Sometimes You Find Things

Cheryl throws little away when it comes to cards, letters and other written communications. Those include decades old information about house buying, information about her mother Elaine’s finances and letters to Cheryl while at Oldenburg Academy. Old pictures are a treasure and are these days mixed in at random. Recently I was searching for a story I had written some time ago about my mother. While searching for this on many thumb-drives I discovered several note files Cheryl had made a few years ago when her mother passed away. These are thoughts about comments for a eulogy about Elaine.

These days Elaine is very much in Cheryl’s thoughts. Elaine is present and real to her. She often says, “I want to go visit Mom.” Here are some of her memories from a few years ago.


Eulogy for Mom, an Excellent Seamstress

The first example of Mom’s sewing skills took place when Janice and Cheryl were little girls, maybe Cheryl was 5 years old and Janice was 3. Anyway Mom made each of them a new winter coat and leggings and a drawstring purse… she may have also made each of them a bonnet… we’re not sure because we cannot find the photos. However, part of what made this so special is that these clothes were made out of the fabric of 2 adult coats that were no longer needed… we don’t know if they were old coats that belonged to Grandma or Grandpa Moeller or someone else in the family. But Mom carefully took apart the seams in the adult-size coats and made these lovely warm outfits for Janice and Cheryl. Cheryl’s coat, leggings, and purse were made out of a light gray fabric, and Jan’s coat, leggings and purse were made out of dark red fabric. Mom had a lot of patience and skill as a seamstress.

The second example of Mom’s sewing skills is best told from Cheryl’s perspective:

This story took place when we were making plans for Nancy and Ron’s wedding. Mom and I were making the bridesmaids’ dresses for Nancy’s wedding. We had purchased this lovely, soft fabric that had a light blue background with a multicolored floral design. We bought the last bolt of that fabric at the store… there was no more anywhere. We knew that we might have trouble getting all the dresses we needed from that fabric, but we were determined to make it work. Finally we came to the last dress, which was mine. As we were cutting out the pieces of the pattern, we realized that we did not have enough to cut out both sleeves for my dress. The sleeves were what I would call poofy sleeves with an elastic cuff at the elbow. We did have a couple of fabric remnants, but none were large enough for the sleeve. Mom came to the rescue! She sat there at her kitchen table and moved the 2 largest remnants around until she matched up the floral print; then she sewed the remnants together, and you had to look really hard to see that seam. I finished making the dress, and I was extremely proud to wear that dress in Nancy’s wedding.

More stories about Mom

Travel — Mom was never afraid to fly anywhere. She often flew to Florida to visit Janice and her family. She also was friends with a couple who lived in Virginia Beach. Mom would fly to Virginia Beach to visit this couple… Mom’s friends would usually have to go to work while Mom was visiting, but they would give Mom access to the nearby beach. And Mom enjoyed the sunshine and walking the sandy beaches. These thoughtful friends gave Mom a place to relax, especially during the years soon after Dad died.

Jobs — Mom worked as a dispatcher for the St. Bernard Dial-a-Ride for 15 years, beginning in 1991 when she retired from her job as a receptionist in a doctor’s office. Mom loved the part-time Dial-a-Ride job. It allowed her to keep up with activities in her beloved St. Bernard. Everyone knew her and loved her. The only reason that she quit the job when she was 80 years old was because she was losing her eyesight due to macular degeneration… so she had difficulty writing in the dispatcher’s log… other workers had trouble reading Mom’s handwriting… even Mom had trouble reading what she had written. She thoroughly enjoyed working at Dial-a-Ride. She said that, if her eyesight had remained good, she would have continued working there until the end of her life.

Picnics in the county parks with our Krause and Moeller cousins when we were little.

Attended Mass at St. Clement Church on Sundays and during the week.

Reading stories to any and all grandchildren, even when her eyesight was fading.

Bowling team with Evelyn Schulte, Marian Kistner, and Marian Kahlis — played at Brentwood Bowl.

