Such a Wierd Disease

Last night, Monday bloody Monday night, we had our support group meeting. Cheryl and I (mostly I) were put on the spot about our recent trip to Florida. We rode down with Anna and two of the grandchildren. I did not drive and I admitted that I missed a couple things and did not plan as well as I wanted to for the drive down or back. We survived the trip however and we both had a good time.

Everyone at the meeting wanted to know- how was Florida? Florida is HOT! is my response to that question. It is also humid, bright and sunny. The extra sunscreen that gets slathered on makes me want to shower every 20 minutes or so.

After our meeting Cheryl and I stopped at our favorite Dairy Queen for blizzards.

Ice cream if DQ can be called ice cream always perks her up. She seemed tired and frail at the meeting. At DQ we had a normal conversation and talked about where we are. Cheryl talked about wanting to become more involved in the search for a cure. I got a taste of regular life on our vacation. I told her that I did not want to have our entire social life wrapped around and totally involved with Parkinson disease. I get enough of that on a daily basis. It is frustrating and I love her but really do not want to make it our life.

We had a lucid real conversation about what we both wanted as we go forward on our journey through life.

Later she had a very hard time falling asleep and was awake until 4 AM. That is her Parkinson. On and off, up and down, in and out and completely annoying all the time.

DQ through the years…

I love her and want to do things not Parkinson.

Carpe Diem. (wierd is on purpose weird)

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