other.

The whole thing about touch is sort of interesting to me. I think we have always had that throughout our married life but as I as we get further in this Parkinson’s journey, the sense of touch is is important to me and I think I really do think it’s important to Cheryl. We are communicating our presence to each other through touch.

She does not resist it. She does resist things that that bother or sometimes hurt her. Her sense of pain can be strong. I am sure she feels pain because every now and then she says stop doing that, it hurts me or something like that, or maybe she’s having a cramp in her leg or whatever the deal is, but simple touch is very different. She will also grimace if something causes pain.

I have been exploring the nuances of touch in my head and I don’t really know how to describe differences of instance. It is interesting to me that it is important to her and me at the same time.

Now if she is sleeping or she’s very tired or trying to doze or she does not feel quite right or she is hungry or she needs to go to the toilet or needs to move, then touching gets in the way. When she was still home here with me, it seemed like we would fight (not the right word) when I was helping her with one of these activities. She would be dissatisfied with any any help that I would give her.

I sometimes just reached over to touch her leg to see whether or not there is anything left there. And I realize that I am holding on to her thigh bone, for example without hardly any any any meat. She used to be a much bigger woman. She used to be a lot fluffier. Just a year ago, I would have had a very hard time picking her up and holding her up and helping her into and out of bed. These days, in some book somewhere, I read somebody describe somebody as a bag of bones, that is a pretty good description of Cheryl. She still has a lot of muscle strength when she decides to squeeze and grab something, but she really doesn’t have a lot of mass. There is little subcutaneous fat left on her body and that too makes me want to touch her just simply so that I know in my own mind that she’s still there and she’s still alive. Without touching her she still in my heart. I think about her all the time but somehow there is a physicality that happens when when I actually touch her.

She is very skinny. Touching helps me to understand.

Carpe Diem.