Eulogy for Mom, 2 Special Men in Mom’s Life

Mom had a really good relationship with Dad. They were devoted to each other and to their children. Mom and Dad liked to go dancing… sometimes at the Eagles Hall… sometimes at a wedding reception… any place that was playing music written by the likes of Glen Miller, Johnny Mercer, Henry Mancini, etc. Dad also loved to spend time with his children, even though he worked so many hours at his gas station/auto repair shop, that we didn’t see him as often as we would have liked to. When Dad would come home from the gas station, he usually had some accounting work to do after he ate some supper. If it wasn’t too late, he and Mom might sit at the kitchen table and play cards. In fact, when he had time, we played a lot of card games with Dad, such as Rummy, 7Up, Crazy Eights. Dad loved automobiles… he liked to shop for cars. An evening out with Mom and his children would often consist of visiting the used-car lots in the Carthage and Hartwell areas of town. We would often leave home in one car and come home a few hours later in a different car. Mom and Dad also enjoyed celebrating Christmas. In preparation for that holiday, weeks ahead of time Dad would begin setting up the train and train tracks in the living room and in Mom and Dad’s bedroom, which was next to the living room. Imagine having to step over train tracks to get to your bed! Dad also created many small buildings for the train stations and train neighborhoods out of old shoe boxes. The train layouts that ran around our Christmas tree were always magical.

We never wanted for anything… Mom and Dad always saw to it that we had plenty of clothes, food, toys, etc. Unfortunately, Dad died too soon. Lung cancer ended Dad’s life on April 11, 1977. This was devastating for Mom and for all of us. During the years before his death, Dad would often be admitted to the hospital for radiation treatments to shrink the tumor in his lung or to treat his chronic bronchitis or pneumonia. Whenever Dad was in the hospital, Mom was always there at his bedside. Mom devoted her life to caring for Dad.

Mom had started working part-time while Dad’s battle with lung cancer progressed. After Dad’s death, she began working as a receptionist at a doctor’s office in Clifton. There, a couple of years later, Mom met a gentleman by the name of Bob Roller. Bob invited Mom to go out with him on a date, and so she did. Pretty soon Mom and Bob became companions. Bob was not a dancer… he may have been a dancer at one time, but due to diabetes, both of his legs had been amputated at or above the knee, and he wore 2 artificial legs. Bob had other interests… he was a history buff… he liked to visit historic sites. So Mom and Bob would go to museums and air fields like Lunken Airport or the Air Force Museum in Dayton. Bob also liked to play Scrabble, and he and Mom would often sit at Mom’s kitchen table, playing Scrabble all evening. Bob was a very kind man… he loved Mom and Mom loved him. They were companions for about 16 years, until Bob died. I don’t mean for this to be a sad story. I think that it is remarkable. Mom enjoyed the company of 2 very special men in her life. Even Bob Roller’s children recognized how special Mom’s relationship was with Bob. Members of our family attended Bob Roller ‘s funeral. Bob had been in the military and so there was a flag ceremony at the grave site. The officer presented the folded flag to one of Bob’s sons who turned and presented the flag to Mom! We all shed many tears that day.


As I read these this morning in the background on television the news folks were reporting on the 9/11 ceremonies going on in New York, Pennsylvania and Washington D.C. I did not notice the TV until I was reading this last commentary about Bob Roller. Bob had been a bomber pilot during the war years. That was his interest in planes and flying. Somehow the background of names being read at ground zero seemed apt.

Reading these notes of Cheryl’s a few years ago touched me. I can hear her normal cadence and volume of her voice. I can hear and see her pre-Parkinson train of thought. Little of this is present these days. I miss simple conversation with Cheryl

Carpe Diem.

A Quiet Monday

My mother always hated Monday. Even after she was long retired from her working career she would refer to Monday as Bloody Monday. I never understood that attitude.

This Monday morning Cheryl is sleeping in the other room. Quiet after she had been up concerned about strange thoughts just before midnight. She was worried about when Jan and Nancy were going to pick her up. Jan has passed away. Her thoughts are often very jumbled up these days.

Yesterday evening she was very anxious about our nephew Mark and his girl friend Jill. This was brought on by us driving past the FedEx terminal near where we live and Cheryl asking about Max working at FedEx. I responded with the fact that Mark, our nephew, worked for FedEx. I asked if she meant him. She said yes, I think so. And this launched her into several hours of on and off conversation about him and his girlfriend Jill (I quit correcting her ideas) and birthdays and presents and on and on.

After awhile it is very hard to deal with random nonsensical conversation.

I convinced her we should practice her voice exercises. We shouted MAY, ME, MY, MOW, MOO for several minutes. And tried to make AH last for ten seconds. Parkies do not breathe deep. In Cheryl’s case she often has very little air behind her vocal chords.

We rounded out the evening by watching 60 Minutes on CBS and then the movie “80 for Brady” (for the 53rd time).

I am starting to wonder where she has gone in her mind. She has exhibited several unusual behaviors over the past couple weeks but I disregarded them to simple tiredness from her current PT schedule. Physically she seems to be moving worse so none of this seems to me to be helping her.

A few days ago she sat in the rocker in our living room and stared out the window at the bushes in the overgrown lot behind us for two and a half hours without moving. She did not speak during any of this time.

She puts together random collections of pieces of paper and photographs. Some of these I have taken out surreptitiously of her circulation and put them on my desk to look inside her mind. I think it may be scrambled but occasionally I find little gems.

These pictures of Dad were attached to one of Cheryl’s lists of stuff: Moeller; Dr. & Mrs. Fred Kraus; Jeane Krause; Mr & Mrs.; Barb Kalb; Find Barb’s Christmas card; when I find the list compare the list to current addresses for all; Lists <-> Krause, Torbeck, Driscoll, Weisgerber, Welch; Make a list – Cheryl Torbeck, Cheryl’s friends… None of this has anything to do with these pictures which were probably collected for my father’s funeral in 2007. I am glad I found them.

Maybe one day I can find her mind for her and give it back to her.

Carpe Diem.

Today Cheryl took my Breath Away

Allison is a wonderful young woman who has been cutting and styling Cheryl’s hair for some time. She had been operating out of a salon on the second floor of a business front in our old neighborhood for some time. Many years ago when Cheryl had foot surgery I asked her if she could come to our house and do Cheryl’s hair while she was stuck in a chair waiting for her foot to heal. Allison said of course she could. She had several clients that she took care of at their house.

Cheryl visited her in the salon for a couple years after her foot healed but eventually it became too much – the stairs. I asked Allison if she would visit us on a regular basis and a new relationship of service started.

As Allison was getting ready to leave and I handed her a check she said let’s set up a date for here next hair visit. I got out the calendar of all knowledge and we looked at August dates. Weeks-wise the next date would be August 23rd but that date interfered with something for her son Paulo. She suggested either August 30th or September 1st. I picked August 30th.

August 30 is the anniversary of the day we met. It was August thirtieth of 1966. It was a blue moon. Cheryl remembers that. I would to report to you that I remember it succinctly but I would be lying or at least making up stories about my youth. She remembers that it was a full moon. That fact caused me to look up astrological data to find out it was a blue moon. It is a blue moon this year too. I told Allison the story of our meeting.

After Allison left Cheryl talked about her death, something that every human is able to imagine. Cheryl said to me, “She is such a nice young woman. She didn’t mention that I won’t be here then.”

I replied, “What do you mean by that?”

She said, “I will be dead by then.”

I sat down to have a conversation but I was too dumbstruck to speak for a minute. I wanted to know where that thought had come from. She did not have an answer but she was adamant about it. “I’ll be here in spirit”, she said. (Wow. I thought.)

I don’t know what to make of that idea that she has or had for that moment in time this morning. What I do know is that I will be more alert to her needs for the next few weeks.

Carpe – blue moon – Diem.

The Day You Are Born and The Day You find out Why

The two most important days in your life are these two days.

I was watching a piece on the Sunday morning news magazine about a man who studies burrowing owls out west. He made the comment that I used for the title.

Makes one think. I have been thinking about it all day.

I have written many times before that I think my purpose for existing is to take care of Cheryl. I imagine that thought is prevalent in any long marriage relationship. We are partners. These days she needs a little more help than she did a year ago.

Many years ago I was the one who needed a little more help than I needed a year previous.

It is a partnership.

Carpe Diem.

Bittersweet

THOUGHT FOR TODAY: The bitterest tears shed over graves are for words left unsaid and deeds left undone. -Harriet Beecher Stowe

This TFT came via Anu Arg’s newsletter to me this morning and when I read it two thoughts occurred to me. The first observation is yes but more importantly talk to the people you care most about and listen to them. The second observation is that I have been getting Anu’s newsletter since he started it in college about 1994-ish. Long ago and several email servers back. He and I share a love of words and their meaning both old and new. Today’s word is chirk. An old one that means cheerfulness. (Such a contrast to the TFT)

The Last Day

Today is our last day at the beach in Florida. Is it bittersweet? Tomorrow morning we will return home to our regular daily life (sweet). Am I reluctant to leave this Florida beach (bitter)? No I am not. It was/is however a nice change of pace.

Florida is hot. The humid air sticks to you like Luke Skywalker does to Mark Hamel. Fine white sand is everywhere. Tile floors although easy to maintain feel like a NHL practice rink just before the Zamboni comes out to a parkie unsteady on her feet. Those are a couple of the nuances that did not dissuade us from taking the opportunity to come here with Anna’s family. The experience was sweet. Going home will be sweet as well. No bitterness here.

Cheryl made it through all of the little inconveniences that come with being away from home and slightly off schedule for several days. Her schedule is very different from the rest of us and especially me. I suppose that I should be more cognizant of that but I am not. I am always hopeful that her disease interlaced with dementia will cure itself and we can move on with our life, run around and travel, drink fine wine, keep a schedule, make love again, just simply be. And that makes me forget where she is and where we are. Alas.

Red flag day

There is only sweetness coming when we get home. This vacation adventure with our daughter’s family has been hard on Cheryl but she does not seem to know it. She only knows that I am angry when she is doing something different than I am trying to get her to do. The page I have here about Dementia alludes to a lot of those little daily frustrations that I have observed. I should read it more often. Daily, perhaps?

… talk to the people you care most about and listen to them. Even when they are suffering with dementia and memory loss, she is still in there. Thanks, Anu. I often forget about that. The bitter can overwhelm the sweetness.

Carpe Diem.

Make a List

Cheryl makes many lists. Early on when she was still working and Parkinson was not a friend, she made TODO lists for work, school activities and whatever was coming. These days with Sam’s disease (Samuel Parkinson) such a big part of our lives making a list is more nuanced. The next day one must remember what the list is about.

In May two of the grandchildren marked significant events in their education. One matriculated from university and will begin contriting to the business world after this family vacation. And one graduated from high school and has her sights set on university in the fall. Cheryl made a list to mark both events. We were only able to attend one of the graduations but both celebrations. The list worked but I had to remind her what her notes meant.

Vacation view

In another part of the family, preparation is happening for a family reunion style gathering with no funeral attached. Cheryl wants to be very involved although her organizational skills are mostly gone. Her head however is jumbled with ideas.

“I need to make a list!”, says she.

“Try to relax and enjoy the beach.”, he replied.

“I will after I make a list.”

Sam this disease of yours is so much more than we had hoped for in our lives. (sarcasm)

CARPE DIEM (dammit)

Walks on the Beach and other Memories

Our selfie

When the children were small we began a tradition of making a trip to Myrtle Beach about once each year. The company that I worked for at the time used a pair of common vacation weeks which always landed at the end of July and the first week of August.

The company paid us salaried folks every four weeks called a period. The vacation weeks were the middle two weeks of the eighth period of the year. There were thirteen periods in a year and every few years a week was added to the thirteenth period to correct alignment with a normal calendar year. The Roman’s and later on the Pope would have been proud of Cincinnati Milacron.

Every year for 15 years or so our family went on vacation in the hottest part of the Ohio summer. Since my father worked for Milacron the memories of this vacation time goes back to childhood.

Cheryl liked to hike and walk. Not being an especially athletic person she substituted hiking and walking for any other athletic endeavor. At Myrtle Beach we would get up early hike the empty beach. It is where I first saw the green flash that occurs when the sun comes up over the ocean.

On other vacations over the years hiking was a big motivator. In every state park or national park or area that we stopped in walking and hiking was a major part of the experience. Maps were collected upon arrival and put to good use during the stay. In one Kentucky park our hike was about ten miles. It is without a doubt the thing I miss most with the onslaught of Parkinson. Her struggle to walk freely and move easily is disheartening. It was in many ways our main entertainment.

Conversation, discussion, debate, points won, points lost were all accompanied by a satisfyingly long walk. I think I miss those more than I can easily express.

Today my daughter and her husband took a long walk down the beach together. I was envious.

The hat

This time at the beach I am pushing her here and there. There are special wheelchairs for the beach and they are free. There is good ice cream across the road. I pushed her there too.

Carpe Diem.

While Driving and Talking

Last evening as we drove to our granddaughter’s high school graduation it became apparent to me that although Cheryl knew who I was she did not really know who I am. She started talking about events in the past that we had done or children and grandchildren, sometimes mixing those together. Her discussion might start out as Paul and I did this or Paul and I did that or Paul told me etc. It makes one wonder about the complexity of the human mind.

In one of these conversations, an incredibly lucid one, she said to me that she thought her Parkinson disease was getting worse. (AHA) She went on to say that her memory was very bad at times. I just took a deep breath and let her continue. She explained that she was having a harder and harder time remembering names and relationships (she said “who they belong to”) and that thought bothered her. Throughout the rest of the evening at the graduation ceremony, pictures in the courtyard outside the high school and on the way home, this failure to remember names and relationships was forefront on her mind.

This information is very important to Cheryl. Embarrassment or shyness keeps her from merely asking, “who are you?” I told her that she can always ask me who the other people are and I would tell if I knew. I am not shy. I merely say, I’m sorry I’ve lost your name in my head.

Most times these drive along conversations fall into the category of prattle and I can respond with, ugh-huh or yes that is probably true or I don’t know about that but, yesterday evening it was more serious than that. Last night it affected her sleep as she began to worry about how everyone fits together. She could not find those relationships in her head to her satisfaction. She spent the three hours from eleven PM to two AM speaking to herself in a low voice and fidgeting with her hands. Fidgeting often accompanies her discussions with herself as well as others.

There was a lot of hugging and reassurance that I would always help. She on the other hand is aware of her memories dissipating into the ether and it scares her.

Indeed, her disease is getting worse.

Living in the present is all that is left when one cannot plan ahead nor remember past experiences. Disappointment was rampant in our drive along yesterday. Regan’s graduation ceremony, however, was well orchestrated. She is on to the next thing. (Smartphones take really crappy long photos but here is some from the ceremony.)

Carpe Diem

Birthdays

Birthdays are a big deal to some. Not so much to others. Cheryl got several cards from friends through the mail.

This vase of flowers magically appeared on Cheryl’s birthday with Natalie when she came to clean. Her sister Nancy had sent flowers for her birthday and Natalie selected them.

In the evening we went to a little cafe nearby to celebrate Cheryl’s birthday with our daughter, granddaughter and her brother. As I was putting Cheryl’s walker out of the aisle in the crowded little restaurant, a woman seated by herself remarked that I was a good husband. She had watched me guide Cheryl into the booth near the window. I told her that I try to take care of Cheryl as best as I can. She told me her husband had passed away a few years previous and she missed him greatly.

When I paid our tab for dinner I paid for her dinner also.

Carpe Diem.