The Bench is Back

Wednesday as I rode my bike around my favorite path, the Lunken Airport loop, I noticed, was amazed and elated that the bench is back. This bench sits at the top of a paved path to a lot where many folks park their cars to walk or ride the loop around Lunken. The view is of the tarmac behind the old terminal that has been neglected by the city fathers and mothers on the council.

The bench disappeared for a while. I assumed falsely to be repaired. It looks no different. Perhaps someone stole this valuable piece of art and the parks department replaced it with another. (He thought, tongue in cheek.)

Cheryl and I often came here to eat at the Sky Galley restaurant in the terminal. It was a favorite of her mother when Elaine was alive. The bar was always full and the atmosphere was friendly. Private aircraft landed and the pilots and passengers stopped in to eat. The national guard guys would fly their helicopter over to train and get a bite to eat.

The Sky Galley is closed. The restroom facilities are part of the terminal building and not up to city code. Maybe there is another problem with a building – an art decco gem actually – that the city owns.

Riding around the loop I think of these things. Memories of bringing Cheryl and her mom here to eat. A couple times we met Elaine and Bob her for dinner when they were both alive. That was many years ago now. Those are all good memories.

It is sad that the city does not maintain gems such as this. Tempus fugit.

Carpe Diem.

Serenity and Serendipity

THOUGHT FOR TODAY:What wisdom can you find that is greater than kindness? -Jean Jacques Rousseau, philosopher and author (28 Jun 1712-1778)

Serene, serenity and serendipity,  calm, calmness and a combination of events producing happiness might that be simply being kind to others around you in life? There is a quiet calm that comes with a kind act to another. A friendly smile, a cheery “Good Morning” or a happy wave to a neighbor, these are all simple kind acts that bring calm and lift one’s spirits.

In this new life of mine without Cheryl, I seek the serenity and serendipity of this next journey. I do not know what it will bring but Cheryl helped me to understand that living in the moment is key to living. Over the weekend I began the task of acknowledging the mound of cards, letters, well-wishes and memorials for Cheryl left from her celebration of life eight weeks ago. These days I feel a complicated mishmash of emotions. I suppose that is what grief is; a mishmash. I read in a book once, “grief is just love with no place to go.” Whether grief is merely leftover love or not, I do not know nevertheless grief is only part of my emotional upheaval. There is an emptiness, a hole, a gap in the schedule, a longing, a want for something different. There is a “no one to check with first” feeling that leaves me on my own to decide what to do about anything. I truly do miss her. At the same time I am gladdened by the fact that she is no longer suffering with Parkinson and dementia.

There is nothing on this calendar square and there is no one to ask, “What shall we do today, Dear?” I don’t want to fill my day with necessary but meaningless tasks like laundry and cleaning. I read some; both novels and not. I have several books of poetry and i pick one of them to read and think with and about. I journal although not as much as when Cheryl was still alive and I ponder as I write here.

She does talk to me and lately I have been dreaming about her. These are calm dreams. She has no Parkinson in her. She does not need my help. And when I awaken she stays with me for awhile in the morning.

Yesterday while looking through various memorial cards she directed my attention to this poem in one of them. She knows I like poetry. This was written by Anne Lindgren Davison. (Thanks, Anne.)

 I Am Free
Don't grieve for me, for now I'm free.
I'm following the path God laid, you see.
I took His hand when I heard Him call.
I turned around and left it all.
I could not stay another day,
To laugh, to love, to work or play.
Tasks left undone must stay that way,
I've found the peace on a sunny day.
If my parting has left a void,
Then fill it with remembered joys.
A family shared, a laugh, a kiss,
Oh yes, these things, I too, will miss
Be not burdened with times of sorrow,
I wish you the sunshine of tomorrow.
My life's been full, I savored much,
Good friends, good times, a loved one’s touch.
Perhaps my time seemed all too brief.
Don't lengthen it now with undue grief.
Lift up your hearts and peace to thee.
God wanted me now; He set me free.


Poetry is for me a comfort. In this poem with its simplistic rhyme I hear Cheryl’s voice. This an example of her telling me to not be too sad because there is no Parkinson or dementia in heaven. For that I am grateful.

Carpe Diem.

Too Much Money

Some have too much money. A few days ago I found myself reading an article in the Wall Street Journal about a couple who had bought a “four hundred year old fixer upper” for a trivial sum of seven million dollars. I initially thought “good for them” they have enough money that they are not concerned about the 7 mill cost and the place may need another couple of millions to rehab and get it livable. It is the American dream. Money is fungible. Why not funge some of it into a building assembled in 1600 and something, own a piece of history.

Some have too much money. Remember the story about the needle eye and the camel?

A few days ago I rode to a restaurant on the river  bank with  a group of my in-laws. The conversation wandered around all over as it often does when I am with Cheryl’s youngest brother and the boat owner. Somehow Melinda Gates and her leaving the management of the Gates Foundation popped out of the rabbit hole and Ken asked what I thought about other folks just giving their money away. We never finished that thought because the restaurant was near and the crew (me) was in experienced. However later as I drove home I thought I care little about what others do with their money. I do not envy them. They have to figure out how to get though the eye of the needle without stepping in the camel dung.

Some with too much money buy 400 year old fixer uppers. Some donate vast sums to political campaigns. Some travel to exotic places. Some buy yachts and sail to distant shores merely to enjoy the wine. Some buy lots of wine and keep it in the basement (cellar) to drink later if they live long enough and remember which basement stores it. Some give their money to foundations to support a cause that they believe in whatever project that is. Scrooge McDuck used to sleep with his if I remember the comic correctly. It matters not how they spent their money.

I only care about my money. My hope is that It will run out about the same time I do. So far that seems to be working out on its own. There is a story about that in the Bible too.

When Cheryl was still with me, I thought if I could buy a cure for her damnable disease it would be worth every penny of savings to do that.

Do I think there are better things to do with 7 million dollars than buy a 400 year old fixer upper? I do but it is not my money so what I think matters not. Godspeed to them, I say.

I do miss Cheryl though, and all the money in the world will not bring her back and make her healthy.

Carpe Diem.

Death and Other Thoughts

I have spent a considerable amount of time thinking about death lately. I imagine that that is not unusual given the fact that the love of my life and my closest friend died just a few weeks ago.

I just finished a memoir by Sloane Crosley entitled “Grief is for People”. In it she discusses her relationship with a good friend, mentor and boss. She delves into her own feelings of grief and emotion after his death. He commits a suicide one day that no one including his partner had any hint was in the offing. She is angry and sad and writes about her life experiences with him. Her candor and vivid description of social life and office life is compelling. She had left the publisher to follow other interests and others said to her but he was just your ex-boss, why are you so upset? She examines that question from all sides. Regardless of the manner of death it is a well written discussion of emotion and friendship and loss.

I think I fell into reading it to examine my own grief for the loss of Cheryl. This is one of the few times that I have selected a book entirely based on the title and read it through. It was not what I was expecting it to be. I am always hunting for the manual that goes with certain places, stages, phases of life. I have found none, so, one might think I would quit looking for the repair manual that goes with this or that stage, phase or place in life but hope springs eternal in my mind. I will continue to search for meaningful words from someone who went down the road before me.

This book did cause me to think about Cheryl and analyze my feelings and my grief for her death. I have come to believe it is impossible to fathom death as a concept. I am not anxious for mine. Cheryl’s dementia was such that she seemed unaware of hers.

In a Louise Penny novel somewhere is the line, “Grief is love with no place to go.” This comment probably from Gamache, her main character, is succinct and directly to the point. I wrote that down in my journal a few years ago. It seems to me that I have no place to send my love for her and that is what makes it so difficult to accept.

Death is a normal and natural event. It can also be an abnormal and unnatural event. In either case it is death. Those of us left behind must find a new place for our love.

Carpe Diem.


A THOUGHT FOR TODAY: The ability of so many people to live comfortably with the idea of capital punishment is perhaps a clue to how so many Europeans were able to live with the idea of the Holocaust: Once you accept the notion that the state has the right to kill someone and the right to define what is a capital crime, aren’t you halfway there? -Roger Ebert, film critic (18 Jun 1942-2013)

A Story from Two Years Ago

I wrote the following essay about two years ago. I put the first draft of my book about Cheryl and the last five or so years of her life together in the form of my web log essays and stories gleaned from there and my journals.

I am letting my book gel in my brain for a while and as I do this I occasionally reread an article that I wrote sometime ago. Cheryl often comes into my thoughts and explains her side of the story. It can be and often is a mystical experience.

Apathy and Living

Has she apathy? As we move forward it seems to me that she cares less about day to day activities. She seems to recede into her own thoughts but not as a prevailing occupation. I think of it as apathy-not-quite. When she gets in this mode it’s often temporary. She is tired from some activity.

Specifically activities like taking a shower, getting cleaned up, physical therapy sessions or exercise classes are obviously tiring for a PD sufferer. Something as easy as thinking about what is next seems to tire her out also. It like a temporary apathy. Procrastination?

It starts with, ” I don’t think I can go to… exercise class, church, physical therapy…” Admittedly it takes a lot for anyone to be motivated to exercise. It was not a big part of our lives when we were younger. Neither of us were sports buffs. My main sport is riding my bike. There is a solitude to doing that which I am unwilling to give up or share. As her care partner, it is frustrating for me that she cannot observe how much she is helped by exercise and her PT sessions. She seems to not remember. It seems like she is going merely because I am taking her there.

When Cheryl gets in this mode (mood?), I turn the corner to something else. I am resistant to letting her go on and isolate herself in her little office area thinking, punding and organizing. I take her out. Anywhere works as long as it is out of our condo.

Yesterday I took her one of our local county parks that we have not visited for a long time. Afterward we went for ice cream at a nearby Dairy Queen. I had planned to make dinner at home but she suggested we find barbecue somewhere. This being an odd suggestion because it seems to upset her stomach often and she says never again later in the evening. We did not find the barbecue place to be amenable to folks with mobility issues so we landed at one of our old favorites and ordered something different than we usually get so the newness was preserved. On the way home she thanked me for taking her to Lake Erie and she told me a story about when she was very young.

In the early days of her father running his own gas station which was a life long dream of his, he rarely took any vacation time. It seems one of his friends had a vacation cabin up near Lake Erie and not far from Port Clinton. There is a park nearby called East Harbor State Park. Our walk by the shore of a much smaller lake in the park much closer to home than Lake Erie must have taken her mentally back to her childhood and a very fond memory. We visited the same area a few years ago and visited East Harbor.

She talked at length about the trip with her mom and dad. She thanked me for getting her there and back in the same day.

I started this writing and contemplating apathy, but maybe it’s projective (mine) apathy? Or predictive apathy? Or apathy is the wrong word? (indifference? passivity?) Or is it poor sleeping patterns? This morning she got up at quarter til ten which means that she was in bed for about eleven hours. She awakened this morning from the same position she fell into when she got in bed. On the previous evening she went to bed very late after midnight and slept very little. (As a result I slept little also.)

Is apathy and memory related? I wonder about ideas like this. Perhaps she cannot remember that she seemed to enjoy herself the last time we went there? Wherever there is.

When I finally teased Cheryl awake this morning, she opened her eyes and asked, “Is Mary Pat here?” An amusing opening question about the day. I smiled and told her, ” No Mary Pat is not here. I think you were dreaming about her.” I have no idea where the Mary Pat (a childhood and current) friend thought came from but she has talked to her a couple times over the past few weeks.

I encourage her to talk to her friends when she gets excited about some memory or misconceived thought. Many of them have had strange conversations with her about things. I used to be embarrassed for her and, at first, discouraged these phone calls which she often decides to do later in the evening. But as I thought about it I decided that it was not my place to absorb or accept or become embarrassed for her. Her friends know her state of mind. They are wonderful people and she is blessed to have them as life long friends.

Focus, cognitive abilities, caring, likes and dislikes are all related to memory issues. Staying active, no matter how small that activity is, helps.

Carpe Diem. Written July, 2022

The picture is from the same time that summer. Parkinson Community Fitness had a luau party.

Carpe this Diem.

Calendars, Checkbooks, Organization

On Saturday, sometimes on Friday, I look at the checking account and check the bank’s math. These days when I do this I think of Cheryl and reflect on how she was able to show me how to do the family finances. Over the past few years she showed me how to do other things too.

Cheryl and I went to Saturday afternoon mass. It was better for her schedule wise to do this on Saturday. I typically go to mass on Saturday since she has left. Mostly to think about her and to talk to her there. This day is the beginning of festival season and there are now five festivals in the combined parish. Sr. Carren used to bring communion to Cheryl and she asked me to attend the first festival with her.

It was a good time. Several other parishioners that I knew came also.

Now I am in church for the second time this weekend. The mass today is for Cheryl. So, as little time I spend praying, I am praying with her today. Some have said pray for her but I do not think that she needs prayer. I do pray with, think about, ponder, meditate about and spend time with Cheryl. I carry her in my heart. She is with me today. One of her favorite hymns was the opening song this morning.

As I quietly sat before mass earlier I thanked her for encouraging me to do all these chores that I had not done before. I found myself talking to her in the quiet of my mind. It was comforting.

Not only do I do the chores for myself now but I also make a list of what those things are so that I do not forget any. Cheryl showed me how to do that also.

Carpe Diem

She Made Me think for a Bit

Have you ever lived on your own before?, Natalie asked me. An innocent question on her part, I am pretty sure. We talk about sundry topics while she is cleaning. I appreciate the fact that she wants to know more about me. I think.

She made me think about it. The answer is no. I moved out of Mom and Dad’s house to our apartment in Oxford. Cheryl was slightly more experienced.

She was resident at the high school she attended but lived in a dormitory situation with many girls around her there. She lived at home in the summer. She had a tough guy for a dad who told the head of the novitiate program that when Cheryl was under her care she would do what she said and when Cheryl was home for the summer she would do whatever he said. That was after some discussion about dating boys.

Thanks, Bob.

Natalie’s question added nuance to my current situation. Another background spice that makes the flavor so new to me. I am 74. I have never in my entire life lived by myself. So far, it is not bad and yet it sucks too. Maybe I need a list.


PROSCONS
laundry can lay around until laterdo own laundry
cook own food – experimentcook own food
do whatever during day, no rulesno schedule, no rules
go wherever during dayable to eat ice cream for breakfast
get up whenever – early or latemake own bed
only thing holding me back is meonly thing holding me back is me
only consideration is mehome feels empty
I am sure there are more.

Maybe I do not need a list. Although a list does make me think of Cheryl and her lists. I have kept many that she made and put in her office when I cleaned it up.

There are pros and cons to those thoughts also.

Carpe Diem.

Concerned about What is Unknown

I just heard. Are YOU doing okay?

That question annoys me when coming from anyone other than close friends or family. My first thought is to say, of course I am not okay, you dumb shit. My wife, the love of my life, the person that makes me whole,  the place where I am home has gone to heaven and left me here to deal with the dumb shit questions about how I am doing. But, I do not respond that way. I merely respond with, I am okay most days.

That truth is how I think about it. Some times I am saddened when I think of Cheryl, however, most of the time I am happy for her. She was very ill. It would be better maybe great if she was still alive but not with the health situation she was in. She was sick. She was eating so little her body was consuming itself to stay alive. And although I feel guilty about admitting it, I am happy she died. She truly is in a better place. No bullshit about it. She knew she was dying for awhile. She told me about it a few months before her actual death.

We do not talk about death as a society. Christians believe in an afterwards. When this is done there is more and it is better. Other religions have similar beliefs. I personally am not so sure. (If it’s better afterwards why is it a sin to commit suicide?) Maybe Ronny Reagan is right. But what if he is not? Lots of philosophical ideas there. Plenty to think about.

Cheryl and I talked about it a couple of years ago. I think that it occurred to her that she needed to make her wishes known to me so that I could do it for her. After death discussions with Mom, it was not so upsetting to talk about it all with my wife. Cheryl was focused on the actual service. I was focused on the practicalities of burial and cremation. At the time she still had long periods of almost normal cognition and she recognized that it was lessening. Imagine how scary and upsetting that would have been to her. She never offloaded any of her personal grief about her disease on me. Looking back it was another kindness that she used to protect her family from sadness.

I wish I had spent more time with Cheryl talking about hymns and prayers. She cared greatly about the service. I wanted to ask her things when we had the meeting to discuss what and who. The kids were great. They knew Cheryl’s wishes. I suppose she was talking to them as well as me.

I started this thinking about how annoyed I am with the question about how I am doing. Cheryl just told me to be kind.  Most folks do not know what to say or how to respond to news about death. Mostly they are thinking, man, it must be hard. And it is but my perspective is different and I am doing okay mostly.

Michele Obama’s mother passed away recently. She was 86. No cause for her death was given. (said a stupid news reader.) Why is a cause important? Is there a solution to old age other than death?

Carpe this Diem and the rest that you are given.

She Talks to Me

I think of Cheryl often each day through the day.

I think she trained me to be on my own path without her. I had this thought as I was doing laundry for myself yesterday. Up until about 5 years ago, Cheryl did the laundry for both of us. It became hard for her to maneuver the laundry basket and use her cane or use one hand to steady herself on the wall in our new condo. I started to help her do the laundry. Separate the load into dedicates, colors, whites, etc. she would tell me. We used the bed to fold, smooth and put away.

I still do it her way even though I think of it as my way or the way.

She got me to take over other tasks of everyday living over time.

Another kindness she did for me.

Carpe Vitae

6 Valedictorians, 15 Salutatorians

Wow. The folks in charge of it all gave all six kiddos a chance to speak, two minutes each, a common theme. They are all very young. They all have vast horizons in front of them. Carpe Diem!

Curiosity,  love,  kindness, passion and compassion when do these ideas fade?

They are a big group of graduates. Audrey was in the fifteen Salutatorians. They did not get the opportunity to speak and that is too bad because I am sure that they are full of curiosity, love, kindness, passion and compassion. I am also sure that the other more than 500 graduates are also full of those aspirations. Some are going into the military services. Some are going off to further their education beyond high school. Some are going off to the world of jobs. Some know or think they know what they want to do in the years to come. Some do not. Some are intrinsically motivated. Some are reaching for each ring and hoping for gold (or brass).

Looking at this group from up in the stands as they are perched at this jumping off point in their young lives, I reminisce fondly to my own graduation ceremony. It was many more years than I care to admit to myself. We were all seated on bleachers set up on stage in Cincinnati’s Music Hall. My graduation class was all boys. There were more than 220 of us. Music Hall has great acoustics. I once saw Peter, Paul and Mary in concert there on stage without microphones. It was great. I would probably not remember it at all except for this.

There were more than 220 of us and one of them discovered a loose board in the steps that made a crisp thwack sound when trod on properly as he returned to his seat in the second row of bleachers. Imagine. We were all boys about to be thrust into the world of men and war. It was 1967. (“Squirrel!”)

ThWACK! THwack! bumpff… THWACKub. … only 198 guys left to test their metal. Only one chance per player. The quiet first row never stood a chance but in all fairness, they did not get a chance to play.

The game was on and boredom no longer reigned within the class of baby boomers.

I missed Cheryl’s physical presence at Audrey’s ceremony. Later as I drove home we talked about it.

Carpe Diem, Audrey